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"Older preemies"?

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.

Re : "Older preemies"?

Postby eandslane » Sun May 16, 2004 07:11 pm

by eandslane (8 Posts), Sun May 16, 2004 07:11 pm

Hi again!

I thought of another thing... Matthew's nutritionist suggested adding cream (!) to his milk and butter on all his food. Also, full fat cream cheese can be hidden between crackers (M. is clever enough to look between his crackers for this[}:)]) I melt butter in the microwave and mix it into each bottle of Gerber 3s, even the fruits. This worked well for a while, but now Matthew won't eat that...still likes his milk and cream! Have you tried the baby yogurt products (like YoBaby)? You can even add cream to the pediasure to up its fat calories! (Amazing, so many of us obsess on eliminating fat in our diets and I buy cream by the quart for Tiny Man!)

Hope this helps and good luck!
Ellen

Ellen (37)
DH Sam (37)
Joseph 3/26/98 37 wks PE/HELLP
Emma 5/2/00 38 wks HELLP?
Matthew 3/30/02 25-26 wks PE/eclampsia (doing great now!)
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Re : "Older preemies"?

Postby abell » Wed May 19, 2004 08:54 pm

by abell (161 Posts), Wed May 19, 2004 08:54 pm

After hearing everyone elses stories- it makes me feel a little better. My daughter will be 2 on the 24th and she doesn't eat much either. She has weighed 25 lbs for a year.
Somtimes she goes without dinner- b/c she just won't eat.

She also goes thru these stages where she will gag on everything. She does have reflux disease but not where it comes up... only where it comes up and dumps into another lung so she's on meds for that. But as far as the gagging goes- they said if she continues they want us to see a speech therapist. She has no problems with speech- she actually says 5 word sentences. (AMAZING TO MYSELF & DR.) Has anyone else heard of this? Or had this problem?

Amanda-
Mommy to Madison- born 05/24/02 34 weeks gestation due to severe PE. 3 lbs. 7 oz. 16 inches.

Pregnant Again! Baby Girl- EDD 08/21/04 Put on bed rest at 22 weeks. Initial stages of PE
abell
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Re : "Older preemies"?

Postby abell » Wed May 19, 2004 08:56 pm

by abell (161 Posts), Wed May 19, 2004 08:56 pm

Also wanted to say - To Jennie- the cheetos hit close to home- my daughter would eat those for breakfast, lunch and dinner- if we let her. Sometimes I do... b/c she won't eat anything else!
Might be bad ;)

Amanda-
Mommy to Madison- born 05/24/02 34 weeks gestation due to severe PE. 3 lbs. 7 oz. 16 inches.

Pregnant Again! Baby Girl- EDD 08/21/04 Put on bed rest at 22 weeks. Initial stages of PE
abell
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Joined: Sun Dec 28, 2003 01:13 pm

Re : "Older preemies"?

Postby angelical » Thu May 20, 2004 05:24 am

by angelical (330 Posts), Thu May 20, 2004 05:24 am

Amanda,
Sorry to hear that about your daughter. Good luck with all of this.

My 28 weeker, who turned 2 on May 2, eats a good bit, but he's just now 26lbs. The docs are happy with his size, considering how small he was to begin with.

5 word sentences??? WOW!!!! That is awesome! Aaron is only up to joining 2 words.

Sharel

------------------------
Sharel O'Connell
Local coordinator for Pittsburgh area
'Parents of Preemies' co-moderator
Survivor of Preeclampsia, HELLP Syndome, & preemie parenting
Future adoptive mom

Aaron (28 weeker, 5/2/02) -- my tiny guy is TWO!
Kevin - DH
angelical
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Posts: 330
Joined: Mon Feb 24, 2003 06:39 am

Re : "Older preemies"?

Postby jenn » Thu May 20, 2004 06:54 am

by jenn (2038 Posts), Thu May 20, 2004 06:54 am

Amanda,
My heart breaks that you too have to face this everyday. It's HARD! No doubt about that. And if I don't ask J 10x a day if she's hungry, she'll go all day without anything to eat. Thank god for Cheetos! ;o) If J wants them all day for a week straight - better believe I could care less :o)

Question:
when did you realize there was a problem?

Nobody told me to watch for this, or that preemies are prone to this. So I let Jaid go for what I look back now and say was "too long".
By the time we got help, Jaidyn was living ONLY on clear strawberry Gatorade. (15m. of age) and I think 16- 17 lbs. If I remember right. It wasn't good.

