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Raise awareness! Letter campaign! (Update!)

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Raise awareness! Letter campaign! (Update!)

Postby jmom08 » Fri Dec 11, 2009 12:26 am

by jmom08 (486 Posts), Fri Dec 11, 2009 12:26 am

Help me pursue an opportunity to raise awareness about preeclampsia!

I recently signed up for Babycenter’s e-mail Pregnancy Bulletins. After receiving one titled “Moms confess: ‘What I wish I’d known about pregnancy,’” I realized that the Bulletins would be a great opportunity for increasing awareness about preeclampsia, particularly if Babycenter would be willing to send out one or two Bulletins each year specifically alerting expectant women to the warning signs.

We can’t approach Babycenter on behalf of the PF, but we *can* approach them as individual users of the website, and I received permission to post this advocacy project on the forums. Below is a sample letter I’m sending to Babycenter via both U.S. mail and through their website form (no e-mail address & didn’t receive a response to my question submitted through the web form, so I’m sending a hard copy to make sure my letter is seen/read!). The letter should fit on 1 page in Word with 1 inch margins. Per discussions with Kara, let’s set a tentative deadline for sending our letters, so that Babycenter receives them all at once. If you can, please mail yours by January 15. [EDIT: new suggested deadline February 1... it's not too late!]

Also, when you send your letter, if you would reply to this thread, we can see how many have participated. Please remember to write on your own behalf and not on behalf of the PF, and please feel free to copy/paste & use part or all of the letter below!


Babycenter address: 163 Freelon Street, San Francisco, CA 94107

(per phone call to their business office, I’m addressing mine to: Babycenter, Attn: Scott Adler, Managing Editor)

Web form: http://www.babycenter.com/help-contactus (although I didn’t receive a response to my question submitted via the form)

- - - - -

[Date]

Dear Babycenter.com,

I enjoy the Babycenter website, [could describe personal use of site: i.e., for me, “and have used it frequently during both my first and current pregnancies"]. I have been especially glad to receive the tips and facts in the Pregnancy Bulletin e-mails, and would like to make a request/suggestion for making the Bulletins even more helpful to Babycenter members.

As you know, preeclampsia continues to be a serious risk for both mothers and babies: the disease affects 1 in 12 pregnancies, is the leading known cause of premature birth, and kills 500,000 babies each year. Twenty-five percent of cases are categorized as severe, and preeclampsia can quickly progress to seizures, stroke, and major organ failure. Since a cure has not yet been found, early detection and treatment is essential to maximizing the chances of survival for babies and mothers. All too often, unfortunately, the early signs of preeclampsia are mistaken for normal pregnancy symptoms, delaying treatment and putting additional lives at risk. If expectant mothers can be alerted to the warning signs of preeclampsia during their pregnancies, particularly during first pregnancies, it can literally save their lives.

Would Babycenter consider sending out a Pregnancy Bulletin specifically devoted to the warning signs of preeclampsia, to help alert women to the symptoms they need to know? If preeclampsia could be the focus of just one or two Bulletins each year, each expectant Babycenter member would know information she may need to communicate to her doctor – information that could save her life or the life of her baby.

[One or two sentences summarizing personal experience with preeclampsia: mine is, “My son and I are both survivors of preeclampsia, and my son was born four weeks premature. We are both healthy today, but many mothers and babies are not so fortunate."] All mothers and babies deserve a fighting chance against preeclampsia – please address preeclampsia in the Babycenter Pregnancy Bulletins, and give Babycenter members that chance!

Sincerely,

[name]
Babycenter member [since _date_, if applicable; mine is “since 2002"]
[contact info]

Additional information about the signs and symptoms of preeclampsia can be found at http://www.preeclampsia.org/symptoms.asp, or at http://www.preeclampsia.org/pdf/hbpenglish.pdf

- - - - -

Thank you in advance to everyone who participates!

- - - - -

*** UPDATE ***

Nicole (misscoleyp) received a response to her letter!

quote:
There are more than 1,500 severe preeclampsia cases each week, and unfortunately, more than 2 of those mothers die each week because of preeclampsia. Worldwide estimates suggest that 76,000 women and 500,000 babies die annually because of preeclampsia. My son was one of them.

Please visit..... Cooper's Story and the Preeclampsia Foundation


Response from BabyCenter's senior editor:
quote:
Thank you so much for your letter about the dangers of preeclampsia and for sharing your personal story.

I was so sorry to hear how this disease affected you and your baby. And I agree that we here at BabyCenter need to help get the word out to expecting moms.

Currently, we highlight the risks and warning signs of preeclampsia regularly in our “My Pregnancy This Week” e-mail for third-trimester moms. Preeclampsia is a topic in the e-mails for weeks 23, 25, 26, 27, 35, 37, 38, and 40.

