Severe HELLP & Pre-E at 25 weeks....try again?

Are you considering having another child after preeclampsia? Trying again after preeclampsia can be an emotional challenge. You can find support with others who share your concerns here.

Severe HELLP & Pre-E at 25 weeks....try again?

Postby rwpokluda » Wed Mar 23, 2011 01:16 am

I have a history of severe PCOS. I had two miscarriages due to them. I had to use metformin, progesterone and Clomid in order to get pregnant the 3rd time and keep the pregnancy. I developed severe HELLP & PE at 25 weeks. The HELLP had stunted my son's growth putting him 2 weeks behind on his growth and the size of a 23 weeker. He was born by emergency c-section and weighed 1 lb. 4oz. Amazingly he is fabulous and doing great. He turns three next month. Since then I have been told that due to me having him so early on, at a young age (28 when I had him) and with such a sever case of HELLP, I would deff have PE again. The prob is how bad? The doctor that delivered my son....who is fabulous by the way....has recommended a specialist here to see in Houston where we live...(we were out of town for a wedding when I had him). Anyway, this doc has been brought in to be the new In-chief at **** high risk maternal med ward. He is supposed to be one of the top specialist on preeclampsia in the U.S. (so I am told). He was brought in from Utah. He has been performing intense studies on it for years and travels speaking at seminars and training personell at hospitals on it. We are supposed to meet with him today to see what my options are. I want to badly to have another child but I am so scared. After my son was born I relapsed twice with the HELLP. My liver continued to shut down and my BP would not settle. It flucuated like crazy when ever I would stand up. I had to be admitted back to the hospital twice and then had to spend the next 6 weeks in a wheel chair till it came to a comfortable spot for my doctor. My parents and my husband don't want me to take the chance of this happening all over again. What questions would you suggest I ask in my meeting tomorrow. I have done so much research on PE and HELLP but feel I need more support in what to discuss with him. If anyone is the one to talk to....it's him. I now also have fluctuating BP since his birth where I never had issues before.
Oh by the way. I have a video on Youtube that is set to a song that I wrote with a friend in Nashville. His wife demo'd it for me but feel free to check it out and pass it along to others who you think might benefit from the words and meaing. Thanks a bunch.
http://www.youtube.com/watch?v=VIuK1gz24NA
Last edited by rwpokluda on Sun Jun 26, 2011 12:29 am, edited 1 time in total.
[color=#FF00BF]Janna
Mommy to Blake born April 26, 2008 at 25 wks 1 lb. 4 oz, 11 in., due to severe Pre-E and severe HELLP, healthy 3 year old boy now![/color]
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Re: Severe HELLP & PE at 25 weeks....try again?

Postby lilysmommymindy » Wed Mar 23, 2011 06:27 pm

Hello and welcome. I was so glad to read your son is alive and well, thank God! I think the decision to have another child after experiencing preeclampsia and HELLP Syndrome is very personal and definitely a decision you and your du have to decide together. With that being said, I think meeting with the specialist is the best starting point! And usually I tell people to research, research, research. But you've already done that too! Knowledge is power!
Okay, so here's the types of questions I asked when we decided to try again:
What are my chances of developing PE and or HELLP?
At what point in my pregnancy am I at most risk for it to occur?
How often will I be seen and will I be comonitored?
I plan on monitoring my bp at home, what numbers warrant a call or a trip to l&d?
When can I expect to take a baseline 24 hr urine and at what point will I take subsequent 24 hr.
What is your take on low dose asprin, is it right for me?
Are there tests for underlying disorders that I can take before I conceive?

Ok, that's a ton and I found out I was pregnant a few weeks before my scheduled preconception visit which kinda changed things but hopefully you'll find that helpful! Good luck to you and keep us posted on what your dr says!
Mindy
Mindy

DD#1 Lily Adrianna: 8/28/08 Born 36wks 0days due to Class 2 HELLP Syndrome and Severe Preeclampsia via csection. 4lbs 10oz 17in
Fortunate to have a healthy baby and mommy, no NICU needed.

