There is hope. Successful pregnancy after severe PE !

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There is hope. Successful pregnancy after severe PE !

Postby sima samuel » Fri May 25, 2012 02:24 am

Hello Ladies,

I just wanted to share my story to give hope to those who've lost a child to PE and are on their 2nd pregnancies. I lost my son seven years ago due to severe PE he was born sleeping at just 500grms (Severe IUGR) at 23weeks! My protein level if I remember correctly was 3++ and my BP was reading 190/95 or so. Having no knowledge of this condition we were completely shocked and heart broken, the most traumatic incident to have happened to me and my husband. After that we were so put off that we decided not to get pregnant for a while. I was on BP meds for atleast over a month after the delivery. The initial diagnosis was that I was obese and should lose the excess weight before going for 2nd pregnancy. We decided then that we would just enjoy life and forget about having children for a while. After a couple of years (still obese) one day I experienced severe headache, went to my doctor and she found that my BP was elevated 150/90 gave me some meds to get it down and asked me to go home and rest. In the middle of the night I found my heart to be beating extremely fast, my husband and I decided to go in and was admitted. The performed an ECG / blood tests / 24 hr urine tests and found absolutely nothing. Was kept in for observation for a couple of days and was then told as I was still young in my early 30's that meds was not the right way to go and that I must lose weight. I was then referred to a dietician. At the sametime I was asked to go in for an ultrasound of the kidneys just for reference. This is when we found out the 2nd shocking news that one of my kidneys was extremely small in size, was it congentitial or did it happen over a period of time no one could say. In anycase I was told by the doctor to definitely consider losing weight, I lost around 18 kgs in a span of a year or so with lots of exercise and just a good diet. After that we found that my BP levels had become normal. I was advised to have the small kidney removed if I could as it was only functioning at 2% capacity, I had a laproscopy to have that kidney removed. We then consulted with the MFM to check to see whether we could try to get pregnant and were advised that all should be ok and that I will be on LDA as soon as the pregnancy is confirmed upto 34 weeks. Conceiving with a single kidney I was advised was not a problem as well. While trying to get pregnant I maintained a healthy diet and also worked out regularly.
And last year I finally became pregnant once again. I was very closely monitored by a good MFM throughout my pregnancy i.e. regular ultrasounds / doppler scans etc. There were no signs of any protein through out the pregnancy, my BP level remained pretty steady i.e. within acceptable levels up until 24 weeks. Thereafter there was a slight increase however more so due to anxiety and in some cases perhaps what is described as white coat hypertension. The BP machine would beep whenever I was at the doctors but absolutely fine when at home as I was asked to closely monitor my BP at home as well.
The anxiety levels were so high that my doctor asked me to find a means to relax and just think positive as the pregnancy was going very smoothly. I did have quite a few braxton hicks plus alot of acidity. I was also experiencing severe shoulder / arm aches on both sides during nights which did cause alot of nervousness but after doctor's assurances that there was no way it would be what they call an epigastric pain, we relaxed a bit. Anything little that happened triggered us off as the first time PE striked it was very sudden with extremely high BP and proteinuria. I also had repeated UTI's but was told it was normal. The 1st time around the water retention in my feet was severe, this time around I was amazed to see that I could fit into my usual normal shoes :) I was asked to get myself admitted immediately if my home BP readings were anything higher than 140/90 and also if I experienced blurred vision or extreme water retention. During my pregnancy I was also doing yoga though only up till wk16 as that's when my braxton hicks became quite painful so I was asked to stop. My this pregnancy as per the doctors was basically pretty much uneventful (phewwww), I was ask to come into the hospital on the first sign of labor pains come week 40 I was still hanging around waiting for the contractions, since I was considered high risk the doctors admitted me when I was 40weeks 2 days. I was still not yet dialated and my cervix didn't seem ready at all even for an induction so I opted for a C-section. I gave birth to a healthy baby girl at 40 weeks 4 days, words cannot describe our happiness. All the anxiety / nervousness etc. was worth it as in the end we were blessed with a little bundle of joy. Though we waited over 6 years to conceive it was well worth it and I believe my lifestyle change i.e. diet / exercise & well loss also played a big part though I firmly believe that obesity was NOT the cause of PE in my case it was probably renal related as I had one small improperly functioning kidney which was also the cause of repeated UTI's.
There is hope ladies. We are now considering another baby but the doctor thinks it's perhaps too risky as my bp levels after pregnancy have been slightly elavated but then again only at the doctors at home it's always fine. I have been asked to start taking hypertensives but I think the better option would be to exercise and get back into shape as as it did help with my BP the last time.
Last edited by sima samuel on Mon May 28, 2012 03:19 am, edited 1 time in total.
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Re: There is hope. Successful pregnancy after severe PE !

