I had HELLP Syndrome 6 years ago Sept 23rd and have never been the same. I did not have pre-eclampsia at all. I went from elevated blood pressure for several weeks (controlled by BP meds) straight to severe HELLP Syndrome in a matter of minutes. Thank God I was already in the hospital on bed rest and I had a pic line in place. My BP hit 225/156 over a few minutes time and my liver was incredibly swollen. OB did an ER C-section. I delivered at 34 weeks and my son was 4lbs 10oz, apgar 9/9. He stayed in NICU for a month and was released b4 me (he did great with no problems). When I woke up in the recovery room I was in the same excruiciating pain I was in prior to the spinal tap. Again, thank God that my OB recognized I was in HELLP. Over the next few days I worsened: my liver crushed my rt lung & it filled with fluid, I was on a respirator breathing at 100% for me, both kidneys failed, retna separated in my left eye, heart enlarged, etc. I had multiple plasmapheresis transfusions & blood transfusions along with kidney dialysis for a month. I was on standby to be air vac'd to a nearby hospital for a liver transplant. Thankfully my liver started to function again on day 4, slowly. I have NEVER known pain like that (well over a month all the time). My belly was larger after I delivered my son than rt before delivery. My whole body was huge & they were pulling 10lbs of fluid off me each time they did dialysis. My family & friends did not recognize me. The drs had my husband call my family in b/c they thought I would die. My family lives in LA & we are near Cincinnati so they had to fly in....problem was that a major hurricane hit our hometown the same night so my family was evacuated & spread out in different states trying to get to airports to get to me. My brother & his family were hit by a drunk driver the night they were traveling to see me (thank God they weren't hurt but the drunk driver died). I stayed in ICU for nearly a month then TCU. I had 9 specialists attending me. When they discharged me home they forgot to wean me off the morphine so I ended back in the hospital with severe dt's. Later, drs discouraged us from ever getting pregnant again since I had no room for margin. We sought 6 different opinions & all said I probably would not live thru the next pregnancy so we are blessed to have our one and only son. I had to have in home help for the 1st few months at home. And since the HELLP, I have suffered with a multitude of severe symptoms. It has taken 6 yrs but the drs have now discovered that I have primary AND secondary adrenal insufficiency combined (secondary from damage to pituitary during blood loss and primary for same suspected reasons). I also was diagnosed with autoimmune thyroid disease, severe fibromyalgia, a rare migraine disease called hemiplegic migraines that cause me to have stroke like symptoms without the stroke, new unexplained widespread edema and new elevated diastolic pressure (still investigating the new heart symptoms). I'm unable to work & at times unable to get out of bed depending on if I'm in an "episode". My adrenal medication & thyroid meds have been a huge help but I'm nowhere near close to being the person I was prior to the HELLP. It is hard to find people who have been through the HELLP who have the ongoing severe health issues. They did a case study on me and we plan on having the drs include the long term affects in my case study. Despite all my health issues, I can honestly say that I feel so blessed to be alive & be with my amazing son and husband. My husband switched careers & became a nurse - pursuing nurse practioner degree - in order to care for me better. I thank God daily for literally saving my life & my son's (my drs said I am a walking miracle & still make comments when they see me). I wouldn't trade one moment of it! God has given me so much in my family, friends & great drs too. It is hard to persevere thru the ongoing health issues but I remember that there is always someone worse off than me somewhere. I have a lot to be grateful for! Sorry this was so long (I actually left parts of my story out too
). I pray each of you heal from the trauma both physically and emotionally!