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Have you reached out to the HELLP Syndrome Society

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Have you reached out to the HELLP Syndrome Society

Postby kdreher » Thu Jan 26, 2006 09:31 pm

by kdreher (2482 Posts), Thu Jan 26, 2006 09:31 pm

As a follow up to the conference call, I wanted to post the information for the HELLP Syndrome Society. Last year when planning the Phila,PA walk I contacted the HELLP Syndrome Society state coordinator and emailed him/her regarding the walk. We did get a few walkers.

If you go to http://www.hellpsyndrome.org/ and then click on "about us" and then scroll down to the reps list you will get the reps name. I sent the walk info, location, my info, and asked them if they would send out information to members in their state.
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Re : Have you reached out to the HELLP Syndrome Society

Postby grace04 » Thu Jan 26, 2006 09:33 pm

by grace04 (497 Posts), Thu Jan 26, 2006 09:33 pm

You're quick!! Thanks Kris!
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Re : Have you reached out to the HELLP Syndrome Society

Postby kdreher » Fri Jan 27, 2006 10:38 am

by kdreher (2482 Posts), Fri Jan 27, 2006 10:38 am

Once we have all dates confirmed, locations and coordinators updated I will send Jennifer another email. She absolutely will advertise our walk again on their website.
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Re : Have you reached out to the HELLP Syndrome Society

Postby miracle3 » Fri Jan 27, 2006 11:11 am

by miracle3 (783 Posts), Fri Jan 27, 2006 11:11 am

I contacted them today!! Hopefully I get a great response!!
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Re : Have you reached out to the HELLP Syndrome Society

Postby kdreher » Fri Jan 27, 2006 11:41 am

by kdreher (2482 Posts), Fri Jan 27, 2006 11:41 am

Danielle,
Did you email the state rep? If for some reason you don't get a response then I would email Jennifer and/or Steve at the main HELLP email. She replied to me right away. They are both awesome individuals.
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Re : Have you reached out to the HELLP Syndrome Society

Postby timelessbeauty » Fri Jan 27, 2006 12:19 am

by timelessbeauty (1712 Posts), Fri Jan 27, 2006 12:19 am

I contacted them already and have received a response from one of the founders. She emailed me and I forwarded a question on to you Jaime. :-) HELLP will help us! :-)
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Re : Have you reached out to the HELLP Syndrome Society

Postby grace04 » Tue Jan 31, 2006 00:09 am

by grace04 (497 Posts), Tue Jan 31, 2006 00:09 am

Hi all - Jennifer has asked that she send a large batch to one location... i.e. she wants to send me a batch and have us (the PF office) be responsible for distributing among the site coordinators rather than asking her to send to multiple locations. I will let you know when I get them!
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