Atypical HELLP Syndrome

Have you suffered from HELLP syndrome or had a pregnancy complicated by an underlying disorder? Discuss your concerns here
User avatar
lilysmommymindy
Registered User
Posts: 258
Joined: Wed May 06, 2009 10:18 am

Re: Atypical HELLP Syndrome

Postby lilysmommymindy » Sat Feb 26, 2011 08:35 pm

Omgosh I am so sorry for your loss, I can't even begin to imagine the emotional pain you're dealing with. It sounds like you've put up quite the fight to be alive today. I hate that you have to be welcomed to these forums but im glad you found them, hopefully you will.find the answers you are looking for here. Also, there is a grief and loss board that may be helpful as a support. Again, I am so sorry for your loss.
Take care,
Mindy
Mindy

DD#1 Lily Adrianna: 8/28/08 Born 36wks 0days due to Class 2 HELLP Syndrome and Severe Preeclampsia via csection. 4lbs 10oz 17in
Fortunate to have a healthy baby and mommy, no NICU needed.

DD#2: Tatum Nicole: 8/6/10 Born 39wks 5days Scheduled CSection Preeclampsia and HELLP FREE!
7lbs 3oz 20in
Took Baby Asprin between weeks 20-36 and was co-monitored by MFM & OBGYN

Mouschin
Registered User
Posts: 6
Joined: Sat Feb 26, 2011 8:51 am

Atypical HELLP Syndrome

Postby Mouschin » Sat Feb 26, 2011 12:47 am

Hello,

My name is Melissa and I am new here. I found this site after searching for support after my experience with HELLP and the death of our daughter Ava. This is our story.

My husband and I had an uneventful pregnancy. No high BP, no medical issues whatsoever. I was 27 years old, in great shape and had no risk factors whatsoever. I was 35 weeks pregnant and on February 7th 2011 started to experience some pain between my shoulder blades. I contacted my midwife, whom at this time we believed it was muscular problems (I had a busy weekend days before) as I had blood work taken 3 days before that was normal. The pain intensified and we went to our local hospital. The OB department said the baby was fine (we now know they were measuring my heartbeat and not Ava's) and they transferred me to the emergency department for care. In the emergency department, in excruciating pain, they discovered my platelets were dangerously low. At that point I was diagnosed with A typical HELLP Syndrome, as I had no high BP, just the pain and low platelets I was then transferred to a different hospital specializing in obstetrics. Upon arriving at the hospital they did an ultrasound to make sure Ava could be induced to safety get her out. It was then we were told they could not find a heartbeat.

The decision was made to continue with the induction, and the pain in my back continued to intensify. I was induced to 5 cm when my OB got a gut feeling after seeing bloodwork showing my liver enzymes were 3000, my platelets were 24 000. He ordered a CT scan. It was then they discovered a hematoma on my liver, 70% of my liver was covered in it, as well a rupture of 6 cm. I was bleeding out and they transferred me once more to a hospital where the leading liver specialist was waiting. Ava was delivered on February 8th 2011, my husband and families loving arms waiting for her.

I awoke two days and three surgeries later. My baby was gone, my life hanging in the balance. I am now home resting, attempting to find a new normal from the life we had built up until February 7th. We are working with a grief counsellor, and have more follow up with the liver specialist in days to come. Its incredibly difficult to grieve for your loss while dealing with the physical recovery on top of it all.

HELLP syndrome blindsided my husband and I, took our daughter from us and almost took my life. I am grateful to be alive but as of right now, do not know how to move forward.


Return to “HELLP Syndrome Survivors and Underlying Disorders”

Who is online

Users browsing this forum: No registered users and 2 guests