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23 weeks and pre e on its way... second time around here

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23 weeks and pre e on its way... second time around here

Postby meekonserj » Sat Aug 31, 2013 09:57 am

by meekonserj (36 Posts), Sat Aug 31, 2013 09:57 am

I am 23 weeks pregnant with my second daughter. Unfortunately I am back here. I don’t believe I ever posted about the outcome of my previous pregnancy, so I will give you all a little background and then get into what is going on in this current pregnancy. PLEASE oh wise ladies, give me some feedback! :)
My daughter Brielle was born in July 2011. Around 20 weeks my blood pressure started to go wonky and I had some strange symptoms that I was concerned about. My OB at the time was not concerned in the least, so I went to my family practitioner who sent me immediately to an OB at her practice. This OB was great and genuinely concerned. He had me on weekly visits from that point on. At my 20 week ultrasound, we found that Brielle was only in the 26th percentile. Not bad, but small. My blood pressure continued to stay high but stable. I had ultrasounds every visit, and OB would check B’s growth every couple of weeks. She was steadily declining in her growth. She went from 26% to 12% to 8% to below the charts.
As far as protein, I had a baseline done at 6 weeks because of an underlying condition of a crushed artery. It was at 0. When my blood pressure started skyrocketing around 25 weeks, I started weekly 24 hour urine tests. That stayed at 0 until 27 weeks, where it rose to a low, 81. 30 weeks it was at 208 and 33 weeks 289. All under the cut off for pre-e. But my blood pressures went from 140-160/90-100 around 25 weeks and got up to 160-170/100-110 towards the end. I was on nifedipine, and then switched to labetelol somewhere down the road. I was in the hospital on and off this whole time, and having biweekly NSTs because of B’s size.
Finally, at 36 weeks when I had a growth scan for the first time since 33 weeks (for whatever reason) we realized that B had not gained any weight at all in the last 3 weeks. We scheduled induction for the next week. Why we waited a week I don’t know…So Brielle had a whole month of no growth. She was born at 4 lbs 15oz. Completely healthy and strong as can be, but tiny. She wasn’t on the charts at all. Now, at 2 years old she is still a tiny peanut, and just made it into the first percentile!
Onto now! This pregnancy has seemed pretty decent. My blood pressure never fully returned to normal, and fluctuated between normal and 130/90ish. So I got back on blood pressure meds (labetelol) right away, and it kept my bp to normal for the most part. Until the past couple of weeks. Especially this last one, it has been 155-160/85-95 all week. So my OB had me come in on Tuesday. He sent me home with my first 24 hour urine for this pregnancy! Oh what fun! Anyways, my results from that came back today and the nurse said its “within normal limits,” and was very hesitant to give me a number. She knew that I knew my stuff and would be concerned. So finally I called back and she gave it to me. My protein is at 23 weeks is 201. Of course under the cut off, but that’s where I was at 30 weeks with Brielle! And I was on moderate bedrest then from 25ish weeks and strict bedrest where I couldn’t even sit up from 30 weeks! So 7 weeks of laying ALL the time. Is that what is in store for me again (with a toddler)? Or is this a faster moving pre-e?? I’m so worried about both the baby and myself! Or is this not even a time to be concerned yet, since the protein isn’t over 300? I know it goes into the thousands so I feel like complaining about 200 and being scared of that may be silly. As far as symptoms go, I have had “the” horrible headache, getting worse every day, lots of floaters in my eyes- I call them ants because that’s what it looks like for me, some ankle swelling which could just be normal, and I just absolutely know when my blood pressure goes up, I can feel it. My pulse has been extremely high (before I became anxious over all this) and sometimes I find it hard to breathe. Please, tell me honestly- do I have a reason to be concerned? And has anyone had a story similar in any way? I would love some insight, advice, or stories! Thank you so much for being here for me AGAIN to fall back on! I love the support on this site! <3
Lauren, married to Nick
7/19/2011~Brielle Mae was born @ 37w5d (severe IUGR, PIH, mild pre eclampsia)
Aria Nicole- due on Christmas Day 2013
meekonserj
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Re: 23 weeks and pre e on its way... second time around here

Postby MomTimesThree » Sat Aug 31, 2013 12:32 am

by MomTimesThree (563 Posts), Sat Aug 31, 2013 12:32 am

Given your history and your unstable pressures and symptoms in this pregnancy I think you are right to be concerned. Have you been seen by a maternal fetal medicine doctor (high risk/peri)? I would want a referral to one right away.

