hyperreflexia

This section is for discussions with other women who have probably been through the same signs/symptoms that you may be experiencing. Please note, we cannot offer medical advice and encourage members to discuss their concerns with their doctors. New members, come on in and introduce yourself!
jjbeck1
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Re : hyperreflexia

Postby jjbeck1 » Thu Apr 01, 2004 06:18 pm

Nancy,
No BP meds. Yeah I figured as much about the epilepsy as well stoke. Lots of strokes in my family.

Jen 32
DH Bob 36

EDD 5/17/04

http://babygirl.aokwebhost4free.com

paljane8
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Re : hyperreflexia

Postby paljane8 » Thu Apr 01, 2004 05:29 pm

Jen,

I can't remember-are you taking any meds for your bp? I know it is labile. And remember that labile bp with PE is still worrisome.

The fact that you have a brother and sister with epilepsy can put you at greater risk for seizures. It doesn't mean you will have them. It just means that you could be more suseptible to them. I know it is hard to tell if things are getting worse but, please report anything that seems even slightly different asap.

How did it go today?

Nancy Eastwood
Moderator/WA State Co-Coordinator

ds-8yrs, dd-7yrs
Scott-4yrs (PE)
Janie-5/12/03 (PIH, oligo and low blood flow)
http://www.babiesonline.com/babies/4/4lbs/

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catherine
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Re : hyperreflexia

Postby catherine » Wed Mar 31, 2004 07:09 pm

Gosh Julie, what a flash back... the first thing I remember was that I couldn't read the clock on the wall or notices on doors. Up close to things the issue was double vision.. really bad. My husband had two upper lips (complete with moustache) and it really freaked me quite a bit... I used to keep my eyes closed a lot of the time because it was just too disturbing not to be able to figure out what I was seeing. Sort of a big fuzzy halo, but no big spots. After the first couple of days the double vision went away.. I'm wondering now if that was a consequence of the MgSO4. I don't remember any of that though I'm sure it was running into my veins for 48 hours post delivery. My tech, an avid bookworm like myself, went to the library and brought me books on tape because I couldn't make out the TV or type at all. I also had an MRI (only one of the scariest and claustrophobic experiences of my life) but fortunately they saw only hypertensive changes. Even two weeks later I was still struggling to see clearly, I remember sending a close friend an email and she emailed me back to see if I'd sustained brain damage, apparently it came with the "endings" on the words typed twice.. e.g. shoppinging.

I can't imagine what it must have been like to register all those changes, I woke up to bad and then it just got better.

So Jen, this vasospasm stuff is nothing to mess with. Don't forget your darling baby is going to need a healthy mom. If you feel in any way bad, or at least worse, please don't feel foolish, just go to L&D OK?

Catherine
Mom to Finn, Lucy (preeclampsia and HELLP) and Chloe.
Moderator HELLP Syndrome Survivors

laura
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Location: Anchorage, AK

Re : hyperreflexia

Postby laura » Wed Mar 31, 2004 05:55 pm

The cerebral swelling is caused by the same things that cause the rest of the swelling- the vasospasm and pressure from the hypertension cause damage to the vessels, and the watery part of the blood seeps out, leaving fluid in places it doesn't belong.

By the time it reaches the brain, well, it causes CNS 'irritation' and you have to watch closely for development of eclampsia, because too much swelling in the brain, along with the vasospasm, can lead to hemmorage.

That's why they make such a big deal over 'the' headache. Most people get headaches from time to time, but sometimes, the PE headache is the only warning that eclampsia will occur. They have to sometimes rely on the subjective 'visual disturbances' headache, hyperreflexia, etc. because as imprecise as they are, they're all we have to go on. Julie's loss of vision was a huge orange warning sign that we don't normally get- something unequivocal, and as concrete as it gets.

Julie- I can't believe how sick you got without going full blown eclamptic. My goodness- thank goodness you're here (on this earth- not just the boards [:X])

Laura
Moderator/AK Coordinator

Mom to Alicia (severe PE) 5/98 and Camille (htn, oligo) 4/03
http://www.babiesonline.com/babies/c/camilleandallie/

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julie f
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Re : hyperreflexia

Postby julie f » Wed Mar 31, 2004 05:05 pm

Jen,

The cerebral swelling was a result of preeclampsia for me, I'm not sure from what part specifically though. I didn't swell much on the outside at all, mainly internally.

