by ileana (1010 Posts), Tue Dec 30, 2003 10:19 am
We are actually working on something similar. We did not think about making it a public database, we are thinking about a set of medical surveys that will be used by doctors to create meaningful reseach data...
Privacy is a very big issue these days, and I don't know if we will ever make this info public on the Internet, but we might think in which way we can make this available to registered members.
As always, we would very much appreciate any help. Right now we are more in need of technical help (Oracle database development, web page design, technical aspects of creating Internet content). Anyone that has such skills and time to help is more than welcome to join us.
Email me at firstname.lastname@example.org or/and Anne if you are interested in helping with this.
And of course, we will need everyone to add their contact information in the PF Registry, so we can contact you as soon as this survey will be ready.
The registration is free.
Last, but not least, such initiatives can be accomplished and accelerated if we had enough money to hire help, buy hardware and software, etc. so anyone can contribute by donating to the Foundation.
Angel stillborn 24w p-e 2/17/03