HELLP at 22 weeks- lost baby

Have you suffered from HELLP syndrome or had a pregnancy complicated by an underlying disorder? Discuss your concerns here

Re: HELLP at 22 weeks- lost baby

Postby Nadenet1229 » Fri Nov 04, 2011 04:00 pm

I was very torn at first. Even though I knew I did nothing wrong, I felt that there was maybe something with my body that might have caused this to happen. I had tons of blood work done and I am completely normal in all aspects. I did not do blood work on my son, as I just wanted him to be peaceful, but he was born with a cleft palate and clenched fist which are two major signs of a chromosone defect. My doctor is 99.9% sure that because of the defect this all happened. And the choromosone abnormality that he is thinking it may have been, even if I carried to term it was likely that baby would not have made it. Its called... Trisonmy 13 or 16 or something.

After researching and talking to the wonderful women on this site, I feel confident in trying again. I know that no matter what there is always a risk, but I would risk losing my life for my child if he were here today, so I will risk my life to bring my child into this world. My husband was also scared of what could happen, but we decided its worth it.

I feel better as well because I have already been informed that when I get pregnant again they will monitor EVERYTHING constantly to catch any early signs. The Maternal Fetal Specialist that I will be seeing actually worked under one of the doctors on the board for this site and he let me go through all my research with him because he knew it was my way of coping. My husband and I plan to try again soon. We feel that research that suggest getting pregnant sooner rather than later after preeclampsia deserves some merit. November 11th 2011 will be 6 months since we lost Joseph. The doctor advised us to wait atleast 6 months for my body to get normal, then we are in the clear. We don't know exactly when we will try but it will be soon. We are just waiting for when it feels right again.

You will find your balance one day. Its just to soon right now. I didn't even want to think of future children at the time I lost Joseph. Even now there are days that I just cry because I was supposed to have my son right now, in my arms. You have to let those moment pass. Don't fight them. Cry whenever you need. I had so many things happen in these last 6 months that I cried all the time because it was just so much happening to my husband and I at one time. I held my husband as he cried one night saying "its too much. I can't do this." But I told him that no matter what, we will be okay. And we are. You will be okay too. Give yourself time. I'm still giving myself time.
Mother to Joseph Lovelace Touchet Jr born on 5/11/11 at 22 weeks due to Preeclampsia and HELLP. Born straight into God's arms. Love you my angel.
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Re: HELLP at 22 weeks- lost baby

Postby mychaelelaine » Fri Sep 14, 2012 09:27 pm

I'm so sorry! You are in my thoughts and prayers. I pray you and your family find some sense of comfort eventually. I almost have my rainbow baby. :) We lost our baby at 23 weeks. She was born sleeping. We progressed to hellp like so many here. I was pregnant 4 months later. I was just diagnosed preeclampsia Wednesday but I'm feeling good despite since I'm 34 weeks. There are many promising stories I read after coming here that made me so sad yet provided me with comfort knowing that I could have my rainbow baby. Again, I'm so sorry. I wouldn't wish this on anyone.
10/17/2011 ~ Mychael Elaine was born sleeping. We miss and will always love you!
9/16/2012 ~ Michael Leon was born, God is so good! Severe pre-e again, induced at 34 weeks, c-section due to baby's heart decelerating with each contraction. 1 week in NICU. I'm done! :)
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