Range of underlying disorders?

Have you suffered from HELLP syndrome or had a pregnancy complicated by an underlying disorder? Discuss your concerns here
laura
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Re : Range of underlying disorders?

Postby laura » Thu Jan 05, 2006 12:08 am

quote:
Originally posted by AlexP


A funny story - well, not really funny - later that year, a friend of mine thought she was pregnant, and was waiting to test. She was asking everyone what their first symptoms of pregnancy were. I was like, "well, I always felt crampy and nauseated...and then I always ran a low grade fever and felt like I was getting the flu,"...I got some strange looks from that comment. LOL. I had to think about it before I realized that fever and body aches were NOT normal pregnancy symptoms.


They're not?! I don't have AI issues (yet, haha) but I run a low grade fever and have aches through my whole pregnancy! They're relieved by tylenol. That's nice and scary! I hope I'm not harboring some weird ai thing!

alexp
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Re : Range of underlying disorders?

Postby alexp » Thu Jan 05, 2006 12:01 am

Yes, yes, yes, on the hives!!

I had them something terrible - at the time I didn't know I had any autoimmune problems. I kept popping out in hives while in the hospital on bedrest. It was miserable.

It was the hives that led to me being diagnosed - about 6 months after my twins were born, I went to bed with a minor case of hives on my leg and woke up so covered - they were in my mouth, over my eyelids, on the bottoms of my feet - everywhere. I wound up in the ER...they thought I was having an allergic reaction. I was actually having a major flare. Several blood tests and about a month later - I found out about the underlying autoimmune condition.

A funny story - well, not really funny - later that year, a friend of mine thought she was pregnant, and was waiting to test. She was asking everyone what their first symptoms of pregnancy were. I was like, "well, I always felt crampy and nauseated...and then I always ran a low grade fever and felt like I was getting the flu,"...I got some strange looks from that comment. LOL. I had to think about it before I realized that fever and body aches were NOT normal pregnancy symptoms.

Good luck to you on covering all your bases before your next pregnancy! [:)] I wish I could have given you some more substantial links...they are out there, I'm sure, I just haven't found them yet! You are on the right track planning to meet with an MFM doc, in my opinion. He or she may be able to give you a better look at all your options, etc.


deerhart
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Re : Range of underlying disorders?

Postby deerhart » Thu Jan 05, 2006 11:58 am

The most common AI issues are RA and Lupus, others include Grave's Disease and MS. Any autoimmune issue would probably raise your risk of PE.

But these are not the only things linked to PE. BLood clotting disorders both hereditary and not are closely linked with both PE and reoccurant miscarriages (Factor V, MTHFR, Lupus Anticoagulant Syndrome etc..). These are also known as Thrombosis. Insulin resistance is also being looked at as a possible issue with PE. Further, studies have found that having uncontrolled asthma can be connected with incidence of PE.

As for the hives are you allergic to anything? Warmth will cause minor skin allergy irritations to become nice lovely hives (as I learned this the hard way after my allergy skin injections on my back I slept in my ultra warm water bed and had huge hives all over my back which wasn't supposed to happen, but the heat brought them out). Depending on the individual cold can bring out hives (it doesn't me)

There is also a condition of pregnancy called PUPPP (Pruritic and Urticarial Papules and Plaques of Pregnancy) that can cause hives. Are the hives painful or itchy? I have constant rashes on my hands from allergies, but its a red rash luckily and not hives. I only break out in hives if I mow the lawn. Its most likely that you have some allergy and the stress of pregnancy pushes your system over the edge. I have very severe allergies and asthma and (lucky me) I am one of the 25% who's condition worsens during pregnancy. My asthma was very uncontrolled (and not even diagnosed) in my first pregnancy, though I had probably had it for a good 7-8 years at the time (including black out spells which my allergist at the time completely ignored) and it took me a good 18 months after diagnosis to get it under control (just in time to get pregnant again hehe) and today I have almost 0 problems with it at all.

I also have the Lupus Anticoagulant syndrome (blood clotting disorder) which is the most likely cause of me PE/PIH.

eliz
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Re : Range of underlying disorders?

Postby eliz » Thu Jan 05, 2006 09:12 am

Thanks for the links. It sounds like I'm not the only one who has some autoimmune issues, but who doesn't know exactly what they are. I guess I may not figure it out before my next pregnancy (or ever!), but it would be nice to feel that I have covered my bases. If there are some that are testable and can be treated during pregnancy, I just want to be sure I do that.

Did anyone have autoimmune hives throughout their pregnancy? Starting at the end of the first trimester, I would get rashes of hives whenever I was particularly warm (in the shower, I'd always get them on my ankles, if I sat and watched TV under a blanket, I'd get them on my thighs and legs).

alexp
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Re : Range of underlying disorders?

Postby alexp » Thu Jan 05, 2006 07:02 am

Hi Elizabeth!

You've asked some excellent questions. I don't know if I have exactly what you're looking for, but I'll try.

This is a list of FAQ about preeclampsia in general: [url]http://www.preeclampsia.org/FAQ.asp[/url]

Link to NIH working group report:[url]http://www.nhlbi.nih.gov/resources/hyperten_preg/[/url]

Ask the Experts thread on "what should be tested for postpartum":
[url]http://www.preeclampsia.org/forum/viewtopic.php?t=2273[/url]

This thread starts out about lupus, but goes into different types of autoimmune disorders:
[url]http://www.preeclampsia.org/forum/viewtopic.php?t=5127&SearchTerms=autoimmune,disorders,preeclampsia[/url]

HTH a little. I know it isn't much to go on...someone else should be along soon who can offer more input.






eliz
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Range of underlying disorders?

Postby eliz » Wed Jan 04, 2006 10:42 pm

Hi. I was wondering if there's a place on the site that one of you know about where I could find out about the various underlying disorders, tests done to find out if you have them, and then what is done with the knowledge that you have one. I have some understanding of lupus and RA, but other than that, I'm really confused.

I haven't had positive ANA tests for lupus, but that's the only test I've had. I'm wanting to get pregnant again (and will try to meet with a maternal medicine doc), and I've been told to expect to get pih or pe again, and to likely get it worse, since that has been the trend so far in my pregnancies. I have recently been diagnosed with ms, which is an autoimmune disease, but for some reason ms and pregnancy get along well. However, having one autoimmune issue puts me at risk for others, so my OB is assuming there's something else autoimmune going on with me that makes my body react the way it does in pregnancy.

Any info about underlying autoimmune conditions and/or tests would be really helpful. I'd like to figure all this out before I conceive again, to make sure I'm not taking too many risks with my health in a subsequent pregnancy.


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