If it wasn't for her Elecare formula, god only knows.

We are starting some new therapy in the next few weeks. Fingers crossed! :o)


Jennie (24)
Shad DH (28)

Jaidyn 1.24.01 (30 wkr)
Severe PE/HELLP
2lb. 12oz.

Heavenly Angel:
Blaze
12.6.03
(miscarriage)

EDD- Thanksgiving! 11.25.04

http://www.babiesonline.com/babies/j/jaid/ (updated May 18th)
jenn
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Re : "Older preemies"?

Postby abell » Thu May 20, 2004 07:39 am

by abell (161 Posts), Thu May 20, 2004 07:39 am

Don't get me wrong.. my daughter for the most part is perfectly fine. I have just noticed that she doesn't really eat well. The Dr's aren't worried about her weight either b/c she's growing in height and everywhere else.

Yes she talks really well- can count to 10 in both Spanish and English. My Doc calls her his little genius. She is really smart- and to Sharel- 2 word sentences are great! My Dr. said that at 2 year check ups thats what he wants to see- that is normal. Madison I guess is not normal. Which surprises me ... b/c she was born so small and early. It's funny... how they surprise us!!! You can't predict that just b/c they are small they will have developmental delays- b/c she doesn't. The only delays she has is... her left leg- she has a tight heel cord so she drags that leg a little when she walks- we have physical therapy for that.

Good luck to everyone- Jennie hang in there- if you ever need to talk let me know :)

ANd YES .... THANK GOD FOR CHEETOS :)

Amanda-
Mommy to Madison- born 05/24/02 34 weeks gestation due to severe PE. 3 lbs. 7 oz. 16 inches.

Pregnant Again! Baby Girl- EDD 08/21/04 Put on bed rest at 22 weeks. Initial stages of PE
abell
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Posts: 161
Joined: Sun Dec 28, 2003 01:13 pm

Re : "Older preemies"?

Postby angelical » Thu May 20, 2004 07:45 am

by angelical (330 Posts), Thu May 20, 2004 07:45 am

Aren't they just wonderful?

I still am amazed that Aaron is so "perfect". he is smart, funny, athletic... has wonderful balance, can communicate, does somersaults, is strong... I could go on and on. There is simply no fragility about him at all.

Our preemies are just miracles... simple as that. :-)

Sharel

------------------------
Sharel O'Connell
Local coordinator for Pittsburgh area
'Parents of Preemies' co-moderator
Survivor of Preeclampsia, HELLP Syndome, & preemie parenting
Future adoptive mom

Aaron (28 weeker, 5/2/02) -- my tiny guy is TWO!
Kevin - DH
angelical
Registered User
 
Posts: 330
Joined: Mon Feb 24, 2003 06:39 am

Re : "Older preemies"?

Postby jenn » Thu May 20, 2004 09:48 am

by jenn (2038 Posts), Thu May 20, 2004 09:48 am

Wow, if Jaidyn talked like that....

Jaidyn's up to 3 words sentences. But we're getting help for it ;o)
She loves Dora - one of these days she'll know more spanish than I.

Happy to hear everyone's little people are doing so well. :o)

Jennie (24)
Shad DH (28)

Jaidyn 1.24.01 (30 wkr)
Severe PE/HELLP
2lb. 12oz.

Heavenly Angel:
Blaze
12.6.03
(miscarriage)

EDD- Thanksgiving! 11.25.04

http://www.babiesonline.com/babies/j/jaid/ (updated May 18th)
jenn
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Posts: 2038
Joined: Tue Jun 17, 2003 01:31 pm

Re : "Older preemies"?

Postby abell » Thu May 20, 2004 11:57 am

by abell (161 Posts), Thu May 20, 2004 11:57 am

Madison just loves Dora- thats where she picked up counting to 10 in Spanish. We didn't even teach her that. She got it from watching Dora!!! Funny.

Glad to hear your little ones are doing well-

And yes... they are just precious!

Amanda-
Mommy to Madison- born 05/24/02 34 weeks gestation due to severe PE. 3 lbs. 7 oz. 16 inches.

Pregnant Again! Baby Girl- EDD 08/21/04 Put on bed rest at 22 weeks. Initial stages of PE
abell
Registered User
 
Posts: 161
Joined: Sun Dec 28, 2003 01:13 pm

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