MTHFR and Liden factor 5

Have you suffered from HELLP syndrome or had a pregnancy complicated by an underlying disorder? Discuss your concerns here
User avatar
kbielec
Registered User
Posts: 254
Joined: Tue Apr 21, 2009 03:08 pm

Re : MTHFR and Liden factor 5

Postby kbielec » Tue Apr 21, 2009 04:33 pm

I am currently TTC. I lost my baby last year, they delivered early due to HELLP. After some extensive blood work they found I had Factor V ( only one gene mutation...whatever that means!) Anyway - my specialist was very upbeat about being able to give me lovenox when I get pregnant...and he says things should be fine. I am still VERY nervous and looking to just chat with anyone that's been through this...

mdebay
Registered User
Posts: 2
Joined: Fri Mar 06, 2009 02:47 pm

Re : MTHFR and Liden factor 5

Postby mdebay » Fri Mar 06, 2009 02:50 pm

I am doing IVF and my doctor recommended taking baby aspirin to thin the blood. I am doing another series this month and hope that this recommendation brings us a full term healthy MOmmy and baby.
M.

quote:Originally posted by lcory

Hello--I am currently 9 weeks pg---YEAH--and had my ob appt last week where I found out that I am heterogeneous MTHFR and Liden factor 5, but ok with the anticardiolipen. Does this mean anything to anyone? Have read over the posts on this site and see that some people have to do injections of heprin. I have been on baby aspirin since my meeting with the peri at 4 weeks. My ob is supposed to call me tomorrow after she talked with the peri, just wondering what to expect and look forward to---[:D]
Thanks---Lee

11/13/03--Hannah--3 lbs--32weeks due to PE/chonic HBP--NICU for 43 days
1/06--Baby to be


mdebay
Registered User
Posts: 2
Joined: Fri Mar 06, 2009 02:47 pm

Re : MTHFR and Liden factor 5

Postby mdebay » Fri Mar 06, 2009 02:49 pm

quote:Originally posted by lcory

Hello--I am currently 9 weeks pg---YEAH--and had my ob appt last week where I found out that I am heterogeneous MTHFR and Liden factor 5, but ok with the anticardiolipen. Does this mean anything to anyone? Have read over the posts on this site and see that some people have to do injections of heprin. I have been on baby aspirin since my meeting with the peri at 4 weeks. My ob is supposed to call me tomorrow after she talked with the peri, just wondering what to expect and look forward to---[:D]
Thanks---Lee

Lee
11/02--miscarriage
11/13/03--Hannah--3 lbs--32weeks due to PE/chonic HBP--NICU for 43 days
1/06--Baby to be


bdrakesmith
Registered User
Posts: 2
Joined: Fri Jul 15, 2005 02:20 pm

Re : MTHFR and Liden factor 5

Postby bdrakesmith » Mon Jul 18, 2005 12:15 am

I have homo MTHFR, i have made a site dedicated to this disorder at www.mthfr.net , there is also a link on my site to a forum, just for women with Mthfr, I think if all us mthfr ladies get together in one place, we will be able to gather more useful information!!


tahoe4
Registered User
Posts: 251
Joined: Tue Apr 15, 2003 01:00 pm

Re : MTHFR and Liden factor 5

Postby tahoe4 » Thu Jun 30, 2005 02:17 pm

Congratulations on your pregnancy!

Factor V Leiden is a genetic blood clotting disorder where your blood clots too much. I found out I had it after my first pregnancy which ended in eclampsia. I was on lovenox/heparin injections for my second pregnancy and it was a completely healthy, successful pregnancy.

I would be surprised if they didn't have you on some kind of blood thinner for the majority of your pregnancy. I'm sure your peri will discuss that with you at your next visit.

Stephanie

Casey - DD born 12/25/02 at 6 weeks premature due to eclampsia
Bella - DD born 6/4/04 at 38 weeks. No complications from pre-eclampsia at all!

jenndola
Forum Moderator
Posts: 1851
Joined: Mon Feb 23, 2004 10:33 pm
Location: Utah
Contact:

Re : MTHFR and Liden factor 5

Postby jenndola » Tue Jun 28, 2005 02:49 pm

Have you heard from your OB yet, Lee?

