Anyone with babies who developed Hemangiomas?

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
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lauchlan
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Re : Anyone with babies who developed Hemangiomas?

Postby lauchlan » Tue Jun 15, 2010 11:32 am

My daughter had a giant one that grew on the back of her head (about the size of my fist). After 18 months of steroid treatments to stunt it's growth (and hers), we were able to get it removed via plastic surgery on her 2nd birthday. I never got a clear answer regarding if it was related to Preeclampsia, but the dermatologist we saw said that 1:10 preemies get them compared to 1:25 of full term babies. He said it has something to do with the placenta, but I didn't understand the connection.

ozierja
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Re : Anyone with babies who developed Hemangiomas?

Postby ozierja » Tue Jun 15, 2010 10:25 am

My daughter had one on her back it is gone except for a scar about the size of a dime. We named it "Chuck" after Chuck Mangioni :)

jenmatt1
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Re : Anyone with babies who developed Hemangiomas?

Postby jenmatt1 » Mon Jun 14, 2010 04:17 pm

my daughter had a little superficial one on her forehead. Now at 2 you can only see it when she is mad or upset and it gets red. otherwise, it just blends in with the skin. I remember the pediatrician in the hospital mentioning it in the hospital and to be honest I just looked at her like she was crazy. Because I was just happy we were all alive and healthy and everything was ok- I could have cared less that she had a strawberry at that point- she was perfect to me. But definitely an interesting thought about a possible connection.

glimmer
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Re : Anyone with babies who developed Hemangiomas?

Postby glimmer » Sun Jun 13, 2010 02:58 am

I have read on several sites that birth marks in general are more common among premature babies. So there could a link with prematurity instead of pre-eclampsia as well.

blznbec
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Re : Anyone with babies who developed Hemangiomas?

Postby blznbec » Tue Jun 08, 2010 06:04 pm

Late on this topic, but my daughter had one on the back of her head that eventually went away. She was a month early and my son was 8 weeks early and didn't have one. Interesting though if it is a commonality among PE moms.

hypergirl_trlee
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Re : Anyone with babies who developed Hemangiomas?

Postby hypergirl_trlee » Sat May 15, 2010 10:33 pm

My 28 weeker had a hemangioma right near her eye that we just got removed through a second surgery. It was a deep hemangioma and very substantial. We have another surgery coming up in September to fix her muscle up.

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jayme
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Re : Anyone with babies who developed Hemangiomas?

Postby jayme » Thu May 13, 2010 12:48 am

One of my twins has one on the back of his head! Also, my firstborn had one on his shoulder- how interesting!

mnmom
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Re : Anyone with babies who developed Hemangiomas?

Postby mnmom » Thu May 13, 2010 07:47 am

I missed this one earlier. One of my PE sons did have one on his chest. It eventually faded on its own by the time he was around 3. I had totally forgotten about it til now.

shaym2009
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Re : Anyone with babies who developed Hemangiomas?

Postby shaym2009 » Tue May 11, 2010 01:05 pm

Thank you everyone for your posts. I think it is coincidental since there wasn't an overwhelming amount of replies to my post. We saw a specialist yesterday and it appears that Jason's H is only superficial and we are currently treating it with a steroid cream. After a month, we will reevaluate and possibly try Propanolol.

Thanks Again for the reply and well wishes.

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audrey s.
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Re : Anyone with babies who developed Hemangiomas?

Postby audrey s. » Tue May 11, 2010 01:30 am

There are some new treatments for hemangioma that are looking quite promising. We follow a few kids with it in our practice. If you Google "Beta Blocker" and "hemangioma" you should be able to find out more. Since hemangioma may be caused by alterations in endothelial growth factor (which may also play a part in placental dysfunction, found in pre-e) perhaps there is some association? I haven't found any studies on that aspect of it, though. Good luck with your little one!


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