Post Reply FAQ Members Login

Back in NICU ***UPDATE

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.

Back in NICU ***UPDATE

Postby l412angel » Sun Mar 13, 2011 12:41 am

by l412angel (1746 Posts), Sun Mar 13, 2011 12:41 am

Carter was born at 36+4 spent 4 days in NICU thought to have had TTN...Sent home. He is not back in NICU as we noticed his breathing was quite labored. They are saying possibly a paralyzed diaphram, or a coartion of the heart (I dont even know if I have that term or spelling right) or it could be normal. Anyone experience any of these symptoms? I am so upset to know that something could possibly be wrong :(

if any of you have experienced something similar we would love to hear your feed back.

*Carters 02 levels fluctuate between low 80's and 100. Rarely 100, hardly low 80's. If they do drop to low 80's they go right back up...but of course after he takes some heavy breaths. When they go back up they are around 94. They pretty much stay around 94.

* Carters blood ox level I believe was 59 so a bit elevated.

*EKG came back nortmal with exception of the narrowing of one artery, (mild)

*Chest Xray normal.

The doctors seemed stumped, calling him a mystery. He is eating, pooping, peeing, crying and looks 100% healthy.

I guess they are still saying that there is still a chance that this is nothing, that he just breathes abnormally, and he will grow out of it. There is a chance that he is still transitioning and getting used to the outside world as a preemie. We just don't know.

If anyone has any suggestions of things for me to ask for etc I would love that!
Last edited by l412angel on Sun Mar 13, 2011 08:13 am, edited 1 time in total.
Laura Angel (Factor V Leiden)
Mommy to Cara Angel 2LBS 11OZ 16 IN. Born at 30 weeks due to Severe PE & HELLP.
"My life went with you sweetheart the day angels called you home"

Our Rainbow Baby Carter born March 5 2011 7lbs 7oz 20.5in 36 weeks 4days PE FREE

Baby #3 due June 2012
User avatar
l412angel
Registered User
 
Posts: 1746
Joined: Thu Nov 19, 2009 02:46 pm
Location: Illinois

Re: Back in NICU

Postby kerisue » Sun Mar 13, 2011 02:29 pm

by kerisue (623 Posts), Sun Mar 13, 2011 02:29 pm

though it seemed like my baby had everything possible, I've never heard of those. I hope Carter turns around and comes home soon!
Mama to Millie
born June 2010 @ 24 wks. gestation due to my severe PE and CHF
lived 25 days, loved and missed
User avatar
kerisue
Forum Moderator
 
Posts: 623
Joined: Fri Jul 09, 2010 11:43 pm

Re: Back in NICU ***UPDATE

Postby sam10 » Sun Mar 13, 2011 10:11 pm

by sam10 (1436 Posts), Sun Mar 13, 2011 10:11 pm

Hi Laura,

Unfortunately I can't tell you anything about Carter's breathing problems. Henry had a lot of things going on, but he was also in a very different category with only 26 weeks.
But I know how it feels to helplessly listen to the doctors and nurses all telling you different things, you trying to absorb and understand it all. I hope that Carter will soon outgrow his rapid breathing and you can all go home soon.

Sending you hugs.
~Julija (40)
MC 3/2009 and 3/2011
Henry (1/1/2010-1/7/2010) - forever loved and missed; severe PE with Hellp; partial placental abruption, classical c-section at 25.6 weeks
Matilda (Nov. 2012, born at 35.4 weeks) - severe PE


Our pain has been put into words, placed into empty cradles, to remember that all our babies lived, that they mattered and always will. - Field of Cradles http://www.fieldofcradles.org/
sam10
Forum Moderator
 
Posts: 1436
Joined: Sat Feb 20, 2010 12:04 am
Location: Boston, MA

Re: Back in NICU ***UPDATE 3/14

Postby l412angel » Mon Mar 14, 2011 01:44 pm

by l412angel (1746 Posts), Mon Mar 14, 2011 01:44 pm

Update! Ok so his Saturation levels are 55% (or blood gas I cant remember) They are going to do a ultrasound of diaphragm instead of floroscopy because his xray looked normal.

They want to do another blood gas when he is in a deep sleep. (Do you know why?)

They also are thinking this could be withdrawls from SSRIs I was on Zoloft...do you have any info or studies on that?
Laura Angel (Factor V Leiden)
Mommy to Cara Angel 2LBS 11OZ 16 IN. Born at 30 weeks due to Severe PE & HELLP.
"My life went with you sweetheart the day angels called you home"

Our Rainbow Baby Carter born March 5 2011 7lbs 7oz 20.5in 36 weeks 4days PE FREE

Baby #3 due June 2012
User avatar
l412angel
Registered User
 
Posts: 1746
Joined: Thu Nov 19, 2009 02:46 pm
Location: Illinois

Re: Back in NICU ***UPDATE

Postby susheli » Tue Mar 15, 2011 08:32 pm

by susheli (480 Posts), Tue Mar 15, 2011 08:32 pm

Dear Laura,

I just wanted to let you know that I am thinking of you and Carter, very much. I'm so sorry to hear that he's back in the NICU. You didn't need to have to go through this! It sounds very encouraging that he is eating, pooing and looking well. I don't know about babies, but SSRI withdrawal can hit even adults hard, so hopefully it is only that. Sendig you lots of warmth and courage! Keep us updated,
xox Susannah
susheli
Registered User
 
Posts: 480
Joined: Tue Jan 06, 2009 07:53 am

Re: Back in NICU ***UPDATE 3/14

Postby tree » Tue Mar 15, 2011 08:51 pm

by tree (819 Posts), Tue Mar 15, 2011 08:51 pm

l412angel wrote:Update! Ok so his Saturation levels are 55% (or blood gas I cant remember) They are going to do a ultrasound of diaphragm instead of floroscopy because his xray looked normal.

