Why do babies die from pre-e even when viable stage?

This section is for discussions with other women who have probably been through the same signs/symptoms that you may be experiencing. Please note, we cannot offer medical advice and encourage members to discuss their concerns with their doctors. New members, come on in and introduce yourself!

Why do babies die from pre-e even when viable stage?

Postby whereowhere » Sun May 12, 2013 10:03 pm

Hi, I am in my second pregnancy after losing my twins at 21 weeks to severe pre-e. I am currently almost 20 and 1/2 weeks. My MFM gave me hope before I became pregnant when she said that though I have a high risk of recurrent preeclampsia, I may get it at a time when a baby could survive, at an older gestational age, even as early as 28 weeks she gave me great hope. Yet, on here I am reading of all of the losses of babies even at an age where technically they could survive, and they do not make it. I am just curious why there are many losses even at an age where the baby could survive. I am trying to have hope, but feeling nervous even if I get to an older gestational age this pregnancy. Anyone care to share so I can start to wrap my mind around what may be the risks I may still face even at a further stage? So far, my baby is measuring 3 days older, so she seems to not be going the way of IGR, at least at this point.
Ectopic Pregnancy-2010

Miscarriage-2011

Lost my beautiful boy & girl twins at 21 weeks to severe preeclampsia-2012
Mommy & Daddy will love you forever my sweet babies!

Pregnant again, due September 26, 2013. Praying for a pre-e free pregnancy.

Delivered a healthy baby girl at exactly 37 weeks, pre-e free! Had some hypertension post-partum but resolved with BP meds.



C-section planned for September 5, 2013 at exactly 37 weeks.
whereowhere
Registered User
 
Posts: 56
Joined: Sat Jul 28, 2012 04:18 pm

Re: Why do babies die from pre-e even when viable stage?

Postby eleni » Mon May 13, 2013 04:40 pm

I'm sure some of our able moderators will have more expert sounding responses, but from one affected woman to another, I would say the answer is "it depends." Usually babies die because of a wide variety of issues related to their prematurity. A baby born before term is usually going to face health challenges, even as sophisticated as neonatal medicine has become. Sometimes those babies have the added insult of intrauterine growth restriction (IUGR) - a fancy term for the placenta-wasn't-delivering-enough-nutrition-to-the-baby and his/her size was compromised. And sometimes preeclampsia causes the placenta to tear away from the uterine wall (placental abruption) which instantly starves the baby of oxygen and nutrients.

There are no guarantees in birth and those of us who have lost babies - whether first or subsequent babies - got dealt a lousy hand. Talking about it and sharing our experiences helps the healing process. Reading only about the loss of babies is not a balanced perspective - many, many babies do live and are born healthy. The most important thing for you is to be seen by a specialist in preeclampsia and to have a doctor you are comfortable with - in their skills in this area as well as their compassion for the extra anxiety you may be feeling. Doing all you can do to be healthy before you get pregnant and throughout pregnancy, staying vigilant for the usual signs and symptoms, and being in close communication with your care provider are the best things you can do.

We wish you the healthiest, stress-free pregnancy possible!

Eleni
Eleni Z. Tsigas
Executive Director
Preeclampsia Foundation

2x PE survivor; 29 week daughter died, 35 week IUGR son made it after 2 weeks of NICU fun; 3rd pregnancy PE-free resulted in strapping 8 pounder son, born at term.
eleni
Site Admin
 
Posts: 464
Joined: Wed Jan 21, 2004 11:14 pm

Re: Why do babies die from pre-e even when viable stage?

Postby whereowhere » Sat May 18, 2013 10:18 am

eleni wrote:I'm sure some of our able moderators will have more expert sounding responses, but from one affected woman to another, I would say the answer is "it depends." Usually babies die because of a wide variety of issues related to their prematurity. A baby born before term is usually going to face health challenges, even as sophisticated as neonatal medicine has become. Sometimes those babies have the added insult of intrauterine growth restriction (IUGR) - a fancy term for the placenta-wasn't-delivering-enough-nutrition-to-the-baby and his/her size was compromised. And sometimes preeclampsia causes the placenta to tear away from the uterine wall (placental abruption) which instantly starves the baby of oxygen and nutrients.

