All hail the Tiki Goddess!

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Re : All hail the Tiki Goddess!

Postby paljane8 » Mon Jul 26, 2004 01:56 pm

Good synopsis, Ileana. It was a wonderful conference. A big thanks to those who organized and helped! The best part for me was the interaction with those that came. We laughed together, we cried together (some of us even saw the Troll together :)). It was such a priviledge to share the time with you and to learn so much about each of you and your experiences. It is hard to describe in words but, the strength and resilience of those who came left me in awe and grateful to be associated such inviduals. Thank you for coming and thank you to your families for the sacrifices they made for you to be here.

Anyone recovered yet? I'm not!!!!!!

Nancy Eastwood
Moderator/WA State Co-Coordinator

Scott-5yrs (PE)
Janie-1yr (PIH, oligo and low blood flow)

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Re : All hail the Tiki Goddess!

Postby catherine » Sun Jul 25, 2004 04:38 pm

I have to admit that I'm still processing. However, one of the best things for me about this conference was meeting all the really active members of the Preeclampsia Foundation who work for the aims of research, education and support in real life[:D]. For those of us who mostly interact with PF via this forum, it was eye-opening to meet all these amazing women, Joan, Eleni, Carol and Alisa just to mention a few. While this forum has become our own little part of the internet, it is exciting to realize that we have the potential to contribute to an active and productive organization that can reach out to women affected by preeclampsia who've never heard of Google and could care less!!!

Mom to Finn, Lucy (preeclampsia and HELLP) and Chloe.
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Re : All hail the Tiki Goddess!

Postby ileana » Sun Jul 25, 2004 03:24 pm

Ok, we need to let them know!

Anne organized a great conference! The first night was the teary part: with her talking about her experience and Stuart and Pat, that lost their wives, and Aimee talking about Nicky's NICU stay and her subsequent successful pregnancy. It was very emotional and it touched everyone. You should have seen dr. L trying to hear every word when Aimee was talking about Nicki's hospital stay. I wish we had more doctors! This is the kind of thing they need to see.

On Thursday it was action day: Eleni boosted the day by asking us to find out which of us ran a marathon and spoke to more than 250 people and organized an event... which was fun because the night before we mostly talked about how preeclampsia affected us.
Anne talked about the history of the Foundation and emphasized how far we went to get here.
Carol made everyone brainstorm ideas for chapters and fundraising, Paul presented the registry idea,
Eleni gave us a great PR 101 class and
then Dr. E. gave a great speech and answered questions.

The picnic with the candlelight vigil was great as well. Nancy came with the kids and Elisabeth came with Indigo and it was like a big family meeting. Norlissa, Nancy and Carrie organized the candlelight vigil. It was very touching to see everyone think about lost babies and mothers.

It was a well rounded event and I think we all got what we came for and more. Me and Paul were very impressed and happy that we came: we shared stories, found similarities, learned a bit, communicate our thoughts and put faces to Internet profiles.

Your turn! If you went to the conference, please add your thoughts about it!

IT Coordinator
Preeclampsia Foundation

Mother of Angel - stillborn on Feb 17, 2003 (24wGA, 410g)

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Re : All hail the Tiki Goddess!

Postby julie f » Sat Jul 24, 2004 12:11 am

Oh, I am so so jealous!!! Promise that we'll be doing it again next year!!!!! Carol, I'm so glad you had a great time, I can't wait to hear all about it!!

Julie (27)
Zachary James, 7/22/03-7/27/03, born at 26wks - severe pe

Miracle in progress... #2 is due February 2005!!!

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Re : All hail the Tiki Goddess!

Postby josiah1112 » Sat Jul 24, 2004 06:28 am

Please tell us about the conference! How was
it? It must have been amazing meeting everyone
personally. I'm glad it was awesome!

Gloria mom to Josiah 11/12/03- 12/4/03 @ 26wks pre e
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Re : All hail the Tiki Goddess!

Postby denise » Sat Jul 24, 2004 06:18 am

I can't wait to hear about it!

Ariana-born 5/3/03 at 35 weeks due to HELLP Syndrome/pre-e: 4 lbs, 17 1/2 inches

Will start TTC in October!!

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All hail the Tiki Goddess!

Postby taras mom » Sat Jul 24, 2004 00:56 am

Just got back from a splendid conference.[:D] It was great meeting everyone, and Anne put together a terrific program. I don't know how you do it!

Carol (39)
DH Bill (40)
Tara Mairichi
12/7-12/9, 2002
The Mightiest Little Angel

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