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Re: an introduction

Posted: Wed Feb 15, 2012 10:34 pm
by libby123

You have definitely been through a lot. My heart goes out to you. Do they know what kind of infection caused the Guillian-Barre syndrome?

Because of your unique case, and because your blood pressure issues and seizures occured after the Guillian-Barre syndrome, I can't help but think that this may not be preeclampsia as we know it but rather a side effect of medications or the Guillian-Barre. I know that they treat this syndrome with various blood medications and countless other medications, perhaps you experienced a side effect from one of them?? Because you didn't have preeclampsia with your first pregnancy and then didn't have it until 2 weeks postpartum with your second pregnancy during which your pressures were low, it would be very rare for you to suddenly develop preeclampsia two weeks postpartum with your second child like that. And because you did have the Guillian-Barre syndrome right before all this happened, I think it is more likely your body's reaction to it.

Of course, I am not a doctor and I don't want to diagnose you. Are you still paralyzed from the nipples down? Have the doctors given you any advice about another pregnancy and/or the unique situation you are in?

Wishing you the best. We are always here for you if you need to talk!

Re: an introduction

Posted: Thu Feb 02, 2012 10:31 pm
by heather j
Hi, Tami! Welcome! Your experience sounds quite scary; it amazes me, still, how often the medical folks don't recognize PE when it's PE (and good on you for nailing it!). Sending you lots of good wishes that the TTC process is short and your next pregnancy will be long. :)

Re: an introduction

Posted: Thu Feb 02, 2012 07:50 pm
by trish
Welcome! Wow - you have been through a LOT! I wish you all the best in trying again.This is a great place for information as well as support.

Re: an introduction

Posted: Tue Jan 31, 2012 06:45 pm
by blythe
Wow you went through a lot! As you're found out first hand, our docs tell us that post-partum PE can hit up to 6 weeks post-partum. I don't know anything about Guillian-barre, but I gather that made your experience quite a bit worse from a diagnostic and treatment standpoint. Was your paralysis transient? What does recovery look like for you - especially now that you're trying again? We have quite a few of us at the "trying again" point, I hope you'll find support here!

an introduction

Posted: Mon Jan 30, 2012 10:38 am
by CamCamsmommy
Hi I am Tami, I am 33, married. I have one son who is almost 4 - I had some slightly high BP's with him, but never diagnosed as pre-ecclamptic. I also have a daughter who will be 2 in April. I was GD with her and otherwise had a very normal pregnancy with low BPs actually. 2 weeks after her birth I was diagnosed with Guillian-Barre syndrome and was on life support for 5 days. a few hours after extubation I noticed my BPs rising(180s/100s) and my co-worker and I commented stupidly "hey if i didn't know better i'd bet its pre-ecclapmsia". A few hours later I noticed my vision was pixilated while sitting up watching TV and within moments i was blind. They thought it was from sitting up too long so they put me to bed and I started to be able to see color blobs. I remember nothing after that (10pm) until 5am. During that time I had 2 siezures. They thought it was from the extremly heavy doses of narcotics i was getting for pain control for Guillian-barre and decided to stop all meds and reverse them with narcan. That brought me out of my stupor enough that I could see the monitor and my mom. BP was 180's over 120's I figured with the blindness and stupor and BP that I was pre-ecclamptic and I tried to tell them that - it was pregnancy related and that they should start mag. sulfate before i seize (didn't know i already had), but I had expressive aphagia from a suspected mild stroke and could not get the words out effectivly and gave up. I literally thought "eh F**k it, they will figure it out" lol. I had another siezure before they finally consulted OB and did MRIs, CTs, U/S, EEGs and confirmed that it was pregnancy related. They put me on a drip to control the siezures, but I stopped breathing so they reintubated me. I remember nothing from 5am when i woke from the pain until i was re-extubated 2 days later. Apparently I was interacting and communicating with family and nurses - requesting pain meds and to be pumped ( i was pumping my breasts during my entire hospital stay every 2 hours). I was in the ICU for another week, then med surg for a week and then a month in inpatient PT mainly for the Guillian-Barre (caused me to be totally paralyed from the nipples on down and extremely reduced sensation and abilities above), but probably the stroke caused issues too. I miscarried in Jan. and will be trying again in feb. andI'm looking for people like me to chat with