HELLP at 22 weeks- lost baby

Have you suffered from HELLP syndrome or had a pregnancy complicated by an underlying disorder? Discuss your concerns here
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Re: HELLP at 22 weeks- lost baby

Postby kerisue » Tue May 17, 2011 11:17 pm

I am heartbroken for you, your husband, and your sweet little boy. I too was forced to give birth and my little girl didn't make it either. I felt lost, devastated, and crushed by grief too. You have a long road ahead of you, but I know you will find some support here- unfortunately there are a lot of us who have lost our babies to this disease.
Mama to Millie
born June 2010 @ 24 wks. gestation due to my severe PE and CHF
lived 25 days, loved and missed

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HELLP at 22 weeks- lost baby

Postby Nadenet1229 » Tue May 17, 2011 08:56 pm

I was having a good first time pregnancy, which is why I am so lost and confused. I had elevated blood pressure about a year ago, but it seemed to be due to my high stress level at work. Once I left that job, I never had one elevated reading. My husband and I found out we were pregnant on January 6th and we were beyond excited. I knew about preeclampsia from a co-worker who suffered from it and had to deliver her baby at 30 weeks. So, I was always worried about blook pressure. But, every visit my blood pressure reading was beautiful. About 19 weeks along I had a sneak peak ultrasound and found out I was having a boy. But, the tech had leaned over and asked me if I drink a lot of water. I told her I aim to drink 4 to 5 16 oz bottles a day. She nodded and said nothing else. She was only a tech that worked at the place, so she couldn't really tell me anything. I had my anatomy scan with my actual doctor a week and a half later and the tech in her office said my amniotic fluid was extremely low and I was dehydrated. I was about 20 weeks at this time. I was told to drink a minimum of 80oz a day, and that my baby was measuring 11oz, which was perfect along with my due date. I drank lots of water for a week and came back in one week later because I hadn't felt my baby move for three days. They did another ultrasound and my fluid was still really low. They sent me home and said my doctor would review everything and call me in the morning. Next morning my doctor called and asked me questions and I told her I had a spot that would randomly cross my vision and that morning I had throw up because I thought I had tried to drink to much water in one sitting. She told me to go into the ER. I was put in triage for several hours and told that I was severely dehydrated. They hooked me up to IVs and told me I have to drink atleast 2 gallons of water a day. My blood pressure was slightly elevated but went down when I got the IVs. I assumed I had just been stressing out. I went home that evening and felt a lot better, but they gave me a 24 hour jug for a protien test. Come 3 days later, I was feeling very bad and just happened to take my blood pressure. The cuff I had at home was small so when it said 164/117 I thought it was wrong. I went to the store, bought a new one, and sat around to relax for about 20 minutes. My husband was leaving for work in just literaly minutes with the only car we had and I would have been home alone for the night if I hadn't noticed I was feeling bad. My blood pressure in both arms was 174/129. The funny thing was that I only felt bad, like in a bad mood, but that was it. No nausea, no vomiting. Not even a headache. I normally got slight headaches if my bp was just slightly up. So this was so surreal. My husband and I thought maybe I just needed meds, but that was not the case.

The high risk doctor, whom I had just two days before scheduled an appointment with for later that week, was there that night. They did labs and she came in and started asking me questions about a family history of lupus or clotting disorders. Then she told me that the only reason they were not deciding to deliver my baby right that minute was because I mentioned a history of elevated bp before. I was only 21 weeks and 5 days. She said my labs were pointing to something not good and more than likely I would have to deliver my baby. My husband and I cried our eyes out. Then within a 24 hour period my liver enzymes shot up and my platelets dropped fast. They were originally thinking that maybe I had some blood disease or something with everything, but then I was told that I was having HELLP syndrome. I turned toxic within 24 hours. But, I didn't feel any pain, nothing physical. My face, within 18 hours swoll up so bad that my family couldn't recognize me. I was so broken, wondering how I had all this but didn't know. The doctor came back and said they were worred for me in the worst way and to save my life they had to deliver me. My normal ob came in and had to tell me that since my platelets had literally plummetted, I could not have an epidural and I swear she looked ready to cry for me. She didn't want me to have any more pain. I was given morphine, but that only relaxes the rest of your body so you only feel contractions. In a way I am happy because if for any reason I can't have kids, atleast I know what it really feels like to give birth. They had done a quick ultrasound and told me that baby was measuring only 12 oz, which 2 and a half weeks prior he was measuring 11 and his heart rate that was always 170 to 180 was below 150. My pregnancy was terminating itself. My cervix had even already started to shorten. I gave birth to my sweet little angel on 5/11/11 at 3:13 AM, with not heartbeat. He went peacefully, I can be thankful for that, but God I miss him so much. They let me stay with the body, but I asked for them to bring it back the next day when I had no morphine in my body. The staff was extremely nice and even came to visit me off clock. My family and my husband's family took up the whole waiting room. The high risk ob also wants me to go in and do this big blood test that will take 16 vials of blood to run a check for Lupus and other conditions. I wasn't released from the hospital until Saturday because my bp wasn't stabalizing but when it finally went down enough, still elevated but not to an extreme, my doctor let me go. Told me she thought I would feel better at home and she was right. I am taking bp meds now and wondering if it will ever be normal again.

My son's funeral is tomorrow and my husband and I are just lost. We know we will try again if I get the clear at some point in the future. But now I am so scared this will happen again. My doctors were blind sided that it happened so early in the pregnancy, it wasn't something she had dealt with for over 20 years now. She looked like she blamed herself but really.. by the time we knew what it was, it was too late. There wasn't anything we could do. It was only after researching that I realized that the low amniotic fluid was the first sign and at that point baby stopped developing. My OB said that if I get pregnant again, not to worry, I will be seeing her AND the high risk doctor and they will monitor the * out of my whole pregnancy. I'm still scared out of my mind. I have been told some women have it, then don't have it again. But then I know some who had it with all of their pregnancies. I am so scared, but my husband and I want a baby so bad. We dated for 8 years before we got married to make sure we werent rushing. We got married 9/11/10 and were pregnant by December, right before my 28th birthday.

I guess.. I keep looking for stories of women have successful pregnancies.. or any sort of breakthrough. Anything... just something to make me feel like I wont feel like this for the rest of my life.
Mother to Joseph Lovelace Touchet Jr born on 5/11/11 at 22 weeks due to Preeclampsia and HELLP. Born straight into God's arms. Love you my angel.

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