Pregnancy after Severe Preeclampsia HELLP @ 23 wk

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Pregnancy after Severe Preeclampsia HELLP @ 23 wk

Postby rbea » Sun Jul 21, 2013 02:54 pm

I just needed to know if there was any successful pregnancies with women who have had severe Preeclampsia and HELLP earlier than 26 weeks.
Alive, healthy babies.

I almost died and I lost my daughter in the hospital and wanted to know if there was any realistic positive outlook.
rbea
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Re: Pregnancy after Severe Preeclampsia HELLP @ 23 wk

Postby whereowhere » Sun Jul 21, 2013 05:34 pm

Hi, I am so sorry for your loss. I hope you don't mind hearing from someone who hasn't delivered a live baby yet. But I am feeling hopeful. I lost twins last year at exactly 21 weeks. Today I am 30 weeks and 3 days with no signs of PE yet. I have made it more than 9 weeks past where I was last time. I hope it gives you some hope. They gave me a 60% chance of recurrence in a subsequent pregnancy. But so far so good...
Ectopic Pregnancy-2010

Miscarriage-2011

Lost my beautiful boy & girl twins at 21 weeks to severe preeclampsia-2012
Mommy & Daddy will love you forever my sweet babies!

Pregnant again, due September 26, 2013. Praying for a pre-e free pregnancy.

Delivered a healthy baby girl at exactly 37 weeks, pre-e free! Had some hypertension post-partum but resolved with BP meds.



C-section planned for September 5, 2013 at exactly 37 weeks.
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Re: Pregnancy after Severe Preeclampsia HELLP @ 23 wk

Postby angieb » Sun Jul 21, 2013 08:18 pm

Hi there.

I'm so sorry for your loss.

We lost our daughter in 2009 after I developed HELLP at 23 wks. I have since had two relatively healthy pregnancies after it, a 36 weeker and 37 weeker and no HELLP or pre-e either time. I was on blood thinners and closely monitored by my MFM (a high risk doctor) and OB.

I'm nt great at checking this website, feel free to email me at angiew901@msn.com if you have any other questions.
Me (29) DH (30)
#1-Olivia Caetlyn-9-28-09-9-28-09, 23+2 wks, emergency classic c-section, class I HELLP, IUGR
#2- Lucas Oliver (rainbow baby)- April 2011, 36+2 wks, HELLP and pre-e free! (lovenox and LDA pregnancy)
#3-Matthew, late October 2012...mostly normal, 37 wks, (lovenox and LDA again)
My blog: http://www.butterflies-and-rainbows.blogspot.com/
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Re: Pregnancy after Severe Preeclampsia HELLP @ 23 wk

Postby rbea » Mon Jul 22, 2013 02:14 pm

Whereowhere, I am rooting for you!
Angie, I'm so happy for you and your expanding family.
Did the Doctor's advise either of you to not have another pregnancy, or give you a long wait time?
Lately I've been feeling like an empty vessel, I was so anxious for my daughter to come into this world.
I wanted to know if I can look forward to that same kind of happiness.
Thank you very much!
I'm still in so much grief that only women here will understand. Although I know that I am not alone losing a child, and grief will linger but dull as time will allow, a disease like this is hard to wrap around my brain. People who haven't had pre-e don't know how much of a guilt trip, frustrating, angry experience it can be. It's the thought of preeclampsia involving my body working against me, the fact that a baby with a beating heart is impossible to save without maternal death, the fact that there is no way to prevent it. It is like poison to my mind!
I always think now about how many weeks I would be, and how if I could have held on longer she could have been here in my presence, and able to see me like I've seen her, and felt her.
And sometimes I feel that maybe motherhood was never meant for me, maybe there is some underlying cause I'm not seeing, that God is trying to work his ways in something I am too small to understand, and be grateful he made it so. Makes me mad.
And I've had people who I hadn't even asked for advice tell me really dumb things. Even though I know they mean well, they say things like
"Don't worry you'll get pregnant again"
or
"God will come through for you, and you will have a child."
or
"Once you become spiritually whole, more connected to your husband then you are ready for a full grown baby."
Um, I'm not concerned right now with becoming pregnant, I mourn for Arielle (my daughter.)
Why are you giving me the connotation that God is testing my effectiveness of being a good person or whatever?

