Welcome to the forums - I'm glad you've found us.
These syndromes are terribly unfair, as you've found out. Women who just want a baby of their own, or who just want to help women who can't have a baby of their own, end up blindsided by a runaway immune response and find themselves in multiple organ failure in ICU. So that's always rough, and here you'll find other women who get that viscerally. While companions don't make it more fair, I like to think it's good news of a sort. We've got a club, and you're in it.
Not only is this a difficult condition to explain, but docs don't usually think they have *time* to explain it. They're too worried that their patient/s are going to die right now if they don't get to work (and with us that often means disappearing to dive neck-deep into research literature looking for the current information on therapies.) So we find ourselves trusting the authorities to know what's safest for us on the basis of our past experience but little framework about this new problem. Families find us after the trainwreck when they're trying to figure out what the heck just happened.
Some women do unmask their genetic hypertension trait with one of these pregnancies, and the only way to find out is to wait and see what happens to you. To some extent, every pregnancy remodels our bodies, and these pregnancies more than most. The competing interests of mother and fetus are not aligned even in a gestation where the genetics are 50% familiar. Here's a recent Slate article
on the oddness that is pregnancy...
Please feel free to ask for links to any information and to ask for any support you need, and welcome again!