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Impatient...

Are you considering having another child after preeclampsia? Trying again after preeclampsia can be an emotional challenge. You can find support with others who share your concerns here.

Impatient...

Postby jenndola » Sun Jun 20, 2004 11:40 pm

by jenndola (1850 Posts), Sun Jun 20, 2004 11:40 pm

I posted months ago that my peri wanted me to wait to TTC while he was looking into prospective treatments for my APS and pregnancy. So now it looks like he's decided he probably wants me on Enbrel (and heparin, of course), but because of the expense, we now have to wait until November when the pharmacy benefit kicks in from my insurance. November! I've been waiting since January!

I guess it's good that I have PLENTY of time to normalize post-Depo (shot wore off in February). Now the peri wants to do another preconceptual consult in August. I swear, if I didn't love the man so much, I'd think he was after my money.

I just hate all the waiting...and waiting...and then some more waiting...I'm all ready to go! And I'm tired of practicing! [;)]

Jenn
Angel Maggie stillborn due to HELLP Syndrome at 19.5 wks
Missed miscarriage/D&C 14 weeks
Miscarriage 6 weeks
Antiphospholipid Syndrome (APS)
I'm putting my perinatologist's kids through college!
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Re : Impatient...

Postby angelkat » Mon Jun 21, 2004 04:28 am

by angelkat (3423 Posts), Mon Jun 21, 2004 04:28 am

Jenn,

Sometimes it feels like were always put on the back burner when it comes to TTC. I think you have a wonderful doctor who would go out of his way to find treatments for you before your preg!...

Hang in there... Just tell yourself practice makes prefect so when it's time you'll be an old pro !!!!


Hugs
~T
Moderator Grief and Loss
Mommy to
Drew(13)PE 37 wks
Ky (11)PE 34 wks
~i~ Katlyne(12/9/02-04/02/03)25 wks
Casey Looking at Aug
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Re : Impatient...

Postby josiah1112 » Mon Jun 21, 2004 05:23 am

by josiah1112 (1368 Posts), Mon Jun 21, 2004 05:23 am

Jenn,

You are so blessed to have a doctor that is pro active
to you care. He seems responsible and caring! Novemeber
is right aroung the corner (of course it may not seem
like that to you!) Many blessings with your upcoming
TTC and pregnancy.

Gloria mom to Josiah 11/12/03- 12/4/03 @ 26wks pre e
Moderator- Foro Latino
Future Adoptive Mom
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Re : Impatient...

Postby julie f » Mon Jun 21, 2004 10:41 am

by julie f (7993 Posts), Mon Jun 21, 2004 10:41 am

Jenn,

Oh, I'm sorry you're being postponed again... I know how frustrating it is to be soooo ready and then to be told you need to wait, "just a while longer..." Of course it seems like an eternity... Hang in there.

Julie (27)
Zachary James, 7/22/03-7/27/03, born at 26wks - severe pe

Miracle in progress... #2 is due February 9, 2005!!!!

Southern California Coordinator
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Re : Impatient...

Postby for faith » Mon Jun 21, 2004 11:01 am

by for faith (1749 Posts), Mon Jun 21, 2004 11:01 am

So sorry for your wait, but glad to hear that your peri is so cautious. I'm sure he is doing the best for you to have a wonderful pregnancy, but the waiting is so hard. Take care!!!

Jill
mommy to:
Tyler - 4 (36 wks, PIH)
Angel baby - 1/20/03 (11 wks)
Faith Kristine - 1/5/04-1/30/04 (30 weeks due to severe PE, passed due to NEC & Sepsis(preemie complications))
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Re : Impatient...