I'm not very religious like some of these well meaning people, but I know I took care of myself, I treat others well, I go to work. I do whatever I can.

I just vented right now.
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Re: Pregnancy after Severe Preeclampsia HELLP @ 23 wk

Postby sam10 » Mon Jul 22, 2013 08:48 pm

This is a good place to vent :D Your feelings sound so familiar to me. I clearly remember that I thought I should have refused to give birth, refused to get a c-section and all would be fine.
We believe we have it all under control, until we realize we actually don't. PE makes that just so very clear. I stopped wondering whether this is fair or not. At some point I just accepted it (but it took quite a while and seemed like hard work).
Sorry you had your share of "well-meaning" comments. This is the last thing you need.

I developed PE around 20 weeks and delivered at 26. My second pregnancy was not PE free, but it started much later and I was able to bring home a healthy baby girl. Have you seen a high-risk OB (also called MFM) for a consultation? S/he would evaluate your case of PE and check your health background. Based on that you'd be given a re-currance risk that applies to you only. You would then also discuss your care during a pregnancy. Here is a list of high-risk doctors. Alternatively you can also check the online listings of your local hospital.
https://www.smfm.org/MFM%20Member%20Locator%20Page.cfm

Sending you hugs
~Julija (40)
MC 3/2009 and 3/2011
Henry (1/1/2010-1/7/2010) - forever loved and missed; severe PE with Hellp; partial placental abruption, classical c-section at 25.6 weeks
Matilda (Nov. 2012, born at 35.4 weeks) - severe PE


Our pain has been put into words, placed into empty cradles, to remember that all our babies lived, that they mattered and always will. - Field of Cradles http://www.fieldofcradles.org/
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Re: Pregnancy after Severe Preeclampsia HELLP @ 23 wk

Postby rbea » Tue Jul 23, 2013 08:19 am

If I do decide to become pregnant again, we will be seeing a high risk specialist, I've met her and she seems very informed.
And she was very recommended by all the Doctors, I had seen her before when my nuchal translucency was a little high and she had bloodwork done and Arielle was a normal healthy girl at 15 wks.
This forum really has helped me.
rbea
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Re: Pregnancy after Severe Preeclampsia HELLP @ 23 wk

Postby sam10 » Tue Jul 23, 2013 09:52 am

Oh good that you have already a doctor whom you seem comfortable with. It helps a lot to have a good support team, and that includes your doctors and nurses, during a subsequent pregnancy.
~Julija (40)
MC 3/2009 and 3/2011
Henry (1/1/2010-1/7/2010) - forever loved and missed; severe PE with Hellp; partial placental abruption, classical c-section at 25.6 weeks
Matilda (Nov. 2012, born at 35.4 weeks) - severe PE


Our pain has been put into words, placed into empty cradles, to remember that all our babies lived, that they mattered and always will. - Field of Cradles http://www.fieldofcradles.org/
sam10
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Posts: 1433
Joined: Sat Feb 20, 2010 12:04 am
Location: Boston, MA

Re: Pregnancy after Severe Preeclampsia HELLP @ 23 wk

Postby angieb » Tue Jul 23, 2013 09:16 pm

What awful awful things people have said to you! I don't know if I'd still be speaking to anyone that said something like that to me.

As far as trying again, my doctors advised me to wait 6 months for my c-section incision to heal. My lab work and everything else was normal before I left the hospital or they would have likely advised me to wait for my body to be as close to normal again as possible. I desperately wanted to be pregnant again as soon as possible but in hindsight I am glad it took me about a year to get pregnant again. The first year of grieving for your baby is so very hard, and subsequent pregnancies-even normal ones- after a loss are also extremely extremely difficult. It would have been really ugly, if I had gotten pregnant sooner.
Me (29) DH (30)
#1-Olivia Caetlyn-9-28-09-9-28-09, 23+2 wks, emergency classic c-section, class I HELLP, IUGR
#2- Lucas Oliver (rainbow baby)- April 2011, 36+2 wks, HELLP and pre-e free! (lovenox and LDA pregnancy)
#3-Matthew, late October 2012...mostly normal, 37 wks, (lovenox and LDA again)
My blog: http://www.butterflies-and-rainbows.blogspot.com/
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