You mentioned this was your first 24 hour of this pregnancy- often in a subsequent pregnancy a 24 hour is done early in the pregnancy to get a baseline as there can be damage to the system from the first pregnancy or unmasked chronic issues. In our 3rd pregnancy our baseline at 10 weeks was around 200... so later when we did 24 hours and were at 300 yes it was all moving in the wrong direction, but we took it with a grain of salt (no pun intended!) because it was only 100 more than I started at.

I would really want to be sure I was being seen by a high risk doctor who could review my history- and what has been going on so far with this one. I'm a lil' concerned that given your history and the need for meds so early on that a 24 hour wasn't started with. Have you also had a full blood work up in between pregnancies or in this one to check for underlying disorders? And is baby getting regular growth checks?

Keep posted as you can-
Lauren
2008-Our Baby Girl, PTL born too early at 30w6d, Fought so hard... Forever Loved & Missed
2010- Lil' Bro, Pre-E at 29 weeks... Induced at 36w6d, Born 37w
2012- Lil' Sis, Super-imposed pre-e at 25 weeks, PTL & GD at 35 weeks, Evicted 36w
MomTimesThree
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Re: 23 weeks and pre e on its way... second time around here

Postby meekonserj » Sat Aug 31, 2013 02:39 pm

by meekonserj (36 Posts), Sat Aug 31, 2013 02:39 pm

Thank you so much Lauren! ( Nice name by the way! Its mine too :) I don't know why my ob didn't do a baseline. I did ask in the beginning and he said we don't need to worry about it yet. I think because my numbers never got too terribly High with Brielle and my baseline was always 0 before. But its definitely a bummer that we didn't because I see the advantages of doing so. my ob is a high risk doctor at one of the most prestigious hospitals in the country. he is actually the head ob now. I completely trust him with both mine and my baby's lives. He has sent me to a few specialists to check my blood flow during this pregnancy and it is OK while laying down for the ultrasounds but sitting or standing changes that. I did not have any blood work in between pregnancies. I will push for that this time. I think the reasoning for this though is because he fully believes the reason is my crushed arteries. And he also believes I have POTs syndrome most likely caused by my crushed arteries. this is where when you stand up your pulse goes crazy high and can cause your blood pressure to do the same.
I will be having growth checks every two weeks from now on. He will start NSTs when he feels its necessary. my next appointment is on sept 9, I'm so anxious for this one because it will be the first time I actually talk to him and not the nurse since I found out my 24 hour results. I had a blood workup this past week as well, and when the nurse called to tell me the results she again just said "within normal limits" and it sounded a little fishy like maybe it was elevated. it could just be my paranoia! Haha. I wish I had asked her for the specific numbers, but I'm not too familiar with them so I wouldn't have known what she was talking about.
Oh and as foe the growth checks, I'm not sure that I mentioned how they are going. this is what I have been worried about the last few weeks. Baby is small. not iugr yet but has been between t11%-19%. With my iugr history, I am suspecting she will also be iugr. I'm hoping that she is able to cook as long as possible so there's no nicu stay needed. Brielle did wonderfully and was able to go home 3 days later, at 4 lbs 10 oz. I pray this baby can at the very least get to a size like her big sister!
Lauren, married to Nick
7/19/2011~Brielle Mae was born @ 37w5d (severe IUGR, PIH, mild pre eclampsia)
Aria Nicole- due on Christmas Day 2013
meekonserj
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Posts: 36
Joined: Sun May 29, 2011 11:22 pm

