Trying again - Need support please

Have you suffered from HELLP syndrome or had a pregnancy complicated by an underlying disorder? Discuss your concerns here
belle8600
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Re : Trying again - Need support please

Postby belle8600 » Sun Nov 05, 2006 10:21 am

i have decided to try again and go for an FET in Feb. i am scared but hope the protocol my peri has me on will help me get to a point where i can deliver a healthy baby. i have an angel watching over me. i am scared about losing another baby and possibly getting so sick again but i need to try

belle8600
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Re : Trying again - Need support please

Postby belle8600 » Sun Oct 29, 2006 12:11 am

thanks denise. your words were very encouraging. i just need to find my faith again. i lost it with isabella. i have to think really hard about this decision.

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Re : Trying again - Need support please

Postby denise » Sun Oct 29, 2006 08:22 am

I just wanted to share my experience with you to offer some hope. I had HELLP at 35 weeks with Ariana in 2003. She was 4lbs and spent 15 days in the hospital. I learned six months later that I was hetero MTHFR as well. We weighed our options & risks and decided to start trying when Ariana turned 1. Well, it took us over a year to get preggo with #2, but finally did last Sept. Phoenix was born this May at 37 weeks, weighing 5lb6oz. I was diagnosed with PIH and was carefully and closely followed by my OB. I did see a peri at about 18 weeks. Before getting pg, the OB recommended baby aspirin. My plan of care was spelled out so I knew what to expect. My OB and I consider Phoenix a successful pg.

It was completely scary and an emotional ride. Waiting for the symptoms to start, or get worse. I tested my protein at home daily, as well as keeping a bp log. My OB was supportive of this as long as I did not freak myself out or worry extensively. He and his wife have had issues with their pregnancies so he could understand my fears personally. We did have a scare around 32 weeks or so where my bp was having some jumps, but things leveled off for another few weeks. I was optimistic that we could make it to term this time around, but realistic that my chances of something happening were higher. Us PE gals simply have a different reality that we operate under. The normal aches and pains of pregnancy hold different meanings for us. For us HELLP ladies, the epigastric pain is something that many of us will never forget. When the heartburn or stomach pain starts in another pg for us, we automatically think of HELLP when it could simply just be heartbearn, etc.

Being educated about your body and PE symptoms is so important. Having a great relationship with your OB is too. For me, knowing what his plan of care would be was an integral part to our relationship. I never could have made it through another pg without him and the members of this forum. The support was incredible.

I know there is no crystal ball to show what will happen, but without faith most of us wouldn't have gone on to have subsequent pregnancies. One person's experience is different from another's. I hope this helped, and I wish you the best of luck with your TTC efforts. Please do keep us posted.

belle8600
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Re : Trying again - Need support please

Postby belle8600 » Sat Oct 28, 2006 04:10 pm

i too had HELLP and had to deliver Isabella early. she did not make it. she was very tiny too. we had a hard time conceiving and did IVF too. we are scheduled for a FET in January but I just dont know what to do. i am so scared too because i dont want to end up in ICU again. drs say they will put me on baby aspirin and heparin plus folic acid. i feel more confident with them but am still terrified.

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heather j
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Re : Trying again - Need support please

Postby heather j » Wed Oct 18, 2006 05:21 pm

Hi and welcome! I, too, had HELLP with my first pregnancy (my son is now almost 2 1/2!). I also had a very extended hospital stay (about 14 days after being readmitted). My HELLP was postpartum after I delivered my son four weeks early due to severe PE and an abruption. Like Danielle, I'm also pregnant with #2 - I'm 15 weeks. I don't have the same disorder as you, but I do have one (PAI 4G4G), and I'm taking lovenox, baby aspirin, and calcium (due to the lovenox). I'm also seeing my peri exclusively every two weeks until 30 weeks then it's every week. I'm also up for once-a-month u/s. Do I feel confident in my doctors this time? Yes. Do I think the additional treatments will help given my dx of a clotting disorder? Yes. Am I terrified of tempting fate? Absolutely, but it came down to wanting another child more than wanting to call it quits for whatever reasons. A PE past so complicates what should be a happy time, but that's the way it is. I wish that it wasn't, but I'm glad there are specialists out there with the knowledge and experience to treat those of us who are "special!"

There are several women here who've been dx with PCOS, too. You may want to start a thread under "Ask the Experienced" with that as the title to see what turns up.

I hope that you have fast success with IVF. Try to do as Joy suggested and read some of the good stories. There are some scary ones out there, but sometimes it's more than we can handle when what we need is comfort. Welcome again and best wishes to you!

sonja
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Re : Trying again - Need support please

Postby sonja » Wed Oct 18, 2006 04:41 pm

You are in such good company here. We all have had some degree of terror going into a pregnancy after getting pre-e. My biggest advice to you is to have a Peri that you really trust. Good luck to you and make sure to read all of the success stories here as well, there are lots of them.

Joy

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Re : Trying again - Need support please

Postby jdsmom » Wed Oct 18, 2006 12:03 am

I had HELLP and PE with my first resulting in delivery at 31 weeks. DS is now 3, and I'm 12 weeks along with #2. I too am diagnosed with heterozygous MTHFR, C677T. I think it's great that you've got a team of doctors you trust. Now that you have clear diagnosis of something that very likely could've caused the previous problems - the doctors have a better idea of what they can watch. I'm on lovenox - a blood thinner that could help prevent complications, along with baby aspirin and folic acid. Also, I'll be having monthly ultrasounds andn maternal fetal medicine doctor visits to keep an eye on everything. My bout with HELLPS was very short by comparison to yours, but it's all still scarey. Good luck with everything as you face IVF, also know these boards are a great place to get support as we've all been there ;)

stjamesb
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Trying again - Need support please

Postby stjamesb » Wed Oct 18, 2006 09:58 am

I had HELLP severely during my first pregnancy. I was in intensive care of 10 days and totally hopstialized for 15 days. Forturnately, HELLP came at 40 weeks and my son was born healthy. We consulted a Maternal Fetal Med specialist and he told us the odd of having hellp/preclamsia again and he put me through a battery of tests. Other than heterogyzous MTHFR, I don't seem to have any other underlying problems. My son is now 3 and we are looking to try again. This time I had problems conceiving, the fertility specialist diagnosed me with PCOS with insulin resistance. We will go our first IVF cycle soon.
Now that our ivf cycle draws near, I am scared of having HELLP again. I have a wonderful husband and a beautiful son and I just so afraid to lose them. I avoid this board because everytime I visited here, I was in tears. I am so scared. But then the thought of having another child is so strong and I am not sure I am ready to come to term with the end of my reproductive life (I am now 39 and haven't had much time left -- 2007 will be our last year to try).
I am not sure if anyone can help me with this funk but it feels better to let it out. I have great specialists and I am so afraid.
All 3 of my sisters gave births recently and they are all ok which relieved me some what.


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