DD#2: Tatum Nicole: 8/6/10 Born 39wks 5days Scheduled CSection Preeclampsia and HELLP FREE!
7lbs 3oz 20in
Took Baby Asprin between weeks 20-36 and was co-monitored by MFM & OBGYN
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Re: Severe HELLP & PE at 25 weeks....try again?

Postby lilysmommymindy » Wed Mar 23, 2011 06:29 pm

du =dh <-- stupid autocorrect!
Mindy

DD#1 Lily Adrianna: 8/28/08 Born 36wks 0days due to Class 2 HELLP Syndrome and Severe Preeclampsia via csection. 4lbs 10oz 17in
Fortunate to have a healthy baby and mommy, no NICU needed.

DD#2: Tatum Nicole: 8/6/10 Born 39wks 5days Scheduled CSection Preeclampsia and HELLP FREE!
7lbs 3oz 20in
Took Baby Asprin between weeks 20-36 and was co-monitored by MFM & OBGYN
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Re: Severe HELLP & PE at 25 weeks....try again?

Postby firefly1v » Tue Mar 29, 2011 09:06 pm

I would also ask if you should see a hemotologist for a DNA/Blood screening test to see if you have any blood mutations.

I had hellp and PE, full renal failure and on dialysis for 4 months, after 3 weeks in a coma. They told me no more kids. Well this was 12yrs ago. In Oct 2009 I needed surgery and the hemo did the DNA/Blood tests to approve me for surgery. He found I had Factor II and V blood mutations. In 2010, after much research, I went back to my original High Risk Dr and he said that these mutations were highly the cause of my problems with the first pregnancy. He said it is a condition that was treatable and with careful monitoring he thinks we can be safe and successful this time. I am currently 11 weeks and doing great on Lovenox 40mg a day. Was on aspirin (81mg) until conception and then on Lovenox at 8 weeks.

PS - I am 40 yrs old :shock:
Kristy

Cody 5/17/99 2lbs 4oz eclampsia - now 12 years
2nd due 10/18/11
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Re: Severe HELLP & PE at 25 weeks....try again?

Postby SeattleMom » Thu Mar 31, 2011 11:55 pm

Hi,
Wow, your video and song for Blake are amazing and I'm so happy for you that your son is healthy and growing so well.
I had HELLP with my first and she was delivered at 31 weeks. I'm 25 weeks with my second now. I think the difference this time is that they KNOW I have this history so are doing a few things "pre-emtively" to help me. I'm taking LDA and was diagnosed with HTN in my 1st trimester so I'm also on labetalol 200 twice daily. They are doing much closer monitoring of me and they said of course it might happen again, and there is certainly a higher chance of it, but with closer monitoring they're hoping we'll get further along this time.
Keep us updated as to what your specialist says.
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Re: Severe HELLP & PE at 25 weeks....try again?

Postby melissacap » Tue Apr 26, 2011 00:42 am

Hi, I have a daughter who is now 5 months old. I have severe preeclampsia post pardom. This was great because my daughter wasn't effected, but I'm lucky that we caught it. I am in the Houston area and would greatly appreciate the name of your preeclampsia specialist. My husband and I would like to know if it is a possiblity for us to try again or if he should go ahead and get a vasectomy.

Thank you
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Re: Severe HELLP & PE at 25 weeks....try again?

Postby angieb » Tue Apr 26, 2011 01:52 am

I had HELLP at 23 weeks in my first pregnancy (also severe IUGR), I'm in my second pregnancy now and am currently 36 weeks with the plan to deliver Wednesday (pending an amnio showing mature lungs).My blood pressure is still pretty fantastic (108/68 today), my feet all of a sudden are super swollen but I think that's due to going crazy getting ready for the baby and not so much pre-e. The odds were definitely against us, my doctors just wanted me to get to 28 weeks this time, they didn't really dare hope for more than that, but here we are.
Me (29) DH (30)
#1-Olivia Caetlyn-9-28-09-9-28-09, 23+2 wks, emergency classic c-section, class I HELLP, IUGR
#2- Lucas Oliver (rainbow baby)- April 2011, 36+2 wks, HELLP and pre-e free! (lovenox and LDA pregnancy)
#3-Matthew, late October 2012...mostly normal, 37 wks, (lovenox and LDA again)
My blog: http://www.butterflies-and-rainbows.blogspot.com/
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Re: Severe HELLP & PE at 25 weeks....try again?

