by mom2miracles (21 Posts), Thu Mar 11, 2010 08:03 am
Ethan's 6 mth review of his therapies is today. I dread these things because I always hear things I don't want to...even though he is doing very well. I look at him every day and am amazed at what he does and how far he's come and then I'm reminded on paper that he is still behind. Don't get me wrong...I'm just grateful every second that he is here with me. It's just hard to hear that he's not where he's supposed to be yet. To me...he is a genius! I don't like when people tell me otherwise! ;-) I think we will get some good news in that he has finally passed his physical therapy goals...gross motor skills is his major delay so this is really good. I'll update on the meeting later. Thanks for letting me vent!
The meeting went fairly well. I heard the things I didn't care to, but also a lot of positive. Ethan completed his PT goal, which was to sit unassisted and begin bearing weight on his legs. The PT actually upset me a few weeks ago by saying that Ethan may not walk til he's 4. Then the next week he started standing and now the PT is saying 6 mths, which would make Ethan 2 1/2. I love how he always proves them wrong. He met part of his communication goal, which was to communicate using signs, gestures and imitation. He does the gestures and imitates but is not using actual signs. He did not meet his feeding goal because he is not interested in food at all. The neonatologist tells me every time we see her that he will eat when he wants to and she is not worried. He is definitely still behind is the bottom line. But then I look at his adjusted age (19mths) and take off another 5 mths (how long he was intubated before getting his trach) and I think he is doing amazing. A doctor told me once that I should not worry at all as long as he continues to make progress...and he does. When he was first diagnosed with the Periventricular Leukomalasia and brain bleeds, we had no idea where he would be right now. And Cerebral Palsy was a huge concern. So far there has been no talk of the brain damage causing major issues and no talk of anything except delays because of his rough start in life and the amount of time he was hospitalized. So I will celebrate the fact that I can kiss him goodnight every night and be happy that he's here! Thanks for the support ladies!!