by tree (819 Posts), Wed Oct 13, 2010 06:46 pm
I am sorry that you have to go through this. My little girl had a nasty UTI when she was 5-6 months old. It took us a very long time to figure out what was wrong with her, and we had her tested then only because we knew that my little brother had several UTIs when he was her age. Her doctor put us through the full urology work-up after the infection cleared. It was scary at the time, and I was convinced it was my fault for effectively kicking her out early. Then it was my fault for failing to produce milk which meant she got constipated from the formula... I know how you feel watching a sweet innocent little girl get IVs and catheters. We went through he*l last year, but it has been easier this year. It took me a while, but I know I am not to blame for our struggles. It just happens.
My daughter did not have an anatomical anomoly, but they are pretty common. I am sure you have a lot of information on Vesicoureteral Reflux from your doctor. I liked the information presented here:
Please remember that we are here, many of us have been there, and this will get better. I really didn't believe it would get better for us, and the last three months have been great.
Since the UTI, my daughters issues have been respiratory. We finally have a diagnosis of asthma for my daughter, and her illnesses have become manageable and shorter. I will never know if she could have avoided this stuff if she could have been born at term, but I do know that I am glad we are both here and healthy. This board helps me appreciate how lucky we are, and everyone here (including people much less lucky than us) understands that we all struggle to be grateful for the hand we were dealt.