Subsequent Pregnancy after HELLP

Have you suffered from HELLP syndrome or had a pregnancy complicated by an underlying disorder? Discuss your concerns here
dohertyab
Registered User
Posts: 236
Joined: Fri Aug 20, 2004 11:08 am

Re : Subsequent Pregnancy after HELLP

Postby dohertyab » Thu May 13, 2010 10:24 am

I had HELLP with the twins, no underlying disorders and didn't get in to see an OBGYN until I was around 10 weeks. The reason they did the US was that I was an older mom (37) and to rule out twins again, nothing to do with my previous HELLP. I didn't get into the high risk dr until after the US and it was closer to 14 weeks. They did put me on baby aspirin dispite having no underlying conditions, but I can't remember what the logic was. The drs all thought that my HELLP was a fluke due to twins, so they weren't particularly worried. They did watch me closely later in the pregnancy and I did have lots of ultrasounds later in the pregancy to look at the condition of my placenta but nothing early.
Good luck.

milesymommy
Registered User
Posts: 336
Joined: Tue Apr 14, 2009 07:30 pm

Re : Subsequent Pregnancy after HELLP

Postby milesymommy » Thu May 13, 2010 09:47 am

I had PE/HELLP with DS1, and think I was about 10 weeks along for my first appt with DS2. PE and HELLP don't typically occur until much later - over 20 weeks - so there is no pressing need to be seen early on just because of a history of PE/HELLP. Of course, you've had several mc, which I would want to be seen early for that.
With DS1, my midwife acted like PE was common and no big deal... but at 36 weeks my BP was so high I was sent to L&D, turned out I had developed HELLP... With DS2, I was much more proactive, and was seen early on in a high risk clinic at the hospital. It was very reassuring to be seen often, by specialists. I only developed PIH with DS2, but having the frequent appointments helped keep my fear in check.
Good luck!

jules2
Registered User
Posts: 514
Joined: Sun Jul 19, 2009 06:26 am

Re : Subsequent Pregnancy after HELLP

Postby jules2 » Thu May 13, 2010 04:12 am

I have my first appointment with the specialists next week when I will be 7+6. I think this is ok and doesn't need to be earlier.

Some specialists don't like to do very early US because they can be inconclusive; I had an inconclusive one at 7 weeks which turned out to be a missed miscarriage at 8 weeks. Having had that experience, I understand and am ok with waiting till 8 weeks this time. They may be considering your history of mc too here.

I am taking aspirin despite having no underlying disorders. As I understand it the benefits are small (around 10% risk reduction), and have only been found for women with very early onset very severe PE. I definitely fall in that category. As your baby was "only" 6 weeks early, it may not be clear whether or not you fall into the "early onset" category; perhaps why the doctors disagree. If they disagree for you, I think I would go with the MFM's advice.

Its my experience too that whilst early onset severe PE & HELLP was taken very seriously; no-one (apart from us) really gives a stuff about a couple of miscarriages. I guess that's just too common, sorry. You do need doctors you can trust and rely on though, maybe you should talk to them about your concerns when you see them at 9 weeks.

Hope this helps a bit

jenmatt1
Registered User
Posts: 566
Joined: Thu Dec 24, 2009 04:10 pm
Location: Florida

Subsequent Pregnancy after HELLP

Postby jenmatt1 » Tue May 11, 2010 05:24 pm

During the pregnancy with my daughter 2 years ago I developed HELLP and she was born 6 weeks premature. I had miscarriage before pregnancy with daughter and 2 more since then. One in 1st trimester and one in 2nd.

I am concerned because I called my doctor this week to schedule appointments- I am only 5 weeks today. But they do not want to see me until June 8th for appointment and sonogram which makes me extremely nervous - I will be 9 weeks then.

I have been tested for underlying disorders but nothing has been found.

I lived in a different state when I had my daughter and I had wonderful doctors there who caught the HELLP even though I just felt odd. They had me come in right away and realized my BP was extremely high. Here in the State I live in now, I have had 2 miscarriages and have been to a few different doctors, but no one who seems to be listening to my concerns.

Since having HELLP, I really learned to take charge of my health. The only Peris around are local clinics at the university and they only co-manage with the OBs. I have not found them to be very helpful.

My questions to ladies out there - (1) When did you have first prenatal appointment in subsequent pregnancy after HELLP?
(2) one of my doctors recommended possibly baby aspirin but when I asked another doctor in same practice, she said no, there is no proven correlation when there are no underlying issues (but I am not sure the baby aspirin would hurt me, so my opinion is why not try after everything we have been through)- Has anyone used only baby aspirin with any success?

I want to be an advocate for myself when I call up doctors office again, but want to see what others are doing out there first.


Return to “HELLP Syndrome Survivors and Underlying Disorders”

Who is online

Users browsing this forum: No registered users and 5 guests