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Past Pre-E and HELLP delivery. New BP issues, please advise

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Past Pre-E and HELLP delivery. New BP issues, please advise

Postby vampirepixy » Tue Nov 05, 2013 04:03 pm

by vampirepixy (1 Posts), Tue Nov 05, 2013 04:03 pm

Brief background : First pregnancy ends at 37 weeks with an emergency c-section due to fast onset of pre-e and HELLP (BP was 230/110 according to my husband I was pretty out of it by that point) Second pregnancy went perfect, no BP issues at all. Repeat c-section at 38 weeks. Third pregnancy husband and I decide will be our last, 3 kids sounded great to us! BP starts going up around 20 weeks. Hospitalized on bed rest by 28 weeks. She had stopped growing, so given an IUGR diagnosis and c-section at 29 weeks 6 days. Due to the need to deliver so early we were transferred to the nearest hospital that had a NICU capable of handling a baby that would be less than 2 lbs. Unfortunately it was a Catholic based hospital and they refused to do a tubal since they saw no medical need to this. Birth control it is! After her birth the OB that covered me the week I was in the new hospital comes in to let me know why she was pretty sure the IUGR was caused by the major clotting they found all throughout my placenta.

That brings us close to up to date. Birth control failed =( 21 weeks pregnant with an unplanned 4th child. We were shocked and scared when we found out but it has slowly given way to excitement over the months. The older children are all 3 over the moon excited!

Last Friday at my first appointment with a maternal fetal medicine specialist my regular OB referred me to she finds "restriction in the blood flow to the placenta" I am unsure what this means other than what she told me, which was that it puts me at higher risk of having the same problem I had with my youngest. I was obviously upset and scared. She send me to get some labs done up with no explanation other than that she wanted to check for "clotting disorders."

Then today at my regular OB appointment my BP is high =( 141/91 so not too awful as of yet but definitely higher than it should be. Normal for me non pregnant is 115/60 or so. I am terrified and overwhelmed. I should have asked more questions but my mind just did not seem to be able to get past the thought of "oh no, not again." I did call and ask after I had some time to digest the information more but was just told by the nurse that I need to relax and not worry about it for now till all the blood work and the 24 hour urine analysis come back.

I spent the afternoon trying my best not to freak, when that didn't work I decided to see what I could find out. I tend to be more calm about things the more information I have, but I am having terrible luck finding the information I would like to know. So that leads me to this post. Where would I find information about clotting disorders? The information I found myself was confusing and most of it had to do with bleeding profusely, which does not sound like something they would even be concerned about. How the heck can I manage to remain calm and relaxed when I am terrified? I know being stressed tends to make my BP rise so I need to try my best to be calm but I can't even seem to get involved in a book, something that normally works well for me. Thank you for any help you might be able to give. I do hope this post at least makes sense. I have been having a hard time not panicking at this point
vampirepixy
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Re: Past Pre-E and HELLP delivery. New BP issues, please adv

Postby sam10 » Tue Nov 05, 2013 09:43 pm

by sam10 (1437 Posts), Tue Nov 05, 2013 09:43 pm

Your doctor seems to be doing the right thing. Bloodwork, 24-urine collection. This is to determine if you have PE. The diagnostic criteria is two BP readings of 140/90 measured 6 hours apart and 300 mg or higher of protein in a 24-urine collection. I am sure that apart from checking clotting disorders, the lab will look at your platelet count as well, to check whether your liver function is compromised.
If you have certain types of clotting disorders, you could get prescribed to use blood thinners (e.g. lovenox) to help with the blood flow to the placenta. Here is an old thread that discusses clotting disorders http://www.preeclampsia.org/forum/viewtopic.php?t=31665.
You can also use the search function in the top right corner and try to find other old posts, as clotting disorders are frequently discussed around here. But please feel free to ask what you cannot find. Most women with a history of PE are also taking LDA (or baby aspirin). Are you currently taking it?
You have come to the right place, there is lots of information and support to be found here. And yes, it is normal to be worried and panicked in a subsequent pregnancy after having experiences PE/HELLP and a preemie.
Sending you hugs.
~Julija (40)
MC 3/2009 and 3/2011
Henry (1/1/2010-1/7/2010) - forever loved and missed; severe PE with Hellp; partial placental abruption, classical c-section at 25.6 weeks
Matilda (Nov. 2012, born at 35.4 weeks) - severe PE


Our pain has been put into words, placed into empty cradles, to remember that all our babies lived, that they mattered and always will. - Field of Cradles http://www.fieldofcradles.org/
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Re: Past Pre-E and HELLP delivery. New BP issues, please adv

Postby angieb » Tue Nov 05, 2013 10:57 pm

by angieb (1192 Posts), Tue Nov 05, 2013 10:57 pm

If by "restriction of blood flow to the placenta" they mean "notching" (do a search on it, it has come up a lot), don't be too worried. (Notching is when they do blood flow studies/doppler studies, and determine that some of the blood flow is slightly restricted, sometimes, I think of it like a water hose someone casually steps on sometimes.) Anyway, I would try to get more info on how bad the restriction was, but for what it's worth, after I developed HELLP and pre-e by 23 weeks with our daughter, in my next pregnancy with my son they determined they saw 'notching' and it freaked us all out, except my pregnancy with him ended up being perfectly normal and healthy. In my third pregnancy, my high risk doctor wouldn't even look for it because it had been meaningless in the pregnancy before. Anyway, there are a lot of people on here who have had "notching" and went on to have healthy pregnancies.

Hang in there!
Me (29) DH (30)
#1-Olivia Caetlyn-9-28-09-9-28-09, 23+2 wks, emergency classic c-section, class I HELLP, IUGR
#2- Lucas Oliver (rainbow baby)- April 2011, 36+2 wks, HELLP and pre-e free! (lovenox and LDA pregnancy)
#3-Matthew, late October 2012...mostly normal, 37 wks, (lovenox and LDA again)
My blog: http://www.butterflies-and-rainbows.blogspot.com/
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