Janie update

[mada]

That's so awesome!! We are good as well. Just plugging along[:)] So, isn't Ms. Janie turning one right around the corner? Yup, just looked at her b-day. Can you believe how fast it goes!! Are you all still planning a trip out here?

Mada Harpster

Sam 6-29-00 36weeks P.E.
Ben 11-03-01 No P.E.

[catherine]

Good growing Janie!!! Hopefully Chloe will feel moved to catch up. I"m thinking that she's managed to contract another spuke virus, so we're back on the pedialyte. She's making me pay for all those illness-free years with Finn and Lucy. I know if I write this there will be kharmic payback but for a total of almost 10.5 child years we've managed only 1 ear infection (Finn @ almost 1), none for either Lucy or Chloe! No wonder I'm only a Fisher Price mommie LOL!

Catherine
Mom to Finn, Lucy (preeclampsia and HELLP) and Chloe.
Moderator HELLP Syndrome Survivors

[paljane8]

Catherine, I am so sorry! Chloe has had a rough year! Enough with THROWING UP! Enough with LAUNDRY! Oh, man, hang in there!

Mada, I can hardly wait! I am leaving here around the 17th of June and I'll be in CO for 3wks. Can't wait to see you guys! Maybe we should warn the zoo in advance...just so they are prepared [:D].

Nancy Eastwood
Moderator/WA State Co-Coordinator

Calvin-8yrs
Saren-7yrs
Scott-4yrs (PE)
Janie-5/03 (PIH, oligo and low blood flow)
http://www.babiesonline.com/babies/4/4lbs/

[julie f]

Nancy,

Just wanted to send lots of prayers your way for a great appointment tomorrow!! If she is anything like her mama (which I am quite sure she is[:D]) I have no doubt she'll wow them tomorrow!

Julie (27)
Zachary James, 7/22/03-7/27/03, born at 26wks - severe pe

Southern California Coordinator

[paljane8]

Thanks to all of you...you are such thoughtful and supportive women!

Julie-any wowing in TTC yet?

It is kind of hard to post today. They asked us to have Janie genetically tested (and DH and I too) for a syndrome. She has some facial characteristics as well as her delays that point to something more. It feels sad. But, knowing is half the battle. So, before I get all upset about it, we decided to wait until we have more info. She really does well over all so it will be nice to know how to help her. And frankly, she is a sweet heart. We meet with another team next week to assess her play skills, behavior development, fine and gross motor and more cognitive testing.

Nancy Eastwood
Moderator/WA State Co-Coordinator

Calvin-8yrs
Saren-7yrs
Scott-4yrs (PE)
Janie-5/03 (PIH, oligo and low blood flow)
http://www.babiesonline.com/babies/4/4lbs/

[mada]

Nancy,
I am sorry for all the worries you have been going through lately. I do so hope Janie is well and your right, she is a little muffin!! What kind of a test do you all need to got? Is it a blood test? I hope it isn't to hard on you guys. My thoughts and prayers are with you as always. Hang in there sweetie[:)]

Mada Harpster

Sam 6-29-00 36weeks P.E.
Ben 11-03-01 No P.E.

[5thtymachrm]

Nancy,
I am so sorry to hear that, I hope it all turns out okay[:)]

Elizabeth
11/20/03 Indigo E. (born with no PE @ 37 weeks, 5lbs 13oz) (Pg Issues:33 weeks of bedrest!, PIH(atenolol),hyperemesis, hypothyroidism, cancer remission, asthma, 8cm blood clot @3wks)
http://www.babiesonline.com/babies/i/indigopage/
11/17/95 m/c @14wks
1/97 m/c @3wks
2/98 m/c @5wks
8/02 m/c @3wks

[julie f]

Nancy,

Janie is in my continued prayers. I hope that the testing can provide some answers and you're right, knowing how to help her will be the best thing.

Hugs,

Julie (27)
Zachary James, 7/22/03-7/27/03, born at 26wks - severe pe

Praying for a miracle... TTC #2 is a go!

Southern California Coordinator

[momathelete]

Nancy,

I am hoping and praying that everything goes ok with Janie. Being a little peanut isn't so bad; I pray that she is just that. You hang in there my fellow diva. You have a whole bunch of us here for you. Cyber hugs and real hugs go a long way. Please keep us updated if you are able to. I wish I could do more than wait for results. Major praying is going on in this corner!!!



Michelle
Moderator -On Bedrest
Interim Local Coordinator -Illinois

mom to Cole (HELP pregnancy, 28 wkr) 5 yrs old
Lainey (preE pregnancy, 29 wkr) 2 yrs old
Ella (PIH, 37 wkr) 8 mns

[paljane8]

Well, thanks to you all! I am just overwhelmed by the support and e-mails. You are the greatest group of people and I will never forget your kindnesses.

Yeah, I think it is just a blood draw. I know it takes a while (like over a month) to get the results back. But, I don't know that much about it yet. We are waiting for a call from Children's to schedule it and their eval. I wanted to do it at UW but, they referred us to Children's. Janie has some facial characteristics like a flat bridge to her nose, eyes far apart, wide forehead and narrow chin that are common in syndromes. There are some other things too, but, those are the main ones. Her low muscle tone, oral low tone and delays are also found in syndromes. She meets with another team tomorrow to do more testing on her motor, play, behavior and social and cognitive skills. I have kind of processed the initial shock, so I am a lot better with things now.

But, again, thank you so much for all of the support. I feel you are sent by God; like you are His hands.

Nancy Eastwood
Moderator/WA State Co-Coordinator

Calvin-8yrs
Saren-7yrs
Scott-4yrs (PE)
Janie-5/03 (PIH, oligo and low blood flow)
http://www.babiesonline.com/babies/4/4lbs/