thanks for sharing your stories and worries.
We finally had the appointment with the pediatric genticist.
She confirmed that our daughter does not fit any known genetic syndrome. That's a relief!
However, she didn't say that she has nothing, but that it could be something extremely rare and/or subtle.
Well, I don't know what to make about that. I guess they can never give anyone the "all-clear".
They will run some further tests (the micro-array Jamie mentioned) and the results will take months...
All other tests have come back normal and healthy. I guess that's good, although the best-case scenario
would be something that can be easily fixed
We tried pediasure - she liked it for three days and then cooled off. She will have a few sips and is then done.
I am experimenting right now with home-made smoothies with extra-cream and ice-cream right now. At least I like them a lot
better and it's me who finishes them.... (And I do not need extra-high calorie diet by the way...)
The cystic fibrosis has some receipies for high-calorie meals. They also test for cystic fibrosis, which came back negative.
Given that she only had one chest infection when everybody else in the family was sick as well, I had anticipated this result,
but it's still a plus.
My son fell from the 50% to the 12% and is now at 3 years 50% percentile again. But 12% is still a lot better than 0.01% percentile
or something like that. She is 17lb at 15.5 months and I have never seen a chart that show the lower percentiles.
Thanks a lot and good luck to you all.