Postby steelsword328 » Mon Jun 21, 2004 05:05 pm

by steelsword328 (86 Posts), Mon Jun 21, 2004 05:05 pm

Bummer Jenn. It sounds like you Peri is doing what's best for you, but I know it's still difficult waiting longer. When my doc gave me the go ahead, I was so excited and READY. After months of wondering if we should or not, I finally made a decision to start TTC. I was so hoping I would get pg that first month so I wouldn't have to play the waiting game. But, it wasn't in the cards for us to get pg right then. My plan is not always what the Good Lord above has planned. So now I'm in my second month of TTC and on the 2ww--waiting some more!! TTC with my first taught me patience (it took us a year and finally got pg with one round of Clomid). But somehow I lost that patience and am having to learn it again!
BTW--what is Enbrel? I tested postive for one of the anticardiolipin antibodies (falls under APS) and my doc will start me on baby ASA and heparin with my next pg--but he never mentioned any other meds.

Good luck!

Renee mom to Alyssa-26wkr-1lb 4oz.-severe PE-now a happy and healthy 2 year old!
TTC#2!!!!
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Re : Impatient...

Postby 5thtymachrm » Mon Jun 21, 2004 05:31 pm

by 5thtymachrm (909 Posts), Mon Jun 21, 2004 05:31 pm

I hate waiting too! at least things will be well planned when you start ttc. that is always good.

Elizabeth

Indigo E. 11/20/03:37wks, PIH
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Re : Impatient...

Postby bonnie » Mon Jun 21, 2004 06:24 pm

by bonnie (1096 Posts), Mon Jun 21, 2004 06:24 pm

Hi Jenn. I am on Enbrel (and have been for almost 5 years). For me, it works wonderfully. Last pregnancy, I went off it as soon as I found out that I was pregnant mostly b/c there are limited studies done during pregnancy. However, midway through my pregnancy I went back on it. My peri never wanted me to come off it, but was ok with our decision. However, He did say that he had no problems with me using it throughout the pregnancy. Before I got pregnant this time, the same peri told me NOT to even think about coming off it this time. Unfortunately for me, the enbrel does not seem to be as effective during pregnancy as it is when I am not pregnant.

It is very expensive though and we're lucky that we have good insurance. The shots aren't too bad. They've made the needle smaller so it doesn't hurt. I wish you luck with the enbrel.


Yoni's ima

Yonatan 7/10/2002 (35 weeks PE)

CHECK OUT MY WEBSITE . . .
http://rosenbloom.homeip.net/yoni

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Re : Impatient...

Postby norlisa k » Mon Jun 21, 2004 08:17 pm

by norlisa k (745 Posts), Mon Jun 21, 2004 08:17 pm

The waiting pretty much blows chunks, doesn't it? My husband and I had to wait four years for a "+," but it was so well worth it. Having the most caring and knowledgeable doctors made all of our preconception through post-partum just plain wonderful. But, they knew, and I'm sure yours knows, what they're talking about. Hoping (and knowing) that all of this waiting is worth it--as much of an annoyance that it is now, please just remember that it is all for the best (and we're here to listen). [:)] And hey, try some different practice routines until then--could be fun! [;)][:D]

Hugs,
Norlisa

Norlisa Keffer(35), Washington State Coordinator / Moderator, Mothers of Multiples / Co-Moderator, Trying to Conceive
DH, Gordon (37)
Joseph/Josephine Our Angel in Heaven (9/16/02)
Mary Frances and Samuel (a.k.a. Frankie and Sammy) 38 2/7 weeks, 5/26/03, no preeclampsia during pregnancy, mom severe high blood pressure problems post-partum
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Re : Impatient...

Postby jenndola » Mon Jun 21, 2004 10:24 pm

by jenndola (1850 Posts), Mon Jun 21, 2004 10:24 pm

Different practice routines...I'll have to tell my hubby that one. He'll laugh. Thanks, everyone, for the support. It's nice to have people who understand. Others don't even get why I'd even want to get pregnant again (I'm sure NONE of you have heard that), and if one more person asks me if I've considered adoption, I might just whack them upside the head. "Adoption? What's that? Never even crossed my mind." *GRIN*

Silly folks. It's so great to have a place where I can just vent and not be judged. You're all wonderful! *HUGS all around*

Jenn
Angel Maggie stillborn due to HELLP Syndrome at 19.5 wks
Missed miscarriage/D&C 14 weeks
Miscarriage 6 weeks
Antiphospholipid Syndrome (APS)
I'm putting my perinatologist's kids through college!
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