by kellyebush (9 Posts), Thu Dec 24, 2009 09:04 pm
I know I'm late to the topic, but my son was born at 23 weeks and he survived. He was a "wimpy white boy" as the nicu nurses refer to them. He was only 1 lb 7 oz and 12 1/2 inches at birth, losing down to 1 lb 4 oz. Our only major disability that we have that is long term is blindness. He has stage 5 ROP. He had surgery at 5 months old by a world renowned surgeon (who happens to be in our city-we got lucky there) and the retinas just didn't reattach enough to make a difference. He spent 141 days in the NICU before we finally got to bring him home and it was NOT easy. There were a few times where I found out in the morning that he had required chest compressions in the night because his heart stopped. We were the fortunate ones...most do not survive that early, much less without even worse disabilities. At this point, my son is a small but healthy 5 year old. He didn't start kindergarten this year, because he still has to learn more Braille, but aside from that, he's basically caught up with other kids his age.