New Here....need support

This section is for discussions with other women who have probably been through the same signs/symptoms that you may be experiencing. Please note, we cannot offer medical advice and encourage members to discuss their concerns with their doctors. New members, come on in and introduce yourself!
laura
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Re : New Here....need support

Postby laura » Fri Aug 15, 2003 12:56 am

I'm glad to hear that your pressures do go down- if you get 160/100's please go in! It can be the nature of PE for your BP to spike and lower-so it's likely that those high readings are accurate ones if your home cuff is right. And it's great that your protein isn't too high yet- but you still have a while yet to go, and PE by nature is a progressive disease. It will get worse, the only variable is how quickly.

And things can change very quickly. With my first, my first 24 hr was 195. Two days later it was 4500, and finally two days after that it was over 10,000.

I think our big concern would be that their insistence that your pe is only mild, though perhaps technically correct, would give you (and quite honestly your providers) a false sense of security- especially when things can change so doggone quickly- I was where you were and then less than a week later I was flirting with kidney failure. Most women will have two weeks between when they're diagnosed with PE and when they're forced to deliver.

It's a fine line for us- informing you of what could potentially happen (and has happened to some of us) versus unfairly and unnecessarily scaring the doo-doo out of you. There's no way of telling whether you'll hang on til term or be forced to deliver tomorrow- so we have to come to it from the stance that it could get bad, and fast. Especially with the BP's you're reporting. Those BP's are just bad, and they can do harm.

In the grand scheme of things- Dr. E is the great grand pooh-bah of preeclampsia doctors. I have unshakable faith in his judgement- and if he recommends a consult (a consult, mind you, a 30 minute meeting without any expected committment)with this doc, it can't hurt to have it.

In any event, regardless of what you choose to do- please let us know if there is any way we can help. I know I've been there. It's hard, and scary, and confusing- and you have to follow your own instinct on what's the best course. I'm keeping my fingers crossed for a healthy time until delivery....


Laura-28
DH Jack-30
Allie 5-13-98 (35 weeks-pre-e)
Baby Camille 4-17-03 (36 weeks- htn and oligo)
http://www.babiesonline.com/babies/c/camilleandallie/

ileana
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Re : New Here....need support

Postby ileana » Fri Aug 15, 2003 12:30 am

Check these:

-protein limits:
http://www.preeclampsia.org/forum/viewtopic.php?t=61

-this is less relevant, but it shows that even fluctuating BPs should be carefully monitored
http://www.preeclampsia.org/forum/viewtopic.php?t=386

--hypertension and other Pre-e definitions
http://www.preeclampsia.org/forum/viewtopic.php?t=124

Ileana 33
Angel stillborn 24w p-e 2/17/03

cjellavsky
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Re : New Here....need support

Postby cjellavsky » Fri Aug 15, 2003 12:26 am

I know what my last 24 hr was that they did in the hospital, it was 297....which barely meets mild preeclampsia. But, the nurse told me that the other two were high, which I didn't ask how much. I assume that they went down because I was flat on my back in the hospital and not moving at all. My headaches got a little better. Now, they let me go home and I am at home, but, it is hard to rest as much as in the hospital. I have a 3 yr. old who is sick and with me today, my Mom came to help out. But, of course my daughter wants her mommy who has been in the hospital. My headaches are back with a vengeance...I take another 24 hr. urine test on Sunday. So, we will see how this goes. I did take my monitor into the dr. office and it was very close, the bottom was a little higher, but, not by much. So.... who knows?.

ileana
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Re : New Here....need support

Postby ileana » Fri Aug 15, 2003 12:19 am

Caroline,

First, you should take your blood pressure monitor to your doctor and check it. They might be right. We usually have higher BP's at the doctor's office. If both monitors show the same BP and you are taking it correctly, then they should consider your readings.

Second, 140/90 is not borderline, it is hypertension! 130/80 is borderline.

Third, did they do a 24h protein for you? How much was it. If it's 300mg/24h or slightly higher, then it's mild pre-e. If it's 5000(5g) then it's severe pre-e. They can't evaluate the protein from the dipstick. I have a renal diseases books that actually says that the dipsticks are unreliable showing both false positives and false negatives. They need to do a 24h test or at least send the urine to a lab to measure the protein correctly and diagnose mild or severe pre-e.

Good luck and look for the good doctor!

I'll look up for some expert answers for you that you can print and take to the doctors that are unresponsive...

Ileana 33
Angel stillborn 24w p-e 2/17/03

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annegarrett
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Re : New Here....need support

Postby annegarrett » Fri Aug 15, 2003 12:17 am

Cary is close to the University of North Carolina in Chapel Hill. I would recommend that she see Kim Boggess, MD. 919-966-7890 for patient scheduling.

