by dohertyab (236 Posts), Wed Nov 18, 2009 04:33 pm
Hello everyone. I'm not sure what to do now or even where to start. I'm concerned there is some oral sensory issues with my oldest who's 8 but...
I am concerned that Tara may have some eating/oral issues. Here are the things that IÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢ve noticed:
She has a very sensitive gag reflex. I was giving her childrenÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢s acetaminophen (7.5mls) and it took her about 10 min to choke it down. This happens with any flavour of medicine. It also happens with other foods.
She is a very picky eater and has unusual and specific rules about what she can eat (wonÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢t eat eggs, potatoes of any variety including French fries, bananas, or cheese unless itÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢s melted, likes salmon and tofu and any raw vegetable. Food also canÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢t touch each other and she needs to break everything up with her hands. She literally picks her food apart and eats tiny pieces. She will eat corn or peas one at a time.
She usually has something in her mouth ÃƒÂ¢Ã¢â€šÂ¬Ã¢â‚¬Å“ pencils, pens, hair, shirt sleeve and will suck on it. She also bites her fingernails.
She doesnÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢t like to pee so she reduced her fluid intake to approx. 300mls daily and no surprise she also ended up constipated. She says she canÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢t drink more. WeÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢ve made a point of making her drink a small glass of, at this point, any fluid before breakfast and dinner and she really struggles with it.
I have added ground flax seed to her diet and one night when I was reading the label and mentioned it had 6g of fat she got concerned that she would get fat by eating it. She has mentioned concern about being fat many times even though she still isnÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢t on a growth chart for weight (sheÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢s 42lbs).
IÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢ve always been told that no child with starve themselves and to not make food an issue but she will hurt herself. She will extremely limit her intake and the dehydration was affecting her behaviour, mood, headaches, constipation. IÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢ve found myself getting angry with her and saying just finish it and stop making an issue of it (not that this is effective) so IÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢m now reaching out to you ladies for some advice. Our family doctor says itÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢s just a phase, but IÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢m not so sure.
She was a 29 weeker and spent 11 weeks in the NICU. She was on a vent for 5 days, then CPAP and nasal prongs for the remaining 10 weeks and a feeding tube for the whole 11 weeks. However she came home wire and tubeless. She's had infant development assessments until age 5 and although she did 4 months of speech therapy for some sounds and once she figured it out all has been good. SheÃƒÂ¢Ã¢â€šÂ¬Ã¢â€žÂ¢s never been a big eater. She has a very narrow mouth and will most likely need to have adult teeth pulled to allow the others to fit in her mouth.
Does this sound like a sensory issue? Any other thoughts? Any suggestions about how to deal with this or who I would contact for further info would be appreciated!