england

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catherine
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Re : england

Postby catherine » Tue Apr 26, 2005 03:24 pm

Helen, I've a question. Do you have a strong sense of the extent to which British pre-eclampsia patients access higher levels of care? Obviously the US system has the insurance issue and the access issue. I'm fortunate to be well insured through my work. However, in the state in which I live, geographically large and relatively sparsely populated, there are only 5 board-certified MFM specialists. Fortunately for myself and my daughter, 4 practice at the hospital at which I delivered. They also (academic medics, they hold appointments at the medical school here) work within a state-wide referral system intended to assist OBs or family care physicians who are providing care to pregnant women. They will to teleconferencing etc. How does it work in the UK? Do you attend a high-risk clinic and see whoever is consulting that day? I'm Irish and so relatively familiar with a nationalized medical system and I know that my sister was basically attending clinics and only occasionally seeing a consultant. She wasn't high risk in any of her pregnancies though.

I think it would be interesting for us to understand these issues also because it might help us figure out what are the best ways to share information and ideas for education etc. Oddly enough, the internet has proven to be the best way for those of us who live here in AR to actually hook up and support each other.... that and the fact that there is probably only one best place for a pregnant woman with preeclampsia and her baby !!

Catherine
Mom to Finn, Lucy (preeclampsia and HELLP) and Chloe.

denise
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Re : england

Postby denise » Tue Apr 26, 2005 03:08 pm

Great point on the insurance Laura. A woman's health insurance may not allow her to see a particular doctor and she may have to pay for the visits entirely herself or at an out-of-network cost, which is costly too. It's unfortunate that things work that way, but it's the way things are currently.

We have many members who have emailed an individual privately and that option is always available for those who accept emails. I agree that there is such a varying approach to preeclampsia and how it is handled by doctors, that it is difficult to have one recommended doctor or practice.

We value our members and their ideas. I feel the people here are very supportive and are a wealth of information. Just my two cents.

-------
Denise (29) Co-coordinator for WI
Jason (32)
Ariana (23 months)5/3/03-just shy of 35 weeks: Class 1 HELLP
http://hometown.aol.com/oneyodafan/DeniseHomePage.htm

laura
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Re : england

Postby laura » Tue Apr 26, 2005 02:22 pm

You're exactly right- we can't recommend docs at all, which is hard because I know many of us feel really strongly about our doctors and would love to share the info. I don't think naming docs from the UK is as big a deal as it is here, because of the differences in how the systems work, but we just have to be consistent across the board.

We just encourage people to email each other with their experiences privately- that way there's no need for us to serve as middleman. Still, even if we could recommend specific doctors, many of the doctors-- even on our medical board- take drastically different approaches on how to approach preeclampsia- anti-coagulation or no? antihypertensives or no? early delivery or no? I don't think there is a one size fits all doctor for all women, so our docs recommend a preconception counseling session to make sure that your goals for the pregnancy and the doctor's route to treatment work well together.
Also, I don't think it is a big a problem as it might seem because of the way our health insurance works-- most of us with health insurance are limited in who we can see by our insurance providers. With the costs of health care these days, most people don't see docs off their list unless there is a very good reason.

If someone is looking for a doctor, we refer them to the http://www.nasshp.org website to find specialists who focus on hypertensive disorders of pregnancy, that can help narrow the field a bit... I'm sorry that this is such a disappointment for you, but different countries/different health systems/ different policies seems inevitable to me...

Laura
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AK Area Coordinator

Alicia (severe PE) 5/98 ~ Camille (htn, oligo) 4/03
http://www.babiesonline.com/babies/c/camilleandallie/

helenw
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Re : england

Postby helenw » Tue Apr 26, 2005 02:05 pm

Well I think that is ridiculous! On the NHS here we don't directly pay for our medical care, it is paid from taxes. So we get treated as patients, not clients in a buisiness. So I am guessing the PF doesn't have recomended doctors like your sister organization APEC? I really can't understand it. They are recomended because they are good! APEC wouldn't do this otherwise. How is anyone supposed to find a decent Doc in the US then?

Helen

www.pre-eclampsia.co.uk

laura
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Re : england

Postby laura » Tue Apr 26, 2005 01:45 pm

Hi Helen, thanks for your concern! That policy evolved because many of us had seen the same doctor- also a professor and expert in the field- and we heard complaints and concerns expressed that the PF was "promoting" that doctor when we discussed him or his practice-- when we can't promote any doctor-- particularly when the said doctor would have to report our discussions to the IRS as free advertising! LOL!

I'm not familar with how the English medical system works, but the docs over here can be downright competitive! That, and for legal liabilty reasons, we can't allow names to be bandied about- in either a positive or negative light, and we encourage members to contact each other with this information by email.

Laura
Webmaster/Forum Administrator
AK Area Coordinator

Alicia (severe PE) 5/98 ~ Camille (htn, oligo) 4/03
http://www.babiesonline.com/babies/c/camilleandallie/

helenw
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Re : england

Postby helenw » Tue Apr 26, 2005 01:35 pm

Hi can someone please tell me why the professor's name was edited out of my post? I wasn't saying anything against him, competely the oposite. I was recomending him. He is a leader in his field here in the UK. I am only trying to help here. And that just seems a little too moderated. I think the women on my own PE support group are glad I don't watch every single word they say, for fear of saying the wrong thing. I could understand maybe if I was saying he was no good, but I wasn't!! Come on!!! I had hoped to get involved here as I hope to move to the US and carry on the work I do for PE, but maybe the PF isn't as open and supportive as I had hoped?

Helen

www.pre-eclampsia.co.uk

denise
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Re : england

Postby denise » Tue Apr 26, 2005 01:12 pm

Gaby, may I suggest that you look at the Pregnant Again forum:
http://www.preeclampsia.org/forum/forum.asp?FORUM_ID=14 There are women who are going through the same worries and feelings that you may be experiencing. Congrats on this pregnancy.


-------
Denise (29) Co-coordinator for WI
Jason (32)
Ariana (23 months)5/3/03-just shy of 35 weeks: Class 1 HELLP
http://hometown.aol.com/oneyodafan/DeniseHomePage.htm

helenw
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Re : england

Postby helenw » Tue Apr 26, 2005 06:40 am

Gaby, I am glad you are getting good care. Did you ever have an appointment with one of APEC's recomended docs? There are several In London, so not to far from you. I saw one, Professor S****
at Queen Charlotte’s Hospital in Hammersmith, and it was well worth it. Details can be found here [url]http://www.apec.org.uk/subexperts.htm[/url]

Good luck!

Helen [:)]

[url]www.pre-eclampsia.co.uk[/url]

helenw
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Re : england

Postby helenw » Tue Apr 26, 2005 06:39 am

Gaby, I am glad you are getting good care. Did you ever have an appointment with one of APEC's recomended docs? There are several In London, so not to far from you. I saw one, Professor S***
at Queen Charlotte’s Hospital in Hammersmith, and it was well worth it. Details can be found here [url]http://www.apec.org.uk/subexperts.htm[/url]

Good luck!

Helen [:)]

[url]www.pre-eclampsia.co.uk[/url]

gaby
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Joined: Wed Apr 06, 2005 03:37 am

Re : england

Postby gaby » Tue Apr 26, 2005 06:23 am

Helen

Hi. I'm in Barking Essex and I'll be going to King George Hospital in Goodmayes. Thats where I had my daughter and the care there was excellent.

Me - 31
Hubby - 33
4 1/2 yr old daughter born at 32 wks. weighed 3lbs @ birth.
Now 4 wks pregnant but scared.


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