by annegarrett (2525 Posts), Fri Jun 13, 2003 10:24 pm
We are working on a lot of things at once--but should have a sample brochure that we can send out to chapters to have them distribute to their doctors and hospitals in July. The cost of printing is about 40 cents each and then we have the mailing costs--so we will have to figure out a) how many each chapter needs and b) that cost and c) each chapter will have to cover the costs. I would propose we use a suggested annual membership fee of $25 (suggested--so if you can pay less or pay more--that is fine)and membership dues will be earmarked to cover the costs of brochures until we get either those costs covered by local grants, corporate grants, donated services, etc...
Chapters should start by just being a source of one on one support and yes--definitely getting the word out to the health care professionals you know. See also about seeing who teaches prenatal classes and ask about distributing brochures there.
One thing you will see is that most people don't want to frighten pregnant women--we have to be sensitive to that--because if we are too frightening then we won't even get in the door to talk or be invited back. We have to keep things in perspective--remind them that our experience was a maybe not the norm--that most women don't get this--that we want women to be alert and aware but not to be alarmed...that general tone. We will probably want to develop a training program for the people who do these talks and make sure that we have people who know what they can and cannot say (for legal and medical liability reasons), have a health care professional there to back you up (so someone we know is well versed in the disease) and have some basic presentation in a Powerpoint with handouts done for you to present.
Maybe we will have an annual training in Seattle and chapters will be responsible for covering the costs of getting people here for that.
Let me know your thoughts. We have a couple ladies working hard to develop our "chapter guide"...can always use more ideas.