HUGS... hang in there sweetie, it gets easier. My son was 27+5, and I had HELLP and pre-e as well. We got so used to the routine at the NICU for 92 days that we felt strange taking him home, especially without a monitor.
The other girls mentioned great things: pumping, kangaroo time, feedings, changings, rounds, etc. The other thing that I did that I'm appreciating now as I work on his scrapbook was a journal. You'll spend a lot of time pumping, and while I pumped, I wrote the day's hilights down. You can't do much else when you're hooked to a machine. Sometimes it was oxygen levels or number of bradys (which helped to see trends and detect a pneumonia coming on), and sometimes it was funny things he did, keeping the nurses on their toes. It helped me keep my head straight in all the medical mumbo-jumbo and I felt closer to him writing when I couldn't be there.
We were surprised with his discharge day... we thought it would be later, and I thought it was oddly fitting that I was on the last page of this little book on his last day in the NICU.
Miscarriage Feb 05 & Dec 07
Daniel born Feb 09 at 27w5d, 1 lb 1 oz/12 inches (severe IUGR) due to Severe Pre-E & HELLP. Now tall for age and no complications.
Diagnosed with MTHFR
Cornual Ectopic miscarriage Mar 11
Natalie born 6-5-12 at full term, 7 lb 11 oz & 21.5 inches, progesterone 2-8 weeks (for suspected luteal phase defect), lovenox 6-29 weeks, lda 0-36 weeks, folic.