Postby cgoodi1 » Fri May 25, 2012 06:42 am

This makes me feel so positive! I'm hoping my next time will be different. My experience was definitely not identical to yours but I lost a baby at 21 weeks and two months after birth still was excreting protein. I'm going in Monday to see if I still have and if so I have to see a nephrologist. I was so sad and devastated but my pressures now are only elevated if I go to the doctors and are great at home. I've started exercising regularly and if everything goes well I've been given the green light to try again in July or August. Hopefully I'll be as lucky as you and get to bring a baby home!
Stillbirth - 21 weeks gestation due to severe preeclampsia, HELLP and IUGR - 15/02/12
Baby girl Aria - Induced due to high blood pressure at 36 weeks + 2 days - 7lbs 3oz - 05/03/13
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Re: There is hope. Successful pregnancy after severe PE !

Postby JB » Fri May 25, 2012 10:28 am

Very happy for you, congratulations! That's great that they discovered your kidney problem and were able to do something about it. Existing kidney disease is a risk factor for preeclampsia, so that certainly could have increased your likelihood of getting it the first time. I think if you get your blood pressure under control again you should be able to try for another baby. After my preeclampsia I was still on blood pressure medication when I got pregnant again (not planned). I am now 36+3 weeks and so far this pregnancy my blood pressure has been steady (and low enough that I am currently off all meds). I'm keeping my fingers crossed and knocking on wood that I can go all the way to my scheduled c-section date. I also only have one kidney, although mine was not lost to kidney disease but because I donated it to my aunt. My mom did lose one of her kidneys to the same disease my aunt has, and she went on to have 5 healthy pregnancies. Is your nephrologist is keeping a close eye on your remaining kidney, since they don't really know why the other one was so small?
1st - miscarried at 11 weeks in Dec. 2009
2nd - baby girl born Mar. 2011 at 29 weeks 6 days due to severe PE
3rd - baby boy due June 19th, 2012
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Re: There is hope. Successful pregnancy after severe PE !

Postby Petunia » Fri May 25, 2012 10:57 am

Thank you for posting this! I lost my first baby, he was born sleeping at 33 weeks. I'm currently just about 20 weeks along with what I pray is my rainbow baby boy, it always is so wonderful to hear stories of success after loss. Congratulations on your new baby girl!!
Married the love of my life 7/11/2009
Our first child, Peyton Mark, was born sleeping at 33 weeks on Oct. 25th 2011. Developed pre-e at 32 weeks.
Pregnant again with what I pray is our rainbow baby, due Oct. 14th 2012. Will induce labor no later than 38 weeks if we make it that far!
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Re: There is hope. Successful pregnancy after severe PE !

Postby sima samuel » Sun May 27, 2012 08:53 pm

@Petunia
Sorry for your loss but happy that you are pregnant and keeping my fingers crossed for you. My MFM always use to say think positive and all will be positive :) !

@JB
Congratulations dear and you are almost there so all will go well ! So your mum and you are both clear examples of the fact that having children with a single kidney is absolutely no problem, I remember being told off by one of the MFM's in the past when we were still trying for a 2nd baby that we should consider adopting as having children was too risky... :cry: ! I am so glad that we ignored his every word. Yes I am having regular follow ups with the nephrologist and just gave blood work for kidney function a month ago, he thinks I should consider hypertensives as during my last visit my BP was elevated. However I am still in my 30's and once on hypertensives always on hypertensives which is why I will ask him for an additional few months so that I could start working out and lose the baby weight which has remained. I know for sure exercise and a strict diet will help.

@ cgoodi1

So sorry for your loss. You are going in the right direction, having all checked out. In my case it was sad that after the loss of my son no one even mentioned kidney ultrasound or nephrologist, I found out only after 3 years. Hope you will get the green light soon, exercise did wonders for my BP.
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