Re: 23 weeks and pre e on its way... second time around here

Postby meekonserj » Sat Aug 31, 2013 02:40 pm

by meekonserj (36 Posts), Sat Aug 31, 2013 02:40 pm

Thank you so much Lauren! ( Nice name by the way! Its mine too :) I don't know why my ob didn't do a baseline. I did ask in the beginning and he said we don't need to worry about it yet. I think because my numbers never got too terribly High with Brielle and my baseline was always 0 before. But its definitely a bummer that we didn't because I see the advantages of doing so. my ob is a high risk doctor at one of the most prestigious hospitals in the country. he is actually the head ob now. I completely trust him with both mine and my baby's lives. He has sent me to a few specialists to check my blood flow during this pregnancy and it is OK while laying down for the ultrasounds but sitting or standing changes that. I did not have any blood work in between pregnancies. I will push for that this time. I think the reasoning for this though is because he fully believes the reason is my crushed arteries. And he also believes I have POTs syndrome most likely caused by my crushed arteries. this is where when you stand up your pulse goes crazy high and can cause your blood pressure to do the same.
I will be having growth checks every two weeks from now on. He will start NSTs when he feels its necessary. my next appointment is on sept 9, I'm so anxious for this one because it will be the first time I actually talk to him and not the nurse since I found out my 24 hour results. I had a blood workup this past week as well, and when the nurse called to tell me the results she again just said "within normal limits" and it sounded a little fishy like maybe it was elevated. it could just be my paranoia! Haha. I wish I had asked her for the specific numbers, but I'm not too familiar with them so I wouldn't have known what she was talking about.
Oh and as foe the growth checks, I'm not sure that I mentioned how they are going. this is what I have been worried about the last few weeks. Baby is small. not iugr yet but has been between t11%-19%. With my iugr history, I am suspecting she will also be iugr. I'm hoping that she is able to cook as long as possible so there's no nicu stay needed. Brielle did wonderfully and was able to go home 3 days later, at 4 lbs 10 oz. I pray this baby can at the very least get to a size like her big sister!
Lauren, married to Nick
7/19/2011~Brielle Mae was born @ 37w5d (severe IUGR, PIH, mild pre eclampsia)
Aria Nicole- due on Christmas Day 2013
meekonserj
Registered User
 
Posts: 36
Joined: Sun May 29, 2011 11:22 pm

Re: 23 weeks and pre e on its way... second time around here

Postby meekonserj » Mon Sep 02, 2013 10:10 am

by meekonserj (36 Posts), Mon Sep 02, 2013 10:10 am

Now, I'm not sure if I'm being extra paranoid or if this pain is real. Well.. I didn't even think of what it could be until a while after I first started feeling it. Since yesterday I have been having some really bad URQ pain. :/ It's only in the back, and feels like its underneath my rib cage. It throbs and then every once in a while feels like someone stabbing a sword into it. I did have major back surgery just over a year ago, but it was much lower. I know all the different back pain feelings, and have had a lot of it this pregnancy. However, it is all very low, like into my tailbone. I know I need to call, but I'm inclined to wait. I have a feeling they are just going to think that since I *made* them give me my numbers, that I am just paranoid now and that is what they were trying to avoid. But obviously I need to be my own advocate no matter what anyone thinks of me. I honestly hope its just paranoia.
Lauren, married to Nick
7/19/2011~Brielle Mae was born @ 37w5d (severe IUGR, PIH, mild pre eclampsia)
Aria Nicole- due on Christmas Day 2013
meekonserj
Registered User
 
Posts: 36
Joined: Sun May 29, 2011 11:22 pm

Re: 23 weeks and pre e on its way... second time around here

Postby sam10 » Mon Sep 02, 2013 01:18 pm

by sam10 (1436 Posts), Mon Sep 02, 2013 01:18 pm

Please call your doctor and try not to care what they might think. It is their job to ensure you are ok. Besides, they are too busy to have the time to think too much about their patients' motives (at least that's what I used to tell myself). Let us know what your doc has to say about your pain.
~Julija (40)
MC 3/2009 and 3/2011
Henry (1/1/2010-1/7/2010) - forever loved and missed; severe PE with Hellp; partial placental abruption, classical c-section at 25.6 weeks
Matilda (Nov. 2012, born at 35.4 weeks) - severe PE


Our pain has been put into words, placed into empty cradles, to remember that all our babies lived, that they mattered and always will. - Field of Cradles http://www.fieldofcradles.org/
sam10
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Re: 23 weeks and pre e on its way... second time around here

Postby sam10 » Mon Sep 02, 2013 01:21 pm

by sam10 (1436 Posts), Mon Sep 02, 2013 01:21 pm

Here is a thread about all the different 'kinds' of URQ pain.
viewtopic.php?f=85&t=492
~Julija (40)
MC 3/2009 and 3/2011
Henry (1/1/2010-1/7/2010) - forever loved and missed; severe PE with Hellp; partial placental abruption, classical c-section at 25.6 weeks
Matilda (Nov. 2012, born at 35.4 weeks) - severe PE


