Need info for Premmie on Vent

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
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Re : Need info for Premmie on Vent

Postby meg » Tue Apr 06, 2004 08:50 am

{HUGS} I know the stress has to be so hard on you all! The NICU really is a series of good days and bad and lots of bumps in the road. You have to cherish the good and andjust hold on to faith and hope on the bad. My sisters baby was delivered at 27 weeks for PE and weighed 1 lb 8 ounces. He will be a month old in two days. he had been off the vent since day 10 but I just talked to my sister and he had to get put back on the CPAP. They think he might have another little infections and his red blood cell count is low so he got yet another blood transfusion. He is finally over the 2 pound mark but hovering right there. Its such a rollar coster but its a miracle that babies that small can make it at all. I will pray for your little Parker!!

Will 2-6-00 ( PE at 35 weeks)
Elizabeth 7-3-01 ( NO PE)
#3 EDD 10-25-04
Proud Aunt to Ethan born 27.5 weeks weighing 1lb 8 ounces! Our little fighter!
Already off the ventilator and opened his eyes!

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Re : Need info for Premmie on Vent

Postby annes » Tue Apr 06, 2004 07:36 am

I just wanted to jump in, as I have a little Parker of my own, who spent a month in the NICU after being born at 33 wks and 3lbs. The NICU is a scary place, but it will also become a special place if you and your wife let it. I spent 8+ hours a day there with my little one and I actually have some great memories and friends I made there. Don't be afraid to ask questions, insist on speaking to the Dr.'s, make friends with the nurses, reach out to the other parents, and make sure you and your wife are resting enough, eating well, and taking breaks when you need them. Good Luck with your Parker, it's a good strong name!
P.S. My little Parker is a not so little 9 months old, and weighs in around 18 lbs., and kept me up from 4am until my alarm went off at 5:15 AM, when he promptly fell back to sleep! Enjoy your baby!

DH Richard
Parker 7/6/03(severe pe)33wks

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Re : Need info for Premmie on Vent

Postby angelical » Tue Apr 06, 2004 05:34 am

Just a thought... if you look through this 'Parents of Preemies' section, you'll find a couple of threads we started to give some 'hints' to new preemie parents.

Good luck. I wish you all the best. Keep posting on the baby's progress. We'll be here to support you all we can, and one day soon you & your wife can be veterans, too, giving advice!

Take care!

Sharel O'Connell
Local coordinator for Pittsburgh area
'Parents of Preemies' co-moderator
Survivor of Preeclampsia, HELLP Syndome, & preemie parenting
Future adoptive mom

Aaron (28 weeker, 5/2/02)
Kevin - DH

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Re : Need info for Premmie on Vent

Postby catherine » Mon Apr 05, 2004 08:46 pm

I just wanted to wish you and your wife many congratulations on Parker's arrival. May these stressful days be soon only a memory and a few polaroids in his scrapbook.

Grow little Parker....[:X]

Mom to Finn, Lucy (preeclampsia and HELLP) and Chloe.
Moderator HELLP Syndrome Survivors

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Re : Need info for Premmie on Vent

Postby worriedhubby20 » Mon Apr 05, 2004 08:17 pm

My thanks go out to all of you. I am here at work, supposed to be running our plant, but talking to my wife on the phone reading your postings to her. After breaking down several times, my wife asked what was wrong. I didn't want to let on that I was near tears, but told her that these words that you bring to us mean so much. I just know, I could tell by her voice, that all that I read to her cheered her up. I can't say enough about how much just hearing from all of you means. I know that we will come through this! Parker will get bigger and stronger, and will get to come home to his new room. I will keep you posted on his PROGRESS!!!

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Re : Need info for Premmie on Vent

Postby hannahsmom » Mon Apr 05, 2004 06:52 pm

Dear worried hubby -

My daughter was born at 26 and a half weeks and was breathing on her own at birth, then caught an infection and had to be put on the vent. She was later taken off after the infection went away, but about three weeks later she caught another infection and had to be put on a vent again. It was a nearly four month roller coaster for us. She weighed one pound, one ounce and fell below a pound for a while. People all over the world were praying for her and I think that's what pulled her through. By the way, where in Alabama do you live? My daughter was born at USA Medical Center in Mobile. We used to live in Mobile but had moved to Mississippi when I became pregnant. But when I developed the pre-e I was transferred by ambulance to Mobile for an emergency c-section. Best of luck to you. Our prayers are with you and your family and especially little Parker![:)]

Mommy to Hannah Rose
26 weeker born 8/24/01
severe pre-e

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Re : Need info for Premmie on Vent

Postby sandy » Mon Apr 05, 2004 06:51 pm

You and your family are in my prayers!

~Sandy/DD born via emergency C at 35 wks/1 day June '03 due to Severe PE/class III HELLP/chronic HBP/asthma

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Re : Need info for Premmie on Vent

Postby angelkat » Mon Apr 05, 2004 06:38 pm

Even as I a Nurse, I had a hard time dealing with my daughter in the NICU. At times, I would find myself trying to deal with everyday life and then on the other hand know to much. The NICU is a roller coaster a good day here a bad day there. You need to celebrate the good days and let the bad days roll off your back. Yes, it's hard but as you will see you little baby is a fighter.

My prayers and thoughts for you and your family... I also love the name Parker.....


Mommy to
Ky (11)
~i~ Katlyne(12/9/02-04/02/03) and little bud (Due 09/11/04)

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Re : Need info for Premmie on Vent

Postby annegarrett » Mon Apr 05, 2004 06:33 pm

There is a great book by William H. Woodwell Jr. about when his wife had preemie twins due to preeclampsia. Here is a link to an interview with the author and where you can also buy the book. FYI: One of the twins does not make it--one does--so you might decide to read it later when Parker is a linebacker and totally healthy. It is a wonderful book though and Bill is a great supporter of the PF.

Anne Garrett
Executive Director
Preeclampsia Foundation

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Re : Need info for Premmie on Vent

Postby julie f » Mon Apr 05, 2004 05:59 pm


I can certainly appreciate your wife's emotional stress, it is so hard to be helpless while your baby struggles - something you surely know as well. From a woman's perspective (mine at least), it's very difficult to see your baby struggle knowing that your body just couldn't take care of him anymore. The feelings of guilt over that can be overwhelming, even though there is nothing we can do to prevent it... Has she been able to get online and check out the forums? For me this was the most wonderful place for support and understanding.

Please continue to update us when you can. My prayers are with your family.

-- I LOVE the name Parker by the way!

Julie (27)
Zachary James, 7/22/03-7/27/03, born at 26wks - severe pe

Southern California Coordinator

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