But you’re right, we also need to feature this information regularly in our Pregnancy Bulletin e-mail.

I’ll be taking steps to do this. We started this month by putting our article on preeclampsia (http://www.babycenter.com/0_preeclampsia_257.bc) in the spotlight area (or the top, right-hand side) of our February 23 Pregnancy Bulletin (see attached). We’ll also feature this topic in our upcoming Pregnancy Bulletin on “7 pregnancy complications to watch out for,” which links to this story:

http://www.babycenter.com/0_7-pregnancy-complications-to-watch-out-for_10316818.bc

And I plan to highlight this important information through other e-mail placements and on our site throughout the year.

Thank you for being part of BabyCenter and more important, thank you again for sharing your stories. You’re helping to make BabyCenter better for all our moms, and we appreciate that so much.

All the best to you and your families.


Thank you so much to Nicole and to everyone who participated and sent letters. You all made a difference!
jmom08
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Re : Raise awareness! Letter campaign! (Update!)

Postby kara » Thu Dec 17, 2009 07:52 pm

by kara (6614 Posts), Thu Dec 17, 2009 07:52 pm

Bumping this up! Everyone, this is a really easy way you can contribute to forwarding the Preeclampsia Foundation's mission. It will only cost you a postage stamp and about 10 minutes of your time. You can even copy most of Emily's letter above and just paste it into a Word document, print and mail! You don't have to be a regular BabyCenter user.

Please post here if you have sent a letter, or if you can pledge to send one before January 15! This is a great way to spread awareness of the disease to all those first time moms out there who have signed up for babycenter bulletins. We need alot of letters to go out in order to be successful.

Thanks,
Kara

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Re : Raise awareness! Letter campaign! (Update!)

Postby jmom08 » Thu Jan 14, 2010 00:19 am

by jmom08 (486 Posts), Thu Jan 14, 2010 00:19 am

Bump!
How great would it be if all of the expectant moms using Babycenter could receive an e-mail alerting them to the PE warning signs? Also providing them with info they can later use if they do develop PE, and possibly a referral here so they can get they support we've been so grateful to have?
Just 10 minutes! :)
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Re : Raise awareness! Letter campaign! (Update!)

Postby misscoleyp » Thu Jan 14, 2010 00:56 am

by misscoleyp (436 Posts), Thu Jan 14, 2010 00:56 am

Emily,
I'll be sending a letter!

Thanks,
Nicole
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Re : Raise awareness! Letter campaign! (Update!)

Postby misscoleyp » Thu Jan 14, 2010 01:03 am

by misscoleyp (436 Posts), Thu Jan 14, 2010 01:03 am

Can I use my PF postage pal??? Or will that implicate the foundation in my writing?
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Re : Raise awareness! Letter campaign! (Update!)

Postby kara » Thu Jan 14, 2010 01:50 am

by kara (6614 Posts), Thu Jan 14, 2010 01:50 am

What's the Pf postage pal?
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Re : Raise awareness! Letter campaign! (Update!)

Postby misscoleyp » Thu Jan 14, 2010 09:03 am

by misscoleyp (436 Posts), Thu Jan 14, 2010 09:03 am

Oh, you don't have the postage pal? You are missing out! It's a little sticker that you put on the envelope and then add your stamp. It's got the PF logo on it.

Serious ladies, it took me longer to find the envelope than it took to copy the letter and print it.
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Re : Raise awareness! Letter campaign! (Update!)

Postby sarab » Thu Jan 14, 2010 11:12 am

by sarab (2950 Posts), Thu Jan 14, 2010 11:12 am

Emily mentioned it in her post above, but I do want to remind anyone participating to do so on their own behalf, an interested citizen of the BBC community, and not as a representative of the Preeclampsia Foundation. However, you can always cite the PF as a credible source of information.

Good luck, ladies!
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Re : Raise awareness! Letter campaign! (Update!)

Postby kara » Thu Jan 14, 2010 01:16 pm

by kara (6614 Posts), Thu Jan 14, 2010 01:16 pm

Apparently, I am missing out! I would say it's fine, because it's something you'd put on any mail. It's not as though it's a letterhead envelope.

We had zero response from our forum members when we did this in December, but it was probably bad timing with holiday's. This is an essentially FREE advocacy project, and could potentially reach hundreds of thousands of expectant women.

Our goal is to have 50 forum members reach out to babycenter. And remember you can email the letter to friends and family and ask them to send a letter, too!!

I'm printing my letter right now!
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Re : Raise awareness! Letter campaign! (Update!)

Postby jend01 » Thu Jan 14, 2010 02:05 pm

by jend01 (375 Posts), Thu Jan 14, 2010 02:05 pm

I will be sending a letter. Printing it out today!!! :)
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