Back in NICU ***UPDATE

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
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audrey s.
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Re: Back in NICU ***UPDATE

Postby audrey s. » Mon Mar 21, 2011 00:20 am

I know reflux can cause problems like that, but glad to hear he's home. That's pretty easy to diagnose and treat, too. Now to just stay home and stay healthy!
Mom to Rebecca, now 16 and honor student. 37-week, two months in NICU for her thanks to NEC and meningitis. One month in hospital for me, HELLP syndrome and severe hyper-reflexia. All healthy now, more or less!

kathrynb
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Re: Back in NICU ***UPDATE

Postby kathrynb » Sat Mar 19, 2011 09:28 pm

I'm so glad he is back home with you!
Kathryn

Jacob Daniel Feb 18, 2011 born at 34 weeks due to severe PE, 11 days in the NICU.
5 lbs, 5 oz and 18 inches

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danielsmom
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Re: Back in NICU ***UPDATE

Postby danielsmom » Sat Mar 19, 2011 08:58 pm

Yep, full tummies put pressure on lungs, so they can't breathe as deep. It's just because they're so tiny for now. So glad he's home! I bet he's glad too. :D
Miscarriage Feb 05 & Dec 07
Daniel born Feb 09 at 27w5d, 1 lb 1 oz/12 inches (severe IUGR) due to Severe Pre-E & HELLP. Now tall for age and no complications.
Diagnosed with MTHFR
Cornual Ectopic miscarriage Mar 11
Natalie born 6-5-12 at full term, 7 lb 11 oz & 21.5 inches, progesterone 2-8 weeks (for suspected luteal phase defect), lovenox 6-29 weeks, lda 0-36 weeks, folic.

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l412angel
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Re: Back in NICU ***UPDATE

Postby l412angel » Sat Mar 19, 2011 08:00 pm

Carter is now home! Still having breathing episodes, but they did many tests and found nothing. Said it could have been zoloft, could have been Preemie issues. Weird you say that because Carter's o2 would dip after he ate and that is when he would have his fast breathing.
Laura Angel (Factor V Leiden)
Mommy to Cara Angel 2LBS 11OZ 16 IN. Born at 30 weeks due to Severe PE & HELLP.
"My life went with you sweetheart the day angels called you home"

Our Rainbow Baby Carter born March 5 2011 7lbs 7oz 20.5in 36 weeks 4days PE FREE

Baby #3 due June 2012

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danielsmom
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Re: Back in NICU ***UPDATE

Postby danielsmom » Fri Mar 18, 2011 09:46 am

Sorry to hear he's back in the NICU, but as hard as it is, don't rush the homecoming. Medicine is so complex, that's why they're throwing around all these terms and what ifs. He could be completely fine. My son's breathing didn't stay above 94 consistently until week 39 or 40. He came home at the end of week 40 with no oxygen and we had no issues other than him breathing fast at times, and he grew out of that.

Also - Daniel's O2 sats would dip after a meal, and he did better laying on his tummy. Our nurse said this helped digestion. There are all sorts of things... ;)
Miscarriage Feb 05 & Dec 07
Daniel born Feb 09 at 27w5d, 1 lb 1 oz/12 inches (severe IUGR) due to Severe Pre-E & HELLP. Now tall for age and no complications.
Diagnosed with MTHFR
Cornual Ectopic miscarriage Mar 11
Natalie born 6-5-12 at full term, 7 lb 11 oz & 21.5 inches, progesterone 2-8 weeks (for suspected luteal phase defect), lovenox 6-29 weeks, lda 0-36 weeks, folic.

tree
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Re: Back in NICU ***UPDATE 3/14

Postby tree » Tue Mar 15, 2011 08:51 pm

l412angel wrote:Update! Ok so his Saturation levels are 55% (or blood gas I cant remember) They are going to do a ultrasound of diaphragm instead of floroscopy because his xray looked normal.

They want to do another blood gas when he is in a deep sleep. (Do you know why?)

They also are thinking this could be withdrawls from SSRIs I was on Zoloft...do you have any info or studies on that?


I think that must be a blood gas percentage. My daughter's O2 sats used to drop when she was in deep sleep. She was on O2 at night for a while to compensate for it, and her doctor said it was fairly normal for early term/preemie babies. It sounds like Carter has something a little different going on, and we will be thinking of you both.
Daughter born April 2009 at 35 weeks due to Class 1 HELLP

susheli
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Re: Back in NICU ***UPDATE

Postby susheli » Tue Mar 15, 2011 08:32 pm

Dear Laura,

I just wanted to let you know that I am thinking of you and Carter, very much. I'm so sorry to hear that he's back in the NICU. You didn't need to have to go through this! It sounds very encouraging that he is eating, pooing and looking well. I don't know about babies, but SSRI withdrawal can hit even adults hard, so hopefully it is only that. Sendig you lots of warmth and courage! Keep us updated,
xox Susannah

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l412angel
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Re: Back in NICU ***UPDATE 3/14

Postby l412angel » Mon Mar 14, 2011 01:44 pm

Update! Ok so his Saturation levels are 55% (or blood gas I cant remember) They are going to do a ultrasound of diaphragm instead of floroscopy because his xray looked normal.

They want to do another blood gas when he is in a deep sleep. (Do you know why?)

They also are thinking this could be withdrawls from SSRIs I was on Zoloft...do you have any info or studies on that?
Laura Angel (Factor V Leiden)
Mommy to Cara Angel 2LBS 11OZ 16 IN. Born at 30 weeks due to Severe PE & HELLP.
"My life went with you sweetheart the day angels called you home"

Our Rainbow Baby Carter born March 5 2011 7lbs 7oz 20.5in 36 weeks 4days PE FREE

Baby #3 due June 2012

sam10
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Re: Back in NICU ***UPDATE

Postby sam10 » Sun Mar 13, 2011 10:11 pm

Hi Laura,

Unfortunately I can't tell you anything about Carter's breathing problems. Henry had a lot of things going on, but he was also in a very different category with only 26 weeks.
But I know how it feels to helplessly listen to the doctors and nurses all telling you different things, you trying to absorb and understand it all. I hope that Carter will soon outgrow his rapid breathing and you can all go home soon.

Sending you hugs.
~Julija (42)
MC 3/2009 and 3/2011
H (1/1/2010-1/7/2010) - forever loved and missed; severe PE with Hellp; partial placental abruption, classical c-section at 25.6 weeks
M (Nov. 2012, born at 35.4 weeks) - severe PE


Our pain has been put into words, placed into empty cradles, to remember that all our babies lived, that they mattered and always will. - Field of Cradles http://www.fieldofcradles.org/

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kerisue
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Re: Back in NICU

Postby kerisue » Sun Mar 13, 2011 02:29 pm

though it seemed like my baby had everything possible, I've never heard of those. I hope Carter turns around and comes home soon!
Mama to Millie
born June 2010 @ 24 wks. gestation due to my severe PE and CHF
lived 25 days, loved and missed


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