by angieb (1192 Posts), Fri Mar 04, 2011 00:11 am
I'm so very sorry for your loss.
I also had atypical HELLP, there aren't many of us out there that I've ran into, but I never had high blood pressure and did not spill protein. (Yet they still call my first pregnancy "severe pre-eclampsia & HELLP" which I don't really understand...) I had the pain for 4 weeks or so and saw my OB twice in those two weeks. When it got so bad I went to the hospital, my initial labs came back with my liver enzymes only slightly elevated, luckily we had other signs that something was off (daughter had already been diagnosed IUGR by that point and my AFP levels from the quad screen had come back elevated- that's the reason they figured out her IUGR actually- so if I hadn't done that quad screen, they probably wouldn't have taken me as seriously). Anyway, they did the bloodwork again 6 hours later and in that time my liver enzymes had more than doubled and my platelets had dropped by 100,000...it turns out we were pretty lucky that they caught it given the timeline although our daughter did not survive due to extreme prematurity.
I highly recommend infant loss support groups, there is also a great online baby loss mom's community, I found that learning everything that I can find about HELLP and pre-e helpful so I had more understanding of what happened (and meeting others with similar circumstances), and just taking it one day at a time...are all things that have helped me move forward. And also coming to the realization that to some extent there will be no moving forward, that we are forever changed and are not the same people we were 2 years ago before we'd watched our daughter die.
You and your family are in my thoughts and prayers as you go through this horrible time.
Me (29) DH (30)
#1-Olivia Caetlyn-9-28-09-9-28-09, 23+2 wks, emergency classic c-section, class I HELLP, IUGR
#2- Lucas Oliver (rainbow baby)- April 2011, 36+2 wks, HELLP and pre-e free! (lovenox and LDA pregnancy)
#3-Matthew, late October 2012...mostly normal, 37 wks, (lovenox and LDA again)
My blog: http://www.butterflies-and-rainbows.blogspot.com/