Our Story: Kylee, Mommy and Rainbow Babies

Post On Monday, June 17, 2013 By Shelly

Our Story: Kylee, Mommy and Rainbow Babies

Our story began on January 13, 2004, at the age of 21 I learned I was pregnant with my first child. On April 5th, I learned my baby was a girl. I fit none of the typical risk factors for preeclampsia or eclampsia, except that it was my first pregnancy. My pregnancy was perfect until mid May, I began experiencing terrible headaches, noticeable swelling and pain that would not abate no matter what I did or what kind of medicine I took, and horrendous nausea, vomiting and heartburn. I reported these symptoms to the midwife who told me to cut down my salt intake (interesting thing to say to someone who can't keep anything down)! I had been reading  "What to Expect when You're Expecting", and told my midwife I was 100% sure that I had preeclampsia, she said "No you don't,  it is very rare!" I dealt with the pain and nausea for the next few weeks as my midwife would not give me permission to go to OB/Maternity. Finally it reached the point where I could no longer walk due to the pain and swelling. On June 15th my mom took me to the ER from there I was sent directly to Maternity. My BP was 140/90. The doctor came in hours later and informed us that arrangements had been made and I would have to immediately be transferred to a medical venter in Cleveland via LifeFlight due to the severity of my condition. Upon arrival my BP and other vitals were stable, so they decided to immediately initiate induction procedures. As the hours progressed I dilated to and was stuck at 4 centimeters for 36 hours. My BP jumped up to 220/190 before I finally lost consciousness. Kylee Nicole was born at 33 weeks via C-Section June 18, 2004 at 12:02 am weighing 3 lbs 10.6 ozs and 17" 3/4 inches long. She came home from the hospital on July 16, 2004. Due to her prematurity she was hospitalized off and on from August to October, she survived open heart surgery in late October, she came home after a 1 week recovery, she developed a fever and was re-hospitalized after a day and a half at home (I never saw her outside of a hospital again). We learned that due to her prematurity she was seriously immune-compromised and the fever was a result of her sternum disintegrating instead of growing back together as it should have. She fought numerous other battles in her short life (pneumonia, failure to thrive, a form of NEC, bacterial infections, Acute Myelogenous Leukemia). Kylee passed away February 1, 2005 at 2:31am at the age of 7 1/2 months in Children's Hospital after a valiant fight against numerous simultaneous infections. Saying goodbye to her was the hardest fight of my life but I made the decision to pull life support so she wouldn't have to sufferanymore. Since her death I have subsequently taken a chance and had another pregnancy. I delivered Leonidas Ronald September 6, 2007 after a healthy pregnancy at 40 weeks and 1 day. I hope our story helps anyone who doesn't believe that the continuation of their story can have a happy ending.                                                           

Update: Leonidas Ronald is now 5 1/2, we've decided to try for another baby. First try was a success, Baileyana Nicole was born on June 14, 2011, due June 5th and Isobella Thalia was born on December 05, 2012, due 12/12/2012. Our subsequent pregnancies have been healthy ones, though I know I'll always be at risk for developing preeclampsia in future pregnancies. -God Bless Our Angel Babies Shelly

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