Hi Laura, Glad you got to the forums. "Darateacher" is in Skokie, I think. She lost a little boy in 08, I believe. I know Skokie isn't close to Naperville, but perhaps you guys might be able to meet somewhere in the middle, if there is no one closer to Naperville.
A member of the Foundation's Medical Board is in Chicago. I'll flag the Patient Support Department and see if they can get you contact info for an MFM.