My doctors said the way to diagnose the cerebral swelling was based on symptoms that the patient presents. The day I was diagnosed w/pe I felt fine, great actually. The next morning when I woke up I noticed I couldn't read, I tried to watch TV and had problems with that. I had developed a huge brown spot that covered my central line of vision from my left eye, right was ok though. A CT and MRI were ordered to rule out any bleeding in the brain or possible stroke I think. Both tests came back normal. The next morning when I woke up I had spots in my right eye as well. Now I could no longer really focus on anything, though I could still see what was going on in general. A couple days after this, I woke up in the morning and the left side of my face was completely numb. It still moved and my muscles still worked but, I could not feel a thing. It was at this point that they decided to deliver. My dr. felt that the swelling had become too much and didn't to wait around to see what would happen next. When I went to see an opthamologist a couple weeks post-partum, he explained that the swelling had kept blood from reaching certain parts of my optic nerve, causing part of it to not function, causing the spots (not floaters but big big brown spots), the nuerologist explained that this was the case for my face as well.

Anyway, I didn't mean to go on so long! I just get so frustrated when I hear how some doctors dismiss things so quickly. I hope that whatever doc you see tomorrow is very thorough with you! It may help if you write down a list of questions and a list of concerns/symptoms that you're having to go over with the doctor. I'd write down his/her answers as well so he/she can see how seriously you are taking this matter.

Keeping you in my prayers, please update us tomorrow!

Julie (27)
Zachary James, 7/22/03-7/27/03, born at 26wks - severe pe

Southern California Coordinator

sandyak
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Joined: Tue Mar 23, 2004 03:34 pm

Re : hyperreflexia

Postby sandyak » Wed Mar 31, 2004 03:50 pm

jjbeck1
I wish you good luck. My heart goes out to you. I hope they figure out what is going on. And if you feel they are not doing their job I siggest you go to a completly different place for a good check up. You are in my prayers.

Best Wishes to you,

Sandy 29
Due Augest 12 2004
Anchorage AK

jjbeck1
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Posts: 208
Joined: Sun Jan 04, 2004 09:43 am

Re : hyperreflexia

Postby jjbeck1 » Wed Mar 31, 2004 02:49 pm

julie, what was the cerebral swelling from and how did they dx it.

Jen 32
DH Bob 36

EDD 5/17/04

http://babygirl.aokwebhost4free.com

jjbeck1
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Posts: 208
Joined: Sun Jan 04, 2004 09:43 am

Re : hyperreflexia

Postby jjbeck1 » Wed Mar 31, 2004 02:46 pm

because these are the only three peris in the area, they are spread pretty thin. one is usually always at the main hospital, one is out doing consults and one remains at the office. they rotate so i have to see whomever is in the office. i will see how it goes tomorrow.


Jen 32
DH Bob 36

EDD 5/17/04

http://babygirl.aokwebhost4free.com

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julie f
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Re : hyperreflexia

Postby julie f » Wed Mar 31, 2004 01:12 pm

Oh Jen, please update us after your appt tomorrow, I am worried about you and baby. I agree with Laura, a new pair of eyes need to look at you!

When I was admitted my bp was 140/100 & 150/100. After bedrest and mag in the hospital it remain stable and relatively "low" 130-140/80-90, but, the rest of me was failing fast. I wasn't delivered because of bps or protein but rather because of cerebral swelling - something the doc's lab work isn't going to pick up.

Can the insurance's peri nurse call and talk to your provider?? Maybe she can get them to listen? Also, can you get back to see Doc #1 tomorrow as well, it sounds like maybe he/she will listen?



Julie (27)
Zachary James, 7/22/03-7/27/03, born at 26wks - severe pe

Southern California Coordinator

jjbeck1
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Posts: 208
Joined: Sun Jan 04, 2004 09:43 am

Re : hyperreflexia

Postby jjbeck1 » Wed Mar 31, 2004 01:00 pm

Doc #1 on Monday was concerned I was developing pre e. Doc # 2 did not seem too concerned about pre e as bloodwork was fine and bp was fine in hospital. Doc# 3 I will see tomorrow. I dont know what he will have to say. All three are peris in the same office.
Doc# 3 to this day, I cannot figure out if he is the most laxed of the three or if he just does not tell me things because he does not want me to worry.
I was surprised that he told mu nurse to tell me it was urgent that he see me tomorrow and wants to do another u/s.

I spoke with the ins nurse today who is a peri nurse. She has copies of my records and strongly feels I am headed towards pre e or even E.
She explained that I can still have it WITHOUT the high bp numbers being consistant. She is very concerned.
Another problem I have is I am not urinating as much as I should be. Often the nurses ask me if I am dehydrated as my urine is usually concentrated. This despite I drink alot. I am glad they saw how much I was drinking in the hospital and saw how little output I had while doing the 24 hour. I am definatly getting puffier.

Jen 32
DH Bob 36

EDD 5/17/04

http://babygirl.aokwebhost4free.com


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