New mom of a preemie

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
ch3lsea
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Re : New mom of a preemie

Postby ch3lsea » Mon Sep 06, 2010 11:49 am

Thank you all for the prayers. They found out it was actually a perforation in her stomach, it was not ready for the breastmilk. Doctors put a small drain in her abdomen to allow the gases and liquids that were leaking out of her stomach to drain. It was a very rough night, she was not doing so great, but the next day she started to do a little better...her tummy looked a lot less bloated. Today she is doing about the same...not amazing, but stable, hoping she continues to do ok and get better. The doctors said that her stomach should heal itself and once her abdomen is empty they will take out the drain. So hard to see her like this, I wish I could do something for her. Please keep her in your thoughts and prayers <3

lola1971
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Re : New mom of a preemie

Postby lola1971 » Mon Sep 06, 2010 02:43 am

I am praying for you and your family. hugs and strength and positive thoughts to you....don't give up hope!

jenmatt1
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Re : New mom of a preemie

Postby jenmatt1 » Sun Sep 05, 2010 05:19 pm

lots of prayers and thoughts coming your way from here- hang in there, and stay strong and positive right now and take it one step at a time. We're all here if you need us.

ch3lsea
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Re : New mom of a preemie

Postby ch3lsea » Sun Sep 05, 2010 11:05 am

Last night they discovered Kayleigh had a perforated intestine, they had to put a incision in her abdomen so anything leaking out would be able to drain. The doctors aren't sure if shes going to make it :( Please pray for her <3

trish
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Re : New mom of a preemie

Postby trish » Sat Sep 04, 2010 09:01 pm

(((HUGS))) I know it's got to be so hard to stay positive but from what I understand it's really common for them to need to go back on - especially when they are so small. They don't want them burning too much energy/calories working at breathing. But it's great that she could tolerate the CPAP for awhile & that she was doing well enough they wanted to let her try. Hang in there!!

ch3lsea
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Re : New mom of a preemie

Postby ch3lsea » Sat Sep 04, 2010 07:17 pm

Spoke too soon, she's back on the vent now and they decided to stop feeding her the breastmilk for now. :( It's been a tough day, I just hope things start looking up soon

jenmatt1
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Re : New mom of a preemie

Postby jenmatt1 » Sat Sep 04, 2010 01:36 pm

glad she is off the vent now- that is a good sign. The breastmilk will help with her immunity and fighting off infection too, so hopefully she does well with that. lots of thoughts and prayers to you and your family

ch3lsea
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Re : New mom of a preemie

Postby ch3lsea » Fri Sep 03, 2010 11:39 pm

Thank you for the prayers and encouraging words :)
Things have been going ok...Kayleigh was one week yesterday. She was on the vent and yesterday they decided to take her off of it and put her on the CPAP...so far she is doing well on it, praying that she continues to do ok with it! They started to give her breastmilk today...hopefully she'll tolerate it and it will help her grow and get stronger. She is fighting an infection right now and is on antibiotics =/ and they had tested for hepatitis, one test came back negative and another came back questionable so they're testing again...this terrifies me, please pray for her if you have a moment! They said it is unlikely that she has it, I don't have it...the only way she could have gotten it is through the blood transfusions she's gotten :( which they said has never happened before because the blood they use goes through thorough testing. So we're going to be on edge until we hear those results...ugh I'm very scared. On a good note she has been gaining a bit of weight the past few days...still so tiny...it still shocks me to see her so little.

miamibunnie
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Re : New mom of a preemie

Postby miamibunnie » Thu Sep 02, 2010 02:29 pm

I know it is so hard to see your baby that little but preemies are fighters. My daughter was born at 25 weeks and she went thru her up and downs. But just think positive after 29-30 weeks you will feel much better. Also seeing her that small, it will get better. Those babys grow so quick, I always use to ask the nurses what are you feeding my baby...lol just be positive.



quote:
Originally posted by Ch3lsea

My daughter was born August 26th...at 26 weeks due to severe pre-e. She's so tiny and I'm so scared for her :(. It's hard for my to go into the NICU...it breaks my heart to look at her. It's so hard to stay positive because she looks so weak. Did anyone else feel guilty after having their preemie? I know it's not my fault that I got sick and I had no other choice but to have her early but I feel so guilty. I wish I just could have kept her in for a few more weeks. :( My husband on the other hand it so positive, he says he just knows that she's going to be fine, I wish I could be as positive as him...I wish I had a crystal ball and could see the future =/ Please keep my baby girl in your thoughts and prayers. <3


dohertyab
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Re : New mom of a preemie

Postby dohertyab » Thu Sep 02, 2010 10:33 am

Take some solace in your husband's positivity! What you described was exactly what I felt. The twins were 29 weeks but that still seemed so very small to me. Hubby just thought they looked beautiful and he says he knew they would be fine. He spent lots of time in the NICU. I couldn't bring myself to visit them for quite a while and then it was hard to spend much time with them. Instead of beating myself up about what I couldn't do (well at least that is what I said, it wasn't really that easy to do) I was glad he could be there for them and that it gave me the chance to recover and try to process what had happened and that I knew someone was looking out for the kids. After all, they are just as much his children as mine. I kept telling myself that there were things I could do and tried to focus on that - pumping, encouraging hubby to be there. I'm still sad that I couldn't have given them the start that I wanted but I have accepted that there wasn't anything I could do about it. HELLP just happens. I do look back and appreciate all that they accomplish since they did have such a rough start. That and I also realize that I have so many new ways to be both a good and poor parent over which I do have control that the preemie thing does fade into the background.

You have a long, hard road ahead of you in the NICU but remember you are not alone in the journey and keep asking for support, prayers or whatever you need. Good luck


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