Were you aware of HELLP Syndrome?

Have you suffered from HELLP syndrome or had a pregnancy complicated by an underlying disorder? Discuss your concerns here
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Were you aware of HELLP Syndrome?

Postby myfreckleface » Tue Jun 03, 2003 07:59 pm

When I read the posts regarding HELLP, I often get the sense that people, doctors included, have never heard of HELLP unless they've dealt with it personally.

Were you aware of HELLP Syndrome before being diagnosed with it?

Personally, I had never heard of HELLP and even after delivering at 30 weeks due to it, it took until I was released from the hospital a week later and I was able to "surf the Net" for info on it, that I truly understood what the heck the doctors and nurses were talking about.

Luckily for me, my family doctor (who was looking after my up-til-then uneventful pregnancy until the day I delivered) was on the ball and sent me to the hospital straight from my 30 week check-up. I couldn't figure out why she kept asking me if I had heartburn or had any stomach pain, because I didn't at the time. When I arrived at the hospital, every nurse or doctor who saw me during my initial observation period kept asking me about any heartburn or stomach pain - to the point I wanted to scream "NO I'VE NEVER HEARTBURN IN MY LIFE!!!!!!!" Until the pain started. Yikes! They were anticipating this for hours and even though they explained it to me time and time again, I still couldn't quite grasp what the heck they were talking about until I was able to sit down and read it all for myself.

I think it's tragic that pregnant woman aren't told about the symptoms. I keep thinking, what if I hadn't had a doctor's appointment that day? Would I have chalked my excruciating liver pain to heartburn? Could I have died? Could my daughter have died?

What was your knowledge of HELLP prior to experiencing it firsthand? Do you feel your doctor or doctors knew/know enough about it? Please share your experience because the lack of knowledge out there astounds me, considering how devastating HELLP is.

(30 weeks due to HELLP)

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