Dr. Thomas R. Easterling
University of Washington

(Tom Easterling is one of the best and most innovative doctors in this field--if he recommends Dr. Boggess, I would make an appointment for a second opinion ASAP just to confirm what your favorite doctor is thinking.)

Best wishes!!


Take care!

Anne

cjellavsky
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Re : New Here....need support

Postby cjellavsky » Fri Aug 15, 2003 11:57 am

The hard part about this is...most of the high readings are when I take them at home. I have a home monitor. I am supposed to keep track of them. Well, when I show it to them...they say " Well, these are not the kind of readings we are seeing in the hospital, maybe your machine is broke". How frustrating is that?. The Dr. ones are around 140/90...the consider that borderline. I am staying vigilant in letting everyone know what is going on. I do have a favorite dr. there that takes me very seriously. So, I will be banging down her door. Thanks for everyone's help...please send me anything else you might know and your experiences as this is a whole new ball game for me. Thank you so much for your support...you guys are awesome!!!

huntersmommy
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Re : New Here....need support

Postby huntersmommy » Fri Aug 15, 2003 06:32 am

Hi I just checked the boards this a.m. and your situation sounds very similiar to mine, although they had mine labeled as "severe p/e"..anyway mp b/p would skyrocket and then they would take it on my left side and it would (most of the time) go down to a very normal reading and they would send me on my way. Once they set me up with the perinatologist I felt a little better about how I was monitored. I was delivered at 37 wks..b/p went to 180/120 and I was on mag to prevent seizures. It can be very dangerous if a doctor doesn't know what they are doing. Your and your baby's lives are in your hands so if you are not satisfied with the care you are getting then by all means find someone that you are happy with. It is just not worth something bad happening!! Take care and please let us know how you are doing.

(I see you are from NC. I am from Upstate SC. We are basically neighbors!)

LORI 27
JOEY 30
HUNTER 21 MONTHS (DELIVERED AT 37 WKS DUE TO SEVERE P/E)

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annegarrett
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Re : New Here....need support

Postby annegarrett » Fri Aug 15, 2003 01:06 am

There are some doctors who would give you antihypertensives to bring down your BP and buy you more time pregnant.

I have written some of our experts for some names for a second opinion...some might prescribe bedrest, others might decide you should be delivered. I think you really need to get the best of care--your BPs are too high for mild preeclampsia. I don't know what your proteinuria is but any, with those BPs, is too much. If we can find you someone for a 2nd opinion, just see them and then they can talk with your regular doctors and say--this is what is going on. That is what they are there for...and regular OBs are used to getting advice from them...it won't be insulting at all and will not ONLY help you--it will educate your doctors so the next women he/she sees will benefit.

I will send you a private email when I get the names. Do take care and write if there is any change.



Anne

kim
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Re : New Here....need support

Postby kim » Thu Aug 14, 2003 08:23 pm

I agree with Laura... IMHO, those pressures are VERY concerning. Based on the criteria for pre-e, if you're normal bp is 110/55, then PIH/pre-e for you would be 140/70. 190/97 and 147/109 is NOT mild. And with the headaches... Not trying to scare you, but MAKE them take your bp after you have been sitting for a few minutes. If they refuse, tell them to note in your chart that you asked and they wouldn't do it. And if any of your docs think pressures like that aren't serious, then you need a new doctor ASAP.
I'm not saying that they should induce you, but they shouldn't wait for it to get to the point of "cerebral events" or kidney or liver problems.
Please take care and remain vigilant.

Kim
Ainsley Kathryn 11/26/02-36 Weeks Preeclampsia
http://home.austin.rr.com/schwintz

laura
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Re : New Here....need support

Postby laura » Thu Aug 14, 2003 07:47 pm

Are they taking your pressures lying down? ACK! Read this:
http://www.preeclampsia.org/forum/viewtopic.php?t=321

And I see why some of your docs are concerned- that pressure is too high! the BP requirement for severe PE is 160/110- at that point you run the risk of 'cerebral events' ESPECIALLY in light of those headaches. You don't have to have a lick of protein to have a seizure. Or placental abruption. Or intercranial bleeding.

Have they referred you to a perinatologist? Anne's right- it's time to go to nasshp and find a good one. Maybe Anne knows a good one near you...

Laura-28
DH Jack-30
Allie 5-13-98 (35 weeks-pre-e)
Baby Camille 4-17-03 (36 weeks- htn and oligo)
http://www.babiesonline.com/babies/c/camilleandallie/


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