3 yr diary of an extremely growth restricted kid

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.

3 yr diary of an extremely growth restricted kid

Postby danielsmom » Mon Mar 12, 2012 01:04 pm

3 years ago, my son was born very tiny, under the chart (less than 0 percentile), at 27 weeks 5 days. We started noticing growth restriction at less than the 2nd percentile at 20 weeks. Most everything that I read, and there's not much for kids in this category, was very grim as far as health and growth prognosis. Most material would say that 90% of kids would catch up in growth by 2 years, EXCEPT for those born in the < 2-5% category, due to early metabolic programming and cell development. So, I wanted to post something positive about him, the exception!

He's now in the 90th percentile for his real age (we quit looking at adjusted age at about 2 years). I'm tall, at 5'9" and my hubby is average at 5'10". Both our family histories run the gamut from really short to really tall.

Here's his 36 month growth chart completed:
growthChart.JPG
growthChart.JPG (136.14 KiB) Viewed 2426 times
Miscarriage Feb 05 & Dec 07
Daniel born Feb 09 at 27w5d, 1 lb 1 oz/12 inches (severe IUGR) due to Severe Pre-E & HELLP. Now tall for age and no complications.
Diagnosed with MTHFR
Cornual Ectopic miscarriage Mar 11
Natalie born 6-5-12 at full term, 7 lb 11 oz & 21.5 inches, progesterone 2-8 weeks (for suspected luteal phase defect), lovenox 6-29 weeks, lda 0-36 weeks, folic.
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Re: 3 yr diary of an extremely growth restricted kid

Postby aajatwins » Tue Mar 13, 2012 02:14 pm

How awesome!! I know that makes your heart just about burst :) thanks for sharing!
Anna (28) - endometriosis
Hubby (27)
Aidan & Jordan - 7.2.09 at 36 weeks. Induction turned emergency c-section due to eclampsia. big healthy toddlers today!
Asa - 10.23.11 at 39 weeks. NO hypertensive issues!! successful VBAC :)
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Re: 3 yr diary of an extremely growth restricted kid

Postby MaisiesMama » Thu Mar 15, 2012 01:12 am

Aw, this is great! Bet it feels amazing :D
Mommy to Maisie, born 7.5 weeks early due to preeclampsia.
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Re: 3 yr diary of an extremely growth restricted kid

Postby mom41 » Fri Mar 16, 2012 08:07 am

It is amazing,a miracle. He is a strong boy ( mentally and physically) and I am sure you and your family has a lot to do with him thriving so well !
So much to be proud of ! congratulations!
son 4/2004 subchorionic hematoma but full term, healthy
1/2011 stillborn twins (IVF) due to severe IUGR/ pre-e 23+3 wks, chronic htn
Jason born 3/21/12, 35w 6 days, healthy 4 lbs 15 oz, 18 in, no pre-e but oligo/iugr, 1 week of NICU for hypoglycemia and mild RDS, doing great ! (thank you labetalol, lda, lovenox and my drs!)
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