I just wanted to share my story to give hope to those who've lost a child to PE and are on their 2nd pregnancies. I lost my son seven years ago due to severe PE he was born sleeping at just 500grms (Severe IUGR) at 23weeks! My protein level if I remember correctly was 3++ and my BP was reading 190/95 or so. Having no knowledge of this condition we were completely shocked and heart broken, the most traumatic incident to have happened to me and my husband. After that we were so put off that we decided not to get pregnant for a while. I was on BP meds for atleast over a month after the delivery. The initial diagnosis was that I was obese and should lose the excess weight before going for 2nd pregnancy. We decided then that we would just enjoy life and forget about having children for a while. After a couple of years (still obese) one day I experienced severe headache, went to my doctor and she found that my BP was elevated 150/90 gave me some meds to get it down and asked me to go home and rest. In the middle of the night I found my heart to be beating extremely fast, my husband and I decided to go in and was admitted. The performed an ECG / blood tests / 24 hr urine tests and found absolutely nothing. Was kept in for observation for a couple of days and was then told as I was still young in my early 30's that meds was not the right way to go and that I must lose weight. I was then referred to a dietician. At the sametime I was asked to go in for an ultrasound of the kidneys just for reference. This is when we found out the 2nd shocking news that one of my kidneys was extremely small in size, was it congentitial or did it happen over a period of time no one could say. In anycase I was told by the doctor to definitely consider losing weight, I lost around 18 kgs in a span of a year or so with lots of exercise and just a good diet. After that we found that my BP levels had become normal. I was advised to have the small kidney removed if I could as it was only functioning at 2% capacity, I had a laproscopy to have that kidney removed. We then consulted with the MFM to check to see whether we could try to get pregnant and were advised that all should be ok and that I will be on LDA as soon as the pregnancy is confirmed upto 34 weeks. Conceiving with a single kidney I was advised was not a problem as well. While trying to get pregnant I maintained a healthy diet and also worked out regularly.
And last year I finally became pregnant once again. I was very closely monitored by a good MFM throughout my pregnancy i.e. regular ultrasounds / doppler scans etc. There were no signs of any protein through out the pregnancy, my BP level remained pretty steady i.e. within acceptable levels up until 24 weeks. Thereafter there was a slight increase however more so due to anxiety and in some cases perhaps what is described as white coat hypertension. The BP machine would beep whenever I was at the doctors but absolutely fine when at home as I was asked to closely monitor my BP at home as well.
The anxiety levels were so high that my doctor asked me to find a means to relax and just think positive as the pregnancy was going very smoothly. I did have quite a few braxton hicks plus alot of acidity. I was also experiencing severe shoulder / arm aches on both sides during nights which did cause alot of nervousness but after doctor's assurances that there was no way it would be what they call an epigastric pain, we relaxed a bit. Anything little that happened triggered us off as the first time PE striked it was very sudden with extremely high BP and proteinuria. I also had repeated UTI's but was told it was normal. The 1st time around the water retention in my feet was severe, this time around I was amazed to see that I could fit into my usual normal shoes
There is hope ladies. We are now considering another baby but the doctor thinks it's perhaps too risky as my bp levels after pregnancy have been slightly elavated but then again only at the doctors at home it's always fine. I have been asked to start taking hypertensives but I think the better option would be to exercise and get back into shape as as it did help with my BP the last time.