Our pain has been put into words, placed into empty cradles, to remember that all our babies lived, that they mattered and always will. - Field of Cradles http://www.fieldofcradles.org/
sam10
Forum Moderator
 
Posts: 1436
Joined: Sat Feb 20, 2010 12:04 am
Location: Boston, MA

Re: 23 weeks and pre e on its way... second time around here

Postby MomTimesThree » Mon Sep 02, 2013 07:42 pm

by MomTimesThree (563 Posts), Mon Sep 02, 2013 07:42 pm

I hope to hear that you called in. Your peace of mind is ALWAYS worth a call. In a week, a year your doctors will never remember the call... but if someone was wrong, you would always remember not calling. Doctors know what they signed up for and they get paid the big bucks to do it. Keep posted as you're able.
2008-Our Baby Girl, PTL born too early at 30w6d, Fought so hard... Forever Loved & Missed
2010- Lil' Bro, Pre-E at 29 weeks... Induced at 36w6d, Born 37w
2012- Lil' Sis, Super-imposed pre-e at 25 weeks, PTL & GD at 35 weeks, Evicted 36w
MomTimesThree
Forum Moderator
 
Posts: 563
Joined: Sat Feb 11, 2012 08:54 pm

Re: 23 weeks and pre e on its way... second time around here

Postby meekonserj » Tue Sep 03, 2013 01:46 pm

by meekonserj (36 Posts), Tue Sep 03, 2013 01:46 pm

I did call in today. Thank you for the advice, you are all right the doctors wont remember the call even in a week from now! so i should just suck it up. The nurse didn't hesitate or even take the time to ask the doctor, she found a time for me to come and see him in a couple hours. They will do labs and stuff. His office is located in the hospital and for my previous pregnancy if something was off he would send for a wheelchair right away and up to L&D I went.
I'm hoping this is just paranoia but I know it's not.. I have known I will most likely develop pre e but I sure hope its not severe or HELLP. Today my blood pressure has stayed the same as the past few weeks 157/85-95 (I swear- its ALWAYS 157, rarely changes.)
Last night I was woken up a lot to the burning sensation in my back. After a while the ache and stabbing feeling turned into burning. Like someone was holding a lighter to me on the inside and out. I had a hard time breathing last night. But I fell asleep and in the morning it was just off and on. But I started to feel nauseous and so so so very tired. I feel so sick. The burning sensation started to wrap around the side of my ribcage and sometimes even in the front. That's when I knew I had to call.
Also, I have been having a LOT of braxton hicks. I know that with my previous pregnancy I had them all throughout, and so did my mother with all 3 of her pregnancies. But when it started with all of this it has me worried. Does this normally have anything to do with pre-e? Oh, and another symtom is my eyes. Last time it was just mostly all floaters that I had. All the time- ants in my eyes. Well, this time I have that but not as bad, but my eyes are always blurry (I have 20/15 vision) and I'm seeing double a lot. Could this have anything to do with my switch of blood pressure meds to nifedipine?? Maybe thats what a lot of this is? I just switched a week (if that) ago.
Lauren, married to Nick
7/19/2011~Brielle Mae was born @ 37w5d (severe IUGR, PIH, mild pre eclampsia)
Aria Nicole- due on Christmas Day 2013
meekonserj
Registered User
 
Posts: 36
Joined: Sun May 29, 2011 11:22 pm

Re: 23 weeks and pre e on its way... second time around here

Postby MomTimesThree » Tue Sep 03, 2013 05:53 pm

by MomTimesThree (563 Posts), Tue Sep 03, 2013 05:53 pm

Sooo glad you called and are being seen today.

Keep posted as you are able! All crossables crossed!
2008-Our Baby Girl, PTL born too early at 30w6d, Fought so hard... Forever Loved & Missed
2010- Lil' Bro, Pre-E at 29 weeks... Induced at 36w6d, Born 37w
2012- Lil' Sis, Super-imposed pre-e at 25 weeks, PTL & GD at 35 weeks, Evicted 36w
MomTimesThree
Forum Moderator
 
Posts: 563
Joined: Sat Feb 11, 2012 08:54 pm

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