Hints for a New Preemie Parent....

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
iansmom
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Joined: Tue Sep 02, 2003 10:07 am

Re : Hints for a New Preemie Parent....

Postby iansmom » Thu Jun 03, 2004 09:36 am

I just thought of a couple of tips while reading another thread. First, babies born under 1000 grams are eligible for social security benefits. Jump on that immediately. It is not much at all, but is not retroactive, either. As far as I remember, it is a flat $30 a month while hospitalized, then it is income dependent. Next, if your baby is on expensive supplements, (human milk fortifier or formula, etc.) ask your pediatrician to ask the company rep for freebies. We got several $100 boxes of HMF. WIC will pay for formula and HMF as well.

Ian 12/26/01 - 26 weeks P/E & HELLP
#2 EDD July 15, 2004

angelical
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Re : Hints for a New Preemie Parent....

Postby angelical » Thu May 27, 2004 07:57 pm

I just reviewed our forum, looking for some specific threads that new parents might find useful. Here's some that really seemed useful. (Feel free to add links to others!)

Specific Questions Preemie Parents have:

  • Weight charts and adjusting for prematurity: http://www.preeclampsia.org/forum/viewtopic.php?t=286

  • RSV and Synagis: http://www.preeclampsia.org/forum/viewtopic.php?t=1020

  • Breastfeeding/Pumping: http://www.preeclampsia.org/forum/viewtopic.php?t=1293

  • Early Intervention services: http://www.preeclampsia.org/forum/viewtopic.php?t=2327 & http://www.preeclampsia.org/forum/viewtopic.php?t=3630



There are also a couple threads that have cute lists, stories, etc. that preemie parents are all relate to. You can find them here:

  • You know you're the parent of a preemie when... http://www.preeclampsia.org/forum/viewtopic.php?t=2550

  • All Things are Relative: http://www.preeclampsia.org/forum/viewtopic.php?t=1774

  • Welcome to Holland: http://www.preeclampsia.org/forum/viewtopic.php?t=2570


Good luck to all of you new parents. I hope that we veterans can provide you with the information and support that you need. This is a scary, wonderful, stressful, and blessed time of your lives. I'm happy to be able to share it with you.

Sharel



------------------------
Sharel O'Connell
Local coordinator for Pittsburgh area
'Parents of Preemies' co-moderator
Survivor of Preeclampsia, HELLP Syndome, & preemie parenting
Future adoptive mom

Aaron (28 weeker, 5/2/02) -- my tiny guy is TWO!
Kevin - DH

amanda snow
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Re : Hints for a New Preemie Parent....

Postby amanda snow » Sun Feb 08, 2004 06:16 pm

I felt a sort of detatchment from my twins, Maddie and Jacob...To help me get through this I discovered scrapbooking. You can write a journal as well. It helped me so much and made me realise what they went through. It also made me realise that every moment is precious. Believe it or not you actually look back at those first few months eventually with fondness. You should feel so proud of what you and your babies or baby achieve!

angelical
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Joined: Mon Feb 24, 2003 06:39 am

Re : Hints for a New Preemie Parent....

Postby angelical » Tue Jan 06, 2004 07:47 am

I just wanted to bump this back up to the top.

Preemie veterans.... be sure to post any ideas that you have for new parents!

Sharel

------------------------
Sharel & Kevin
Aaron - 28 weeker
Born 5/2/02 due to preeclampsia & HELLP

Our miracle boy is doing great!!

hellpful_me
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Re : Hints for a New Preemie Parent....

Postby hellpful_me » Mon Jun 30, 2003 09:00 pm

Buy a front carrier (snugli) or a sling for when the baby comes home. This not only helps with bonding and keeping your hands free, but it's also easier to ward off probing hands. You will be suprised at how many strangers will try to swoop in on your preemie in the time it takes to run in and out of a store for diapers.

Jen
Matthew-stillborn @30wks
Ben-Hellp survivor

carter62900
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Re : Hints for a New Preemie Parent....

Postby carter62900 » Sat Jun 28, 2003 01:44 am

Hello, something that worked well for me and my husband was to go to the NICU at different times. That way we each had special time with the baby and almost all day one of us were there. We used to race to the sinks to wash our hands when we went together cause we both wanted to hold him first or get to change his diaper. I think having one on one time is improtant for both parents when they are in the NICU.

Deanna

maddiekinsmom
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Re : Hints for a New Preemie Parent....

Postby maddiekinsmom » Sun Jun 15, 2003 11:59 am

Hi again - I hit "send' too soon.

ANyway, find any and all support networks you can so you can talk aboout your experience. One great site is the Preemie-L web site. THey have a wonderul feature where they match you up with another preemie parent you has a child around the same gestational age. It's one on one communication, costs nothing and is a great way to get pretty immediate support. (You can find the site at http://www.preemie-l.org/welcome.html)

THe other thing is to take lost of pictures. You think you'll never ever forget anything, but it does fade with time. It's so great to be able to look back at how far your little one has come. We even left a disposable camera at our daughters bed-side and the nurses would take photos when she did something "cute", or was just sleeping like an angel. That's how we got the first picture of Maddie with nothing on her face -no c-pap, no ng tube, nothing.

Rachel, mom to Maddie (29 weeker due to severe pre-e, IUGR)

maddiekinsmom
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Re : Hints for a New Preemie Parent....

Postby maddiekinsmom » Sun Jun 15, 2003 11:55 am

Talk, talk, and talk some more about your experience.

Rachel, mom to Maddie (29 weeker due to severe pre-e, IUGR)

momathelete
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Re : Hints for a New Preemie Parent....

Postby momathelete » Sat Jun 14, 2003 10:31 am

Stephanie,

Ohhh, I forgot to bring up leaving without the baby. Yes, that was just the hardest thing to do in the world. I couldn't believe how rough that was....ok, I am crying now. Must be the hormones!! [;)]



Michelle
mom to Cole Thomas -former 28.5 weeker (3-5-99, 3 lbs)due to HELLP and Madelaine Grace "Lainey" -former 29.5 (10-11-01, 3lbs 4oz)weeker due to Pre-E and now expecting third, on bedrest, have high blood pressure and I am scheduled to have a c-section on July 1st- about 37 weeks! Due to perinatologist's suggestion, I am on C,E,B12,B6,Omega-3, iron, prenatal, calcium, baby aspirin and bp meds- Labatalol -300mg 2x a day

aimeejane
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Re : Hints for a New Preemie Parent....

Postby aimeejane » Sat Jun 14, 2003 08:43 am

Caroline - Gotcha! [;)] We were actually saying the same thing. The testing you're talking about is the same program Nicky went through.

I loooove this thread. It's bringing back so many memories for me.

Aimee - 28
Dh - 29
Ds Nicky - 3/24/00 (28 wks - eclampsia)
EDD #2 - 8/3/03 (It's a BOY!)


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