There are no guarantees in birth and those of us who have lost babies - whether first or subsequent babies - got dealt a lousy hand. Talking about it and sharing our experiences helps the healing process. Reading only about the loss of babies is not a balanced perspective - many, many babies do live and are born healthy. The most important thing for you is to be seen by a specialist in preeclampsia and to have a doctor you are comfortable with - in their skills in this area as well as their compassion for the extra anxiety you may be feeling. Doing all you can do to be healthy before you get pregnant and throughout pregnancy, staying vigilant for the usual signs and symptoms, and being in close communication with your care provider are the best things you can do.

We wish you the healthiest, stress-free pregnancy possible!

Eleni


Thanks, Eleni, my twins passed away from severe prematurity so I had no knowledge of what else can cause death even at a "survivable" stage. Thanks for sharing your knowledge.
Ectopic Pregnancy-2010

Miscarriage-2011

Lost my beautiful boy & girl twins at 21 weeks to severe preeclampsia-2012
Mommy & Daddy will love you forever my sweet babies!

Pregnant again, due September 26, 2013. Praying for a pre-e free pregnancy.

Delivered a healthy baby girl at exactly 37 weeks, pre-e free! Had some hypertension post-partum but resolved with BP meds.



C-section planned for September 5, 2013 at exactly 37 weeks.
whereowhere
Registered User
 
Posts: 56
Joined: Sat Jul 28, 2012 04:18 pm

Re: Why do babies die from pre-e even when viable stage?

Postby princess purr » Thu May 30, 2013 11:44 am

My daughter was born at 26.5 weeks, which is viable, but only 80% of babies born that early make it. Sadly, we were in the 20% even babies born full term can develop problems and not make it. It is why I hate statics. Because a 99.9 chance of everything being okay sounds great....unless you are the unlucky .1%
Val (34) & Carlos (32)
Married: April 29th 2011
Veronica Rosina, 11/25/2004-11/27/2004
Born at 26.5 weeks (1 lb 4oz, 14 inches) because of severe preeclampsia (doc says I was on my way to HELLP but not there yet)
Nicholas Robert, 11/22/2013 7 lb 7oz 19.5 inches, born at 36 weeks (due to previous classical c-section) PE FREE!!!!!!
User avatar
princess purr
Registered User
 
Posts: 1092
Joined: Sun Dec 19, 2004 11:50 pm

Re: Why do babies die from pre-e even when viable stage?

Postby Guest » Thu May 30, 2013 02:20 pm

princess purr wrote:My daughter was born at 26.5 weeks, which is viable, but only 80% of babies born that early make it. Sadly, we were in the 20% even babies born full term can develop problems and not make it. It is why I hate statics. Because a 99.9 chance of everything being okay sounds great....unless you are the unlucky .1%


I am so sorry you were not one of the 80% to be able to return home with a healthy baby. I think I know what you mean about statistics. Most women who develop preeclampsia develop it later term, and yet I was one of the VERY few to develop severe preeclampsia so early, at 21 weeks, when there was no chance even of survival. I was one of those who was in the 1%. I think the only reason I would want to look at statistics is simply for hope that I could be one of the 99.9% this time around.
Guest
Registered User
 

Re: Why do babies die from pre-e even when viable stage?

Postby princess purr » Thu May 30, 2013 03:03 pm

Anything is possible, I did ask my doc what my chances where this time, and I honestly can't remember the number because last time there was only I small chance I would great preeclampsia at all, a really small chance it would be that early, and that another small chance my baby wouldn't make it. It is such gamble. MOST women go on to have successful pregnancies after losses, but not all. I won't be happy until they can either prevent or cure preeclampsia. All we can do is trust in our docs, and hope and pray that we are in the good percent.
Val (34) & Carlos (32)
Married: April 29th 2011
Veronica Rosina, 11/25/2004-11/27/2004
Born at 26.5 weeks (1 lb 4oz, 14 inches) because of severe preeclampsia (doc says I was on my way to HELLP but not there yet)
Nicholas Robert, 11/22/2013 7 lb 7oz 19.5 inches, born at 36 weeks (due to previous classical c-section) PE FREE!!!!!!
User avatar
princess purr
Registered User
 
Posts: 1092
Joined: Sun Dec 19, 2004 11:50 pm


Return to Ask the Experienced

Who is online

Users browsing this forum: No registered users and 2 guests

cron