Slow Onset?

Have you suffered from HELLP syndrome or had a pregnancy complicated by an underlying disorder? Discuss your concerns here
sam10
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Re: Slow Onset?

Postby sam10 » Mon Aug 12, 2013 09:19 pm

:-) for making it to 35 weeks. I remember how relieved I was once I hit 35 weeks. Fingers crossed.
~Julija (42)
MC 3/2009 and 3/2011
H (1/1/2010-1/7/2010) - forever loved and missed; severe PE with Hellp; partial placental abruption, classical c-section at 25.6 weeks
M (Nov. 2012, born at 35.4 weeks) - severe PE


Our pain has been put into words, placed into empty cradles, to remember that all our babies lived, that they mattered and always will. - Field of Cradles http://www.fieldofcradles.org/

Bookworm1983
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Re: Slow Onset?

Postby Bookworm1983 » Mon Aug 12, 2013 07:57 am

Update: While I have been fortunate that things have been relatively stable for a while, I have had steadily increasing BP for 3 days now. I have made it to 35 weeks, which feels like a huge victory. My diastolic is up to 85, but hasn't hit 90 yet, so I'm trying to take it easy and get a few more days before following up with the doctor to see about next steps. It feels like deja vu, but I am armed with so much more information now that I feel relatively prepared. Here's to hoping for just a few more days/weeks....

tree
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Re: Slow Onset?

Postby tree » Sat Jun 29, 2013 01:14 pm

Bookworm - I started spending a lot more time in major pain, and I started throwing up. I am NOT a puker. It was obvious to everyone (except me) that something was seriously wrong at that point. I also turned yellow and really felt flu-ish and terrible. As a point of reference, I had real influenza this winter. Everyone else in my house said it was the worst/sickest/nastiest bug ever. It was not nearly as bad as being pregnant with HELLP.

I suggest going in to L&D if anything changes, gets worse, or you just can't take it any more. Always call if you wonder about anything. No doctor ever died answering the phone. Leave the worrying to them and go in if you think things are starting to head downhill. I hope that your body can hold out for a while.
Daughter born April 2009 at 35 weeks due to Class 1 HELLP

Bookworm1983
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Re: Slow Onset?

Postby Bookworm1983 » Fri Jun 28, 2013 12:26 am

Tree: How did you know when the ongoing discomfort got to the point that it was serious enough to need addressed? Last time for me, I only knew because my water broke spontaneously. I can't actually say that the URQ pain got any worse by the time my liver enzymes went up, which makes it hard for me to know when I should call the doctor or just wait it out.

Bookworm1983
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Re: Slow Onset?

Postby Bookworm1983 » Thu Jun 27, 2013 11:43 am

Thanks for checking in. I am still very thankful to be limping along. I have days where I literally feel like my liver is going to burst, and then days where the pain is no more than a dull ache. My blood pressure has stayed at a nice and steady 100/70 (give or take a few points) for a few weeks now, so I am taking that as a good sign. I found out that I am spilling ketones this week, so I am hoping to get that under control as it appears to be due not to dehydration but my metabolism going faster than my caloric intake can keep up. I have swelling also, but nothing terribly alarming yet. I am so happy to have reached 29 weeks, and I hope I have several more left in me still!

tree
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Re: Slow Onset?

Postby tree » Wed Jun 26, 2013 09:01 pm

How are you doing?
I limped along with transient URQ pain for a few weeks before my liver enzymes spiked up. I don't think that the pain changed all that much, but I started to have serious nausea and vomiting when things got bad. I would watch out for any worsening symptoms or new symptoms and go in immediately if something changes. I hope you can hang in there for a while.
Daughter born April 2009 at 35 weeks due to Class 1 HELLP

Bookworm1983
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Re: Slow Onset?

Postby Bookworm1983 » Wed Jun 12, 2013 03:55 pm

If the URQ pain gets dramatically worse again and/or I have a reading of 140/90 or higher, I am supposed to go to L&D. The URQ pain comes and goes for me, so it is hard to gauge from that alone. I plan to at least call her office if something doesn't feel right. She is still going to run labs at each appointment to keep an eye out for changes, which makes me feel a bit better...

alviarin
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Re: Slow Onset?

Postby alviarin » Tue Jun 11, 2013 05:47 pm

Thanks for the update. I'm glad to hear your latest labs were ok, but sorry to hear your BP has been acting up.

Has your doctor given you any guidelines on what symptoms or pressure readings warrant a phone call or a trip to L&D? If not, it might be good to discuss at your next appointment.
Hypothyroid mom to
Connor (severe pre-e at 38 weeks)
Claire ("mild" pre-e at 37 weeks)
Annabelle (chronic HTN & GD, superimposed pre-e @34 weeks, induction @37 weeks)

Bookworm1983
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Re: Slow Onset?

Postby Bookworm1983 » Tue Jun 11, 2013 08:10 am

Laura, thank you so much for sharing this; it was exactly what I needed to hear. Sometimes you feel a little crazy still telling the doctor that something hurts when the numbers don't back it up yet. It's good to know that I'm not the only one who has had an experience with symptoms like this, and it sound like it is smart for me to still be watchful. Thank you for the encouragement!

laura681
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Re: Slow Onset?

Postby laura681 » Mon Jun 10, 2013 08:03 pm

I had HELLP with a liver rupture with my first pregnancy and post-partum Preeclampsia with my second pregnancy. Throughout my second pregnancy I had upper right quadrant pain that was severe enough to make me go to the hospital a few times. My liver enzymes were always normal and no protein in my urine. I had a scheduled c-section at 40 weeks and thought I was in the clear until my pulse dropped and bp shot up after I had been released from the hospital. I went back to the hospital and was re-admitted. Four days later I finally convinced them that I was developing post-partum PreE and they started mag. I felt better almost immediately.

All this to say, be on guard and don't be afraid to have your blood drawn each week. It will ease your mind to know that your enzymes are normal! Also, you know your body and if something isn't right please call your doctor. Better to over test in my opinion and have a happy, healthy outcome!

Best of luck!


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