by paljane8 (1416 Posts), Mon Apr 26, 2004 10:52 am
Well, thanks to you all! I am just overwhelmed by the support and e-mails. You are the greatest group of people and I will never forget your kindnesses.
Yeah, I think it is just a blood draw. I know it takes a while (like over a month) to get the results back. But, I don't know that much about it yet. We are waiting for a call from Children's to schedule it and their eval. I wanted to do it at UW but, they referred us to Children's. Janie has some facial characteristics like a flat bridge to her nose, eyes far apart, wide forehead and narrow chin that are common in syndromes. There are some other things too, but, those are the main ones. Her low muscle tone, oral low tone and delays are also found in syndromes. She meets with another team tomorrow to do more testing on her motor, play, behavior and social and cognitive skills. I have kind of processed the initial shock, so I am a lot better with things now.
But, again, thank you so much for all of the support. I feel you are sent by God; like you are His hands.
Moderator/WA State Co-Coordinator
Janie-5/03 (PIH, oligo and low blood flow)