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PE,HEELP,Sheehan's Syndrom & Now Autoimmune Disorders

Have you suffered from HELLP syndrome or had a pregnancy complicated by an underlying disorder? Discuss your concerns here

PE,HEELP,Sheehan's Syndrom & Now Autoimmune Disorders

Postby shadow205 » Wed Oct 17, 2012 08:09 pm

by shadow205 (68 Posts), Wed Oct 17, 2012 08:09 pm

Hi all, it's been quite awhile since I posted here. My 1st post about my Daughter's experience was in August 2004. Her I am 8 years later still trying to figure out how it all is related. The bottom line is she has never been her healthy self since her pregnancy in 2004. I don't want to scare anyone but even though most people have a rapid recovery after delivery, some do not. It is for those who do not that I write this. It's been 8 years for my daughter. We thought that the nightmare was over after 2 1/2 years of being on prednisone for severe adrenal insuffiency which was caused by HEELP/Sheehan's. Her adrenal gland started working again and she was able to stop her BP meds and she became pregnant with her 2nd child. It was a relatively uneventful pregnancy and she had a beautiful, healthy baby girl. My Daughter's health was never the same again. She was sick a lot during the year after her 2nd child's birth. 13 months after the birth, my Daughter was critically ill and hospitalized for over a month. After many Specialists and every tests imaginable including a bone marrow biopsy, she has been diagnosed with ANCA Associated Vasculitis, Still's disease, Churg Strauss syndrome, Chronic Fatigue Syndrome, Fibromyalgia & Sweets Syndrome. She has undergone chemo and is on some very serious drugs. Last month she was sent to be evaluated for a lung transplant. We learned this week that she might have to do another round of chemo in 8 weeks. I would be interested in hearing from anyone who has been diagnosed with an Autoimmune Disorder after a pregnancy complicated by PE, HEELP or Sheehan's.
Mother to Amy who had PE, HELLP & Sheehan's syndrome with 1st pregnancy 2004
2nd pregnancy 2009 no complications during pregnany but now battling rare autoimmune disorders, [b]Still's Disease & ANCA Associated Vasculitis. Churg Strauss Syndrom, Sweet's syndrome [Raynaud's phenomenon/b]
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Re: PE,HEELP,Sheehan's Syndrom & Now Autoimmune Disorders

Postby tree » Sun Oct 21, 2012 09:04 pm

by tree (819 Posts), Sun Oct 21, 2012 09:04 pm

Hi Shadow - I am sorry to hear about everything your daughter has been through since having her kids. We have posters who have been diagnosed with autoimmune disorders including rheumatoid arthritis, various forms of lupus, and a few other conditions. I can't think of anyone who has a story quite like your daughter's. Sheehan's itself is very rare. I haven't found any peer-reviewed medical information on this combination of conditions, but I did find one blog that discusses vasculitis and Sheehan's here: http://blog.hypogal.com/
I hope your daughter is able to find some effective treatments soon.
Daughter born April 2009 at 35 weeks due to Class 1 HELLP
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Re: PE,HEELP,Sheehan's Syndrom & Now Autoimmune Disorders

Postby princess purr » Tue Oct 23, 2012 05:10 pm

by princess purr (1092 Posts), Tue Oct 23, 2012 05:10 pm

It sounds like your daughter has been through so much :-( I also had preeclapsia in 2004 (November) My daughter was born early and passed away. Since they I found out I have Crohn's and my ANA is high, so I may have another autoimmune problem that just has not been discovered yet.
Val (34) & Carlos (32)
Married: April 29th 2011
Veronica Rosina, 11/25/2004-11/27/2004
Born at 26.5 weeks (1 lb 4oz, 14 inches) because of severe preeclampsia (doc says I was on my way to HELLP but not there yet)
Nicholas Robert, 11/22/2013 7 lb 7oz 19.5 inches, born at 36 weeks (due to previous classical c-section) PE FREE!!!!!!
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