by shadow205 (68 Posts), Wed Oct 17, 2012 08:09 pm
Hi all, it's been quite awhile since I posted here. My 1st post about my Daughter's experience was in August 2004. Her I am 8 years later still trying to figure out how it all is related. The bottom line is she has never been her healthy self since her pregnancy in 2004. I don't want to scare anyone but even though most people have a rapid recovery after delivery, some do not. It is for those who do not that I write this. It's been 8 years for my daughter. We thought that the nightmare was over after 2 1/2 years of being on prednisone for severe adrenal insuffiency which was caused by HEELP/Sheehan's. Her adrenal gland started working again and she was able to stop her BP meds and she became pregnant with her 2nd child. It was a relatively uneventful pregnancy and she had a beautiful, healthy baby girl. My Daughter's health was never the same again. She was sick a lot during the year after her 2nd child's birth. 13 months after the birth, my Daughter was critically ill and hospitalized for over a month. After many Specialists and every tests imaginable including a bone marrow biopsy, she has been diagnosed with ANCA Associated Vasculitis, Still's disease, Churg Strauss syndrome, Chronic Fatigue Syndrome, Fibromyalgia & Sweets Syndrome. She has undergone chemo and is on some very serious drugs. Last month she was sent to be evaluated for a lung transplant. We learned this week that she might have to do another round of chemo in 8 weeks. I would be interested in hearing from anyone who has been diagnosed with an Autoimmune Disorder after a pregnancy complicated by PE, HEELP or Sheehan's.
Mother to Amy who had PE, HELLP & Sheehan's syndrome with 1st pregnancy 2004
2nd pregnancy 2009 no complications during pregnany but now battling rare autoimmune disorders, [b]Still's Disease & ANCA Associated Vasculitis. Churg Strauss Syndrom, Sweet's syndrome [Raynaud's phenomenon/b]