I'm new here, but I'd like to offer advice too. My daughter, Audrey,has been home from the NICU for one month. She was born at 29 weeks and it was a tough time for us, even though she was pretty healthy.
My advice is to not bottle up your emotions. If you feel like crying, do it. If you don't let those tears out, you're likely to lash out in anger at someone you love. When you feel angry, just scream. I had to go to the garage more than once while my daughter was in the hospital just to let it out.
But most importantly, when you get good, positive news on your baby, focus on it. Tell everyone you know. There's just something about speaking the good things. Don't dwell so much on the negative reports.
I totally agree with others to do something special with your spouse. We got so behind on bills while Audrey was in the hospital, but we did splurge and have a very nice dinner date once in a while.
Keep everything you can from the NICU. I'm looking forward to the day I can show Audrey all the teeny-tiny items she used (pacifer, onesies, diapers, etc).
Definately keep a journal. I wrote every day even if it wasn't something major. I also kept a calender, and still do, showing major advances and her daily weight.
We love and adore our special preemie!!
Husband: John (24)
Audrey Grace born 4/10/04 at 29 weeks due to preeclampsia
In hospital for only 7 weeks
Had RDS, unclosed PDA after 3 weeks age, heart murmur, cyst on brain (but it's gone, thank God). Never had surgery.