For me, I think the lack of information was scarier than the facts. It was a relief afterward to get statistics and details about PE here, and to talk to my new doctors about why different decisions might have been made, even to realize how much worse it could have been. My feelings were probably influenced by concerns re: medical care generally (family history of medical mistakes), but those last couple of months, I would have given anything to have had someone sit down (without looking at their watch, without one foot out the door) and say, "here is everything we know about the disease and your current symptoms. Here are the reasons I'm recommending XYZ, and here's why I feel it's the least risky course of action for you and baby." At the time, it felt like information was kept from us, and I've never felt more helpless.
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