Jenn
Missed miscarriage/D&C 14 weeks
Angel Maggie stillborn due to HELLP Syndrome & PIH at 19.5 wks
Miscarriage 6 weeks
Self-Proclaimed Antiphospholipid Syndrome (APS) Guru
I'm putting my perinatologist's kids through college!

Holy crap, I'm pregnant! And it's a BOY! EDD 11/3/05

akemt
Registered User
Posts: 4961
Joined: Sun Feb 09, 2003 07:35 pm

Re : MTHFR and Liden factor 5

Postby akemt » Mon Jun 27, 2005 09:55 pm

I know nothing about FVL, but I ran into a support group once and thought I'd do a search for it again...came up with an entire list of them! Here is a link to the search (hopefully it works this way!? Atleast one is dealing with pregnancy):

http://groups.yahoo.com/search?query=factor+v+leiden

Catherine, Moderator
DH Britton
Emma, March 2003- 37 wks PIH & Oligo
Lara, July 2004 -38 wks PIH & gallbladder fun

jenndola
Forum Moderator
Posts: 1851
Joined: Mon Feb 23, 2004 10:33 pm
Location: Utah
Contact:

Re : MTHFR and Liden factor 5

Postby jenndola » Mon Jun 27, 2005 08:18 pm

Lee, I wouldn't be surprised if they decided to start you on heparin, but every peri seems to treat things differently. As far as what to expect, again, it depends on the peri. Quite honestly, since you've tested positive for both Factor V Leiden and MTHFR (which, like Erin stated are both genetic clotting disorders), you're at a higher risk for a clotting problem in pregnancy, which also ups your risk of a clot. It's fortunate that you're heterozygous rather than homozygous, because that's actually the better of the two options!

At the top of our Underlying Disorders forum, there's a link that discusses the easiest ways to do heparin shots. If that's the route your OB and peri decide to take, be sure to check out that section.

Let us know what you find out tomorrow, and if you have any other questions!

Jenn
Missed miscarriage/D&C 14 weeks
Angel Maggie stillborn due to HELLP Syndrome & PIH at 19.5 wks
Miscarriage 6 weeks
Self-Proclaimed Antiphospholipid Syndrome (APS) Guru
I'm putting my perinatologist's kids through college!

Holy crap, I'm pregnant! And it's a BOY! EDD 11/3/05

deerhart
Registered User
Posts: 3282
Joined: Thu Jan 30, 2003 08:54 am

Re : MTHFR and Liden factor 5

Postby deerhart » Mon Jun 27, 2005 04:56 pm

Factor 5 is another gneetic blood clotting disorder, It may actually be more common then MTHFR and its one of those commonly tested when you do the whole blood clotting tests.

Erin

Missouri State Coordinator
Mommy to Alex (5)and Mason (2 1/2)
Law Student - final year!

melissam
Registered User
Posts: 3074
Joined: Thu Jan 13, 2005 10:48 am

Re : MTHFR and Liden factor 5

Postby melissam » Mon Jun 27, 2005 04:07 pm

Hi Lee,

Welcome and congratulations. I have a compount hetero MTHFR as well. I know that my doc will have me taking extra folate (like massive amounts) and once I get pregnant I will be on Lovenox - basically it is a low grade heprin. I am afraid I cannot help you with the Liden V disorder either as I have no experience with that one.

Good luck with everything and keep us posted as to how things are going for you.

Melissa - Moderator for Grief and Loss
Mom to:
Riley 2/9/2000 born at 37 weeks due to PE
Kelsi 12/30/2004 - 1/1/2005 (13 oz) born at 24 weeks due to Severe PE
http://www.babiesonline.com/babies/k/kelsi2005/


Return to “HELLP Syndrome Survivors and Underlying Disorders”

Who is online

Users browsing this forum: No registered users and 2 guests