They want to do another blood gas when he is in a deep sleep. (Do you know why?)

They also are thinking this could be withdrawls from SSRIs I was on Zoloft...do you have any info or studies on that?


I think that must be a blood gas percentage. My daughter's O2 sats used to drop when she was in deep sleep. She was on O2 at night for a while to compensate for it, and her doctor said it was fairly normal for early term/preemie babies. It sounds like Carter has something a little different going on, and we will be thinking of you both.
Daughter born April 2009 at 35 weeks due to Class 1 HELLP
tree
Forum Moderator
 
Posts: 819
Joined: Sun May 03, 2009 01:55 pm

Re: Back in NICU ***UPDATE

Postby danielsmom » Fri Mar 18, 2011 09:46 am

by danielsmom (290 Posts), Fri Mar 18, 2011 09:46 am

Sorry to hear he's back in the NICU, but as hard as it is, don't rush the homecoming. Medicine is so complex, that's why they're throwing around all these terms and what ifs. He could be completely fine. My son's breathing didn't stay above 94 consistently until week 39 or 40. He came home at the end of week 40 with no oxygen and we had no issues other than him breathing fast at times, and he grew out of that.

Also - Daniel's O2 sats would dip after a meal, and he did better laying on his tummy. Our nurse said this helped digestion. There are all sorts of things... ;)
Miscarriage Feb 05 & Dec 07
Daniel born Feb 09 at 27w5d, 1 lb 1 oz/12 inches (severe IUGR) due to Severe Pre-E & HELLP. Now tall for age and no complications.
Diagnosed with MTHFR
Cornual Ectopic miscarriage Mar 11
Natalie born 6-5-12 at full term, 7 lb 11 oz & 21.5 inches, progesterone 2-8 weeks (for suspected luteal phase defect), lovenox 6-29 weeks, lda 0-36 weeks, folic.
User avatar
danielsmom
Registered User
 
Posts: 290
Joined: Wed Jun 30, 2010 12:17 am

Re: Back in NICU ***UPDATE

Postby l412angel » Sat Mar 19, 2011 08:00 pm

by l412angel (1746 Posts), Sat Mar 19, 2011 08:00 pm

Carter is now home! Still having breathing episodes, but they did many tests and found nothing. Said it could have been zoloft, could have been Preemie issues. Weird you say that because Carter's o2 would dip after he ate and that is when he would have his fast breathing.
Laura Angel (Factor V Leiden)
Mommy to Cara Angel 2LBS 11OZ 16 IN. Born at 30 weeks due to Severe PE & HELLP.
"My life went with you sweetheart the day angels called you home"

Our Rainbow Baby Carter born March 5 2011 7lbs 7oz 20.5in 36 weeks 4days PE FREE

Baby #3 due June 2012
User avatar
l412angel
Registered User
 
Posts: 1746
Joined: Thu Nov 19, 2009 02:46 pm
Location: Illinois

Re: Back in NICU ***UPDATE

Postby danielsmom » Sat Mar 19, 2011 08:58 pm

by danielsmom (290 Posts), Sat Mar 19, 2011 08:58 pm

Yep, full tummies put pressure on lungs, so they can't breathe as deep. It's just because they're so tiny for now. So glad he's home! I bet he's glad too. :D
Miscarriage Feb 05 & Dec 07
Daniel born Feb 09 at 27w5d, 1 lb 1 oz/12 inches (severe IUGR) due to Severe Pre-E & HELLP. Now tall for age and no complications.
Diagnosed with MTHFR
Cornual Ectopic miscarriage Mar 11
Natalie born 6-5-12 at full term, 7 lb 11 oz & 21.5 inches, progesterone 2-8 weeks (for suspected luteal phase defect), lovenox 6-29 weeks, lda 0-36 weeks, folic.
User avatar
danielsmom
Registered User
 
Posts: 290
Joined: Wed Jun 30, 2010 12:17 am

Re: Back in NICU ***UPDATE

Postby kathrynb » Sat Mar 19, 2011 09:28 pm

by kathrynb (22 Posts), Sat Mar 19, 2011 09:28 pm

I'm so glad he is back home with you!
Kathryn

Jacob Daniel Feb 18, 2011 born at 34 weeks due to severe PE, 11 days in the NICU.
5 lbs, 5 oz and 18 inches
kathrynb
Registered User
 
Posts: 22
Joined: Wed Feb 09, 2011 10:36 pm

Next

Return to Parents of Preemies

Who is online

Users browsing this forum: No registered users and 3 guests