Postby riehlism » Tue Apr 26, 2011 08:27 pm

It definitely sounds like the ladies have it covered. In terms of baby aspirin, I would add a question about taking it while ttc or after a positive. He may not be able to give you recurrence rates until your tests have come in, other than general numbers. My story was very similar to yours. My recurrence rate was 20-40%.

However, the general consensus is it will be a milder form. I'm pretty much holding onto that with this pregnancy.

Angie...I just saw the 4D scan and your son has your face! I'm not even joking. That is definitely your kid.
Jasmin: Severe PE/HELLP and delivered at 24+6 & PCOS (29) Hubby Bubby, Frank (29)
Baby Blue stopped in to say hello and goodbye on 6/3/10
Baby Lucas was born on 10/13/11, PE and HELLP-free! Thank you baby aspirin and Lovenox
http://www.ehd.org/pregnancy-calendar.php?id=18192
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Re: Severe HELLP & PE at 25 weeks....try again?

Postby rwpokluda » Sun Jun 26, 2011 00:27 am

Hi ladies, thank you for all the info. So after giving TONS of blood and xrays and seeing different specialists, all of my blood work for lupus and any type of blood clotting disease came back negative so that has been ruled out. It showed I have allergies which we already know and that I have arthritis in both my hips at age 31. Go figure. Before all the testing the specialist sat us down and did not sugar coat anything. I left there scared to death. He informed us of all of the risks I would be taking and what could happen. Since my results we met with the doctor that I would see who is a high risk doc. He is under the specialist that we originally met with. He let us know that most likely I will develop some form of Hyptertension disease at some point in my pregnancy. Before 20 weeks i will be put on rest at home. After 20 weeks if they can not control it with meds and rest I will be put in the hospital for long term observation. This worries me. Because of my history of having severe Pre-e and severe HELLP so early on in preg, we understand that I am at a higher risk of developing it again. However he did say that from all the research along with many patients he has treated, patterns show that with the LDA and folic acid, the chances of it occuring earlier on are lower. Not to say that I won't get it, bc we pretty much know that I will at some point, just in hopes that I will last longer this time. I will have growth scans ever 4 weeks with appts every 2-4 wks. I understand also that once the pre-e starts they can't stop it but can possibly pro-long it if it does not get severe, where if I develop it severely or HELLP it is immediate delivery. Another chance I have to take. However with all the patients he has treated with cases very similar to mine and some worse, on the second pregnancy, they all made it farther along and did not have a severe case like they previously had. This makes me feel better. He said that if I make it to 36 weeks I will have to be delivered at that point due to the type of c-section I had. I have about a 40-50% chance of having a "normal" pregnancy. I know I am being selfish in wanting another baby as my mother likes to tell me but I can't help but feel that if soemthing were to happen to my husband and I, my son would be left alone, and I don;t want that for him. I want him to have a sibling. My heart is torn but after this past meeting, my husband and I sat down and really talked about it and feel that with the proper treatment and close monitoring this time around could work out better for our family. At least we pray it will. So I think we are going to go for it. i first have to have my IUD taken out and then have to see a reproductive specialist since I have PCOS and don't ovulate on my own. Back to good old Clomid. The chair who I saw that is the specialist asked me to be a part of a research study he is doing on pre-e that has to do with scans of the brain and how the brain functions with pre-e patients. He is looking to see if there are any pre signs of brain wave functions that are linked to pre-e or give signs of development. So I would have a scan before preg, during and after.
I guess I am just looking for others out there to confirm that they had severe cases like me and made it through a second time with success.
[color=#FF00BF]Janna
Mommy to Blake born April 26, 2008 at 25 wks 1 lb. 4 oz, 11 in., due to severe Pre-E and severe HELLP, healthy 